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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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My baby boys' journey.

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What Do I Do Next?

Ok, so this is all new to me. I have never done a blog, or dealt w/ Celiac til just recently. Never have I worried about the food I have put in my body, and didn't give much thought to what my kids had either. My middle child showed signs of having an allergy. We took him and had him tested, and the only thing that showed up was a mild wheat allergy. I talked to the doctors and they said don't worry if it's not causing too many problems. I didn't worry until it really seemed like he was having a lot of problems using the bathroom. I then started researching gluten free diets, and was going to give it a whirl. While I was looking on websites I came across Celiac disease, and decided I better get him tested since he did have some symptoms. The doctor really didn't seem like I should be getting him tested, but I urged them to do so anyways. About a week later I get the call his results showed one test out of the 4 on the Celiac panel came back positive, and to put him on a gluten-free diet. That's the only answer I got. They didn't explain much to me at all. I decided to get my oldest son tested too just to be sure. Sure enough his came back positive on only one of the tests too.

I put both of my sons on a gluten-free diet, and did more research myself since all the doctors said was just put them on a gluten-free diet. I haven't seen much change in my middle child. It doesn't hurt him as bad when he goes to the bathroom, but his stools are still not normal. I have heard from other friends who have spoken to a doctor that they should have a biopsy. I am trying to get the doctors here to do a biopsy, and they are stalling. I am getting very frustrated. I just want to make sure they are getting the care they deserve and need. I want to rule out any other possibilities as in Crohns or maybe something else. I only know that my middle child tested positive on his IgG and it was 56. I had to ask them, because they didn't explain. I still don't know what my other son's tested positive for. I just feel I am getting the runaround and really need some guidance. I have been told (not by doctors) to stop dairy. I don't want to do anything until I can hopefully get the biopsy, and get a for sure answer. I am kind of stuck right now, and don't know how to help them. I feel the doctors should be doing more to help. I would appreciate any suggestions. I also have another little baby, and wondering when is the best time to get her tested. She's 11 months old, so I didn't know when is too early. Thanks in advance.