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Recent Activity
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- Celiac16 replied to Moodiefoodie's topic in Related Issues & Disorders3
Joint swelling when ill even on gluten-free diet
I wasn’t feeling great even after eating strict gluten and diary free for years. I eliminated grains which helped and then eventually adopted a low carb, high fat, medium protein diet that really helped. I think I was too focused on the celiac diagnosis, and kept going back to my go for colonoscopies and endoscopies that didn’t lead to anything (the drs did... -
- Celiac16 replied to Manaan2's topic in Related Issues & Disorders12
Vitamin Levels and constipation
@Manaan2 hi Manaan, this is going to sound very random but vitamin b1, thiamine, helped me with constipation. It can also cause anemia if low (so can other b vitamins so a b complex or multivitamin could help, probably a good safety net too). My pediatrician had me take a multivitamin when I was diagnosed as a kid too just to cover all the bases. -
- Celiac16 replied to Gunni's topic in Related Issues & Disorders4
Diabetes like symptoms and more
@Gunnihi! I’ve had similar concern with diabetes symptoms despite negative testing. I was having trouble breathing at night… I felt so weak I had to prop myself up to basically sitting to be able to breath while sleeping. I did test with sightly out of range anion gap and lactic acid but both enough for doctors to do anything… I was also getting extreme verti... -
- plumbago replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Partial Positive Biopsy/Negative Serology - is celiac still possible?
Thanks for clarifying that, Trents. In my response, I misread the celiac panel results, totally! So I retract that first sentence which was based on the misread of the antibody tests. But @gameboy68, as Trents says, the endoscopy/biopsy results do likely point to (or align with) celiac disease. -
- trents replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Partial Positive Biopsy/Negative Serology - is celiac still possible?
Your symptoms definitely align with celiac disease and your endoscopy/biopsy certainly points to possible celiac disease. However, your celiac antibody testing does not. This could very likely be due to inadequate gluten consumption during the weeks/months leading up to the blood draw. Guidelines for the gluten challenge are evolving but the current trend...
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