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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    • Yes!  Ask for the IgA deficiency test!  Why?  Well, your doctor did not even follow protocol.  In order to validate the IgA celiac tests, he should have determined if you are IgA deficient or not. http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf  I have never tested positive on the IgG tests and only had one positive on the IgA DGP test, but I was not IgA deficient, so my GI knew that my test was valid and I needed an endoscopy to confirm my diagnosis.  You do not know if any of your tests are valid.  You need the IgA test.  It is a control test only in the case of diagnosing celiac disease.  But....some celiacs are low in IgA and that seems to happen more often in celiacs than the general population.   https://www.theatlantic.com/entertainment/archive/2017/07/dunkirk-is-a-stunningly-spare-survival-film/534252/
    • Almost EVERY single celiac expert in the world and/or groups like the U.K./U.S. Gastroenterologist Associations recommend obtaining biopsies for diagnosing celiac disease.  There are some exceptions.  If you are too ill to even risk an endoscopy, your celiac panel is extremely high on several of the celiac tests (this is still debatable), you have long wait times in getting the endoscopy (government health wait times) or you can not afford to get one are all acceptable.   You know your situation and will have to determine what is best based on your doctor's input.   The blood tests are not 100% accurate.  Heck, I tested positive only to a really odd one (the DGP IGA).  I had no noticeable symptoms.  I chose the endoscopy.  I never wanted to doubt my diagnosis as my hubby went Gluten Free some 16 years ago based on the poor advice of two medical doctors.  He got well, but does he really have celiac disease?  He would be the first to say that I have had way more support from family, friends and medical, yes, medical.   I hope this helps.  Best to research like you are doing so that you feel comfortable and committed.  
    • No, I didn't get a endoscopy or even  a blood test. I got digestive as well as other problems though on a number of occasions after being gluten free and accidentally eating something with gluten.  My symptoms were severe and dramatic so it was obvious to me that I had celaic disease.  I would ask the doctor what the endoscopy test is for and if there is any reason to take it besides confirming the blood tests.  From what I have read a false positive result on a blood test is unlikely but I don't know for sure. 
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