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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Day One

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Porcelina

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So after a year and a half of being part time gluten free (avoided the obvious sources, but continued with sauces, malt vinegars and beers) I have decided that I want to be tested for celiac.
I kept a food journal and after playing around with food eliminations, I discovered that I have fructose/fructan malasorption. So I avoided apples, wheat, onions and garlic for the better part of the year. I also discovered that wheat caused intense pain in my stomach. Since wheat's sugar is fructan, I simply stopped eating it. I did this for almost 2 years, but I still ate things like soy sauce, malt vinegar, gravies, and lightly breaded meats.
Recently, beer and malt vinegars have caused migraines exactly 24 hours later, and I can tell if I have been 'glutinized', as again, exactly 24 hours later, I have fatigue, stomach ache, migraines and more recently to the symptom list, canker sores.
I finally made an appointment to see my doctor, but it isn't until the end of November. I am aware that since I've been eating it part time, I may get a false negative, so I have started a gluten challenge in hopes that if I get a negative, its a REAL negative.
Today was my first day. I had a slice of toast for breakfast at 730 am and by 2pm I was getting some stomach cramps. At 4pm I had a muffin and started to develop gas within 30 mins. Dinner at 7 was some breaded chicken fingers. Now, at 10pm, I can feel my tongue start to swell a bit, and possibly a canker developing. I am also very tired (note, I saw the chiropractor today after a week of pain, and I do notice that after an adjustment, I get tired.)
I have tomorrow off from work and am bracing myself for intense fatigue and migraines. I am hoping that the intensity will die off after the first few days, but if its as bad as I fear, there will be no way that I can go the full 7 weeks. I'm not even sure if what I'm doing it the right thing, but the info I've been reading says that most docs make the patient eat 1-4 servings of bread a day for up to 8 weeks anyways before they do the test if they haven't already been doing so.
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Maybe you don't need so much? "What is a gluten challenge? A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge. Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy." http://www.cureceliacdisease.org/archives/faq/what-is-a-gluten-challenge

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Awesome, thanks kareng. That will make things a lot easier (I hope) for me. I kept finding the same info over and over saying to eat 1-4 servings for at least 8 weeks on the internet. Thanks again.

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Best wishes and hope your gluten challenge will be as light as possible.  I hope you will get a firm diagnosis.  Keep track of your symptoms and be in touch with your medical provider if the symptoms are severe.

 

D

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Thanks for the wishes. I'm trying to figure out this blog thing so I can enter in my day two, but I'm not finding this sites forums/blogs/user info very user friendly. Probably doesn't help that I'm a dough head right now (no pun intended)

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