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Recent Activity
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- cristiana replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Finding out I’m coeliac whilst pregnant
Hi Katie I am so sorry you had two miscarriages in the past. Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP. Is it possible that you can speak to your midwife in the meantime for a chat? Cristiana -
- Katiec123 replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Finding out I’m coeliac whilst pregnant
@cristiana hi! the things I’ve read online about having untreated coeliac disease whilst pregnant has really scared me and made me very hesitant to continue eating it. I feel like the best option might be to eliminate gluten from my diet now and then continue with testing after I’ve given birth. I’ve got in touch with my gp and am due to get a pho... -
- cristiana replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Finding out I’m coeliac whilst pregnant
@Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all... -
- Shireen32 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Still testing positive after being gluten free for one year ?!!
Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there . My symptoms have not improved at all since being gluten f... -
- knitty kitty replied to Moodiefoodie's topic in Related Issues & Disorders6Joint swelling when ill even on gluten-free diet
Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.
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Posts
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Hi Katie I am so sorry you had two miscarriages in the past. Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP. Is it possible that you can speak to your midwife in the meantime for a chat? Cristiana
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@cristiana hi! the things I’ve read online about having untreated coeliac disease whilst pregnant has really scared me and made me very hesitant to continue eating it. I feel like the best option might be to eliminate gluten from my diet now and then continue with testing after I’ve given birth. I’ve got in touch with my gp and am due to get a phone call back on Monday. Really worried now as I’ve had 2 miscarriages in the past
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@Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all of us - it was just an earlier than expected arrival! I agree, it would not be wise to eat gluten if there is any suspicion that you have coeliac disease during a pregnancy. It would of course be good to know for sure, one way or another, because I believe coeliacs receive extra monitoring during pregnancy in many countries. I think it may be well worth asking your GP if you can be referred to a gastroenterologist for a formal diagnosis asap. By the way you spell 'coeliac' I'm guessing you are posting from the UK? If that is the case, the NHS may rush things along for you, I suspect they will. If it appears that they cannot refer you urgently, if you have the money for a private consultation it might be well worth it, as there is a trend here in the UK (I'm British) to diagnose coeliacs without the need for an endoscopy if the blood test results are compelling. Sounds like this is the case for you. If you can see a gastroenterologist privately s/he might be able to diagnose you there and then (make sure you take a printout of your blood tests). Generally, there is a lot of support for coeliacs through the NHS, with a nutritionist, annual reviews and blood tests to check for diet compliance and health related issues, DEXA scans to check bone density, extra vaccinations where indicated and in some areas, certain gluten free food available on prescription. So for lots of reasons, if you can get a diagnosis it's worth it. I hope all goes well with your appointment, let us know how you get on.
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Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there . My symptoms have not improved at all since being gluten free. Could this be refractory coeliac disease ?? How is that even diagnosed or confirmed ? I had tests recently and this is what they say :Endomysial abs (IgA) -Positive TTG abs (IgA)U/ml : My result is : 0.9 U/ml The Range:0 - 10 U/ml What does this mean pls ??? How can I still test positive for Endomysial abs when I am gluten free and am very careful about cross contamination? Do I even have coeliac disease I’m convinced some other digestive disorder is causing these symptoms . I also have not had a endoscopy and now the gastroenterologist calls me after one year ( I’m from the uk and have free healthcare which has been such a nightmare with all this and never help me ) so as I am gluten free the gastroenterologist advised me to start eating gluten again to be referred for a biopsy .. Is a biopsy even worth me doing ? The only proof I have is when I was eating gluten I could never get my ferretin , vitamin d and folate levels up . And since being gluten free these have gone up a little bit . But that doesn’t always mean coeliac as I know gluten stops absorption in even normal people . Pls can anyone shed some light it’s much needed ! And share some advice or answer my questions above . I have no idea with this whole coeliac stuff and am very much struggling .Much Appreciated .
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By knitty kitty · Posted
Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.
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