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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Neurological Damage Caused By Celiac Disease Not Reversed By Gluten-free Diet



[font="Arial"][size=2]Celiac.com 12/28/2006


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37 patients is a rather small number to draw conclusions from. Still, since the problem was so pervasive, I believe it has merit, which is rather disheartening. I was hoping that neurological damage from celiac disease can be reversed with a strict gluten-free diet, and it appears that it isn't likely to happen.

I have no idea if my Tourette syndrome was originally caused by neurological damage from gluten or not, but think it is possible. Only my siblings (out of six brothers and one sister) who have celiac disease symptoms as well (but won't get tested) also have tics, which I find rather interesting now that I think about it.

And even though I find that my tics have slightly decreased on a gluten-free (and lectin and salicylate free as well) diet, they are still very much there.

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It has been reversed in a few cases although this is quite rare. My mother and her sister both had coeliac disease. My aunt was diagnosed at a younger age and my mother diagnosed in her early 30's when she only just started to develop symtoms. The damage must have already been done as she developed neurological problems at around age 43. She had a few seizures and also developed gluten ataxia and had a fast decline and died at age 48yrs. My aunt who had been on a gluten free diet for longer started to develop gluten ataxia at around age 55yrs and died at 60yrs. Brain scans revealed atrophy of the frontal lobes. There is now a 50% chance of myself my brother and my Aunts two daughters also having coeliac disease and so far none of us have been tested. My aunt and mother were diagnosed as having frontal lobe dementia but all the symptoms were ataxia, what is the difference?

After researching into this I realised how serious this disease is and am trying to persuade them all to get tested as soon as possible and will have a test myself as soon as I can.

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I don't like this. I have been battling brain fog for the past 6 mths and increasing I really thought it was stress then to find out it is a side effect of Celiac Disease. I'm 32 I shouldn't be mixing up words, forgetting where I parked my car and unable to finish a sentence b/c I forgot what I was talking about. I was sooooo hoping these symptoms would go away. I still Hope they will go away. I feel so stupid at times and I know I'm not but it happens at the most inconvient times. It is very disheartening for me.

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