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Just Back From Dr.


mailmanrol

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Well, I just got out of the Dr.'s office. We went over all my tests and for the time being, in addition to now having to live 'gluten free', I am to start taking calcium and vitamin D tablets 3 times a day. Next Thursday I am going for a bone density scan because Celiac Disease can cause osteoperosis, and because of my age, and not knowing how long I have actually had the disease, the good Dr wants to see what condition my skeleton is in. It's best to know I suppose. Anyway, just x-rays of some sort...nothing horrible to do. So the calcium and vitamin D are to help build me up ha ha. I have battled Ulcerative Colitis for the past 30 years, and he said it is very possible that I have had Celiac Disease since that time. The Colitis could have masked the Celiac Disease and kept doctors from looking for it. And maybe it wasn't even known about 30 years ago?? (that's just my thought, not anything the Dr said) In another hour I go to the nutritionist and get told what to do about my diet. Of course, thanks to all you good people, and the internet, I think I have figured out most of it. But I will let you know what the story is. Ok, I guess I'll try to get a few things done before I leave. The good part of this day is that I was able to get out of work at noon for these two appointments! YIPPPEEEEEE!!!!

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rebeccaspacex
Hi! I just wanted to let you know that it is possible that you've had celiac disease for 30 years without knowing it. I was always sick and finally diagnosed at 32. At 33 I was hospitalized with Type 1 diabetes. I went to a Celiac conference a few years ago where they said the two diseases share a gene and about 5% of Celiac's get Diabetes. Also, I had osteopenia (pre osteoperosis) when I was first diagnosed with celiac disease 6 years ago, but now that I've been gluten free for so long my bones have built back up. Keep up the good work taking your supplements and remember there is a bit of a learning curve with getting completely gluten-free, but you will feel better than ever when you start healing. Hopefully, you won't get any other autoimmune diseases due to your lack of diagnosis for so long but keep it in mind if you start having other symptoms. Good luck!
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mailmanrol
Hi Rebecca! Thanks for the info and encouragement! I do find myself thinking of the things I love to eat that I can no longer have and I think that is the hardest part of this, but I am determined to change my eating habits and learn to live with this. I am hoping that my bone density test will not show too much damage, but I will take whatever steps I must to improve my situation. Hopefully you are doing great and will continue being healthy. Thanks again for your great comments!
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