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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Disease - Parents of Kids or Babies With Celiac Disease
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Discussions with other parents of kids or babies with celiac disease.

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    • Dang!  If I lived that close to Chicago, I would definitely go to the University of Chicago's celiac center even just to hang out with some celiacs or celiac-savvy folk!  (Maybe visit Aunt Mary too....)  Consider a second opinion.  Some people spend more on their Friday night bar tab instead of paying for a second opinion (cash) if they went out-of-network (insurance).  Your current GI must suspect something (e.g. parasite).  Maybe he is hoping it will resolve on its own (frankly sometime this approach works), but that side pain for over a year is not normal.   Keep advocating.  😊
    • Cycling Lady, LMAO at IBeStumped!  So true. Yes, he is trying the band aid approach it seems.  That's probably the most frustrating thing of all.  So yesterday I get a call back from his office and they say to stop taking the Viberzi and switch back to Imodium!  I reminded them that Imodium didn't work, I had already used it 8 days with no changes.  His assistant informed me that that is all he can recommend at this time until he sees me at my next appointment which is 5/24!  I live near Chicago and I am about to make an appointment to go to the University of Chicago hospital which is the top celiac research hospital in the country.  Hopefully they can give me better answers.
    • 7Hi jen and welcome No-one can diagnose remotely via nterwe  posts but if there was such a game as celiac / gluten sensitive bingo, I would be calling 'House!' having read your account above... Lots of things fit the pattern as I'm sure your lurking has revealed.  It's a tricky condition to diagnose however so you may have a little wait before you join the coolest club in town and get your funky celiac membership card For now it's really important  that you stay on gluten. Keep eating it as accurate testing requires it. Ask your doctor to check the boxes for celiac testing alongside your liver blood tests. There should be enough in your history to get this without hassle but if they're reluctant INSIST and don't be afraid to assert your reasonable suspicion and wish to clarify and exclude. A good liver specialis will be aware of the possible links so you should be ok. If not gt second opinion. Ask for a full celiac panel as there are variety of tests. Find further info here There's a lot to take in,  but be positive, I think you are on the right track and if so, you could soon be feeling better than you ever thought possible!
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