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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    • As cycling lady said. Does your Public school district have a homebound program/ coordinator you can speak with. Perhaps as you proceed with diagnosis for celiac and work on getting the 504 in place inquire if they are willing to send a homebound instructor out. In the meantime I would try to arrange to get the books from the teachers to pick up and work on at home. sometimes a homebound educator obtains all these materials and visits the home. lots of water, sleep, and I always find baths soothing and relaxing. For her and I suggest one for you after you get her to sleep as well. best wishes she is lucky to have a mom advocate for her during this difficult time .
    • I have read that article.  While, true, testing for antibodies seems to be better than nothing.  I have read the DGP may be better for monitoring the gluten free diet, but who knows if that is still true or not?  Endoscopies are invasive and not cost effective for constant follow-up care.   I would like to see more studies about healing outcomes for celiac disease.  Most information is based on clinical observation and just plain guessing.  While my hubby can take a hit that lasts a week, I go down for months!  I am assuming that there are variations of celiac disease, like diabetes.  You just have to find what works for you as an individual.  Follow the basic gluten free diet, but modify it for your personal level of sensitivity and accompanying food intolerances.  I wish there was a meter for my sensitivity.  I can sure identify which carbohydrates can spike my blood sugar.  Those carbohydrates that affect me do not necessarily affect other diabetics.   I am approaching five years of being gluten free.   I am constantly debating on whether I should get another endoscopy.  (My GI just said to email him directly and he'll squeeze me in within days).   But what will the results reveal?  That I keep making mistakes, am getting cross contamination from hidden sources, that I have refractory celiac disease or lymphoma or I am doing a good job?  I have chosen to move forward, stick to the diet and just simply live and enjoy my life.    Of course I say this after coming down from a six month bad stretch (tooth infection, flu, colds, daily hives, antibodies raised for both Hashi's and DGP).  Life has been good for the past month despite my family's crazy schedule.  I am going to take it!  
    • I'm glad the team found a way for the subject of the article to remain involved with the team as a manager. The young man has been through a lot in life. "Developed celiac" one wonders based on his early life medical challenges if celiac may be present in utero. And complications could have occurred as a mom would eat  a regular gluten containing diet . I was undiagnosed during my Family birthing years.  I have wondered if being undiagnosed and unknowingly consuming gluten negatively impacted my pregnancies, labors, deliveries, and the other issues my children experienced. I was not typical/average OB/Gyn  patient.  I believe I know the answer and I try to accept -with cliches of  it is what it is- and hindsight is 20/20 etc.  I'm glad he is thriving and not missing a beat as he ages and follows his gluten-free diet.
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