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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    • So I think my daughter is reacting to Dairy?  I only really removed it 100% from her diet for a few weeks and then SLOWLY let her have some because of how difficult it was to find substitutes she liked and she was still reeling with the emotions of being restricted from so many foods.  The smell amts of dairy we allowed had no adverse effect on her (so we thought) and her improvements were still so profound and immense we felt confident that dairy was not an issue. Cue the Cheerios.  We allowed her "oats" again and Cheerios require milk and within a week BOOM all her symptoms were back - difficulty swallowing, hearing issues, dh rash on her scalp, tired, confused. Naturally I accused the oats of being the devil! So that was a week ago that I figured out that oats were evil and have easily eliminated them as Cheerios were the only source. Well here I am and she is NOT getting better.  In fact...she is now having extreme SPD symptoms again.  Things are too loud.  Smells are too strong. Her clothes feel weird, her bedding feels weird.  This all overlapped with the onset of a pretty bad head cold so I tried to be patient.  But a full week later...I think it's the dairy? I have an apt with a Naturopath to test for food sensitivities and I am wondering about having the Dr test her scalp rash? Any thoughts?  Do we assume it's dairy or could a cold on top of an oat cross contamination still be causing problems?
    • Next time just take a box of rat poisoning and extract ONE granule.  Toss it into his food (while he is watching) and give it a good stir.  Hand the food over and see if he is willing to eat it.
    • Gertrude.....just a few comments after reading your posts..........no other disease but Celiac disease will cause a positive on the EMA test.  I have never heard of a false positive on that either.  It is a test that is done by hand and not by a machine because of the way it has to be done, so having a false positive is almost impossible.  Your doctor should have known that.  Many people trip just 1 or 2 tests on the panel and they have Celiac Disease.  With autoimmune testing, you can test 2 different people with Celiac Disease and they can have wildly different test results.  Couple those with a positive gene test and the likelihood of it being Celiac is almost 100%.  The fact that the doc didn't find villus atrophy just means the damage is not extensive enough for them to find.......yet.  I am sure they would prefer you to keep eating gluten until that happens but you do not want to do that.  So.........after you have been gluten-free for awhile, have them run the Celiac panel again to see if your EMA goes to normal, which it should if you eat very gluten free. With positive gene results, positives on your Celiac antibody testing, and positive dietary response, that is a diagnosis!
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