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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- RMJ replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Finding out I’m coeliac whilst pregnant
It is concerning. Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists. Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby! -
- Katiec123 replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Finding out I’m coeliac whilst pregnant
@RMJ this is really concerning and my GP has said none of this to me! -
- RMJ replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Finding out I’m coeliac whilst pregnant
Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten... -
- cristiana replied to Blanco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms161540 TTG Results... Help!
@Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list! Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something... -
- Katiec123 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Finding out I’m coeliac whilst pregnant
Hi everyone! I’m beginning to get a bit worried. I have had the first lot of tests done and my bloods are showing as a very strong positive for coeliac. I am also currently pregnant. I have been told to continue to eat gluten until more testing is done (biopsies). If I continue to eat gluten when the chances are very high that I am coeliac, will this h...
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It is concerning. Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists. Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby!
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@RMJ this is really concerning and my GP has said none of this to me!
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Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten free, but it wouldn’t affect your baby. I know which one I would choose!
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@Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list! Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something, even back then? But I know what you mean about black forest gateaux - I've never really liked McDonalds, Burger King or KFC but now wish I could eat all that stuff when my family are tucking into theirs! On the plus side, you may have seen, in the big supermarkets, particularly Tesco's, the gluten free aisle is ever expanding. In one of our local branches now it pretty much occupies a whole aisle. You might have to shop around, but it is amazing what you can find. Ginster's make their own gluten-free pasties now, for example. I just need a senior executive from McVities to read this thread because once Penguins are gluten-free, I shall be happy! As for prescriptions, this link should help you find out what you are entitled to - yes, NHS lottery is absolutely how it is! I have personally never bothered with prescriptions, but some do. I think perhaps what you could do is buy gluten-free for a month, cost it, then see if it's worth your while compared with what the NHS can offer. With some bread loaves costing £3.50 a shot, it might be worth it? By the way - do keep us posted if you can, we'd love to know if your gastroenterologist insists upon an endoscopy.
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Hi everyone! I’m beginning to get a bit worried. I have had the first lot of tests done and my bloods are showing as a very strong positive for coeliac. I am also currently pregnant. I have been told to continue to eat gluten until more testing is done (biopsies). If I continue to eat gluten when the chances are very high that I am coeliac, will this harm or affect baby? I feel like I don’t know where to get answers from as I haven’t seen the specialist yet
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