• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Disease - Post Diagnosis, Recovery/Treatment(s)
71 71

Discussions related to one's diagnosis with celiac disease.

7,395 topics in this forum

    • 3 replies
    • 219 views
  1. Ads by Google:
    Ads by Google:


    • 21 replies
    • 22,691 views
    • 3 replies
    • 477 views
  2. Abdominal Muscle Cramps and Spasms, Help!

    • 5 replies
    • 453 views
    • 7 replies
    • 713 views
  3. Ads by Google:


    • 6 replies
    • 574 views
    • 2 replies
    • 403 views
    • 9 replies
    • 971 views
    • 4 replies
    • 503 views
    • 7 replies
    • 795 views
    • 6 replies
    • 545 views
    • 28 replies
    • 1,932 views
    • 9 replies
    • 816 views
    • 52 replies
    • 3,348 views
    • 4 replies
    • 434 views
    • 2 replies
    • 346 views
    • 13 replies
    • 1,340 views
    • 13 replies
    • 45,948 views
    • 9 replies
    • 677 views
    • 2 replies
    • 240 views
    • 18 replies
    • 952 views
    • 6 replies
    • 682 views
    • 3 replies
    • 481 views
    • 42 replies
    • 3,683 views
    • 19 replies
    • 1,319 views
71 71
  • Forum Statistics

    • Total Topics
      107,918
    • Total Posts
      938,672
  • Member Statistics

    • Total Members
      65,841
    • Most Online
      3,093

    Newest Member
    Jon baker
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am confused too.  I appears that your blood panel was indeterminate, but that your NP had you on a grain free diet for five weeks prior.  You went back on gluten for two weeks (recommendation is 2 to 4) for the endoscopy.  Maybe it was not enough time for your antibodies to build up and start attacking your small intestine.   Doctors can not say for sure that two weeks is enough.  Probably for most, but maybe not all.  I say this because I never even test positively on the TTG and EMA EVER (but my biopsies proved otherwise and my anemia resolved forever on the gluten free diet).  The number of biopsies taken (6 or more recommended) and the location should be determined.  I would ask for all medical and lab reports.   Your child had a positive DGP IgA like me, yet if I recall, they are dismissing celiac disease.  I think a second GI consult might be prudent.   Your symptoms?  If you have celiac disease it can take a few MONTHS to feel better.  Why?  Most often mistakes are made in the diet.  It happens.  There is a steep learning curve.  It flat out just takes time to heal.  I think most members will tell you that healing does not happen that fast even though science tells us that villi regenerates in just a few days.   There is usually a lot of collateral damage. Finally, something is wrong.  Maybe it is NOT celiac disease.  I though for sure my niece had it, but Crohn's was found instead on a pill camera.  She had consulted with four GIs!!!! So, keep advocating for your health and your child's.  
    • I looked at your past posts, but I’m not sure i know what you were eating then and what you’ve stopped eating now. Also what sort of medical workups you’ve had and what were the results. I understand your biopsy was negative - but I also saw on one post that you were worried they only took one biopsy. Do you have the analyst’s result report there with you? Does it say how many were taken? It’s hard for me to hazard any kind of a guess without a little bit more information, including any medications you are taking. I’m sorry you are feeling so awful. What symptoms are you having? Plumbago
    • I've posted a few different topics, so I thought I would just update in one post. I am seeing my GP later today, but apparently my biopsy results were negative. I have no further information on this. What I do know, is that I have been feeling much worse since giving up gluten after my gluten challenge. Half the days I have barely left the couch. I am so confused and upset. They had warned me this may not give me answers...I'm barely eating anything, I feel so sick. I feel like I felt better eating bread, so maybe that's how I'm supposed to be eating? At this point I just need to eat more than a banana, which is all I can stomach today.
  • Upcoming Events