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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Super Sensitive Celiacs & Gluten Sensitive
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Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    • I get it on the back of my right leg and right elbow.  I have no idea why it's just limited to the right side of my body.  My family care doctor prescribed me a steroid and steroid cream.  The oral steroid has only made me grouchy and fat!  I'm probably going to stop taking it since it hasn't helped the rash much.  Good luck getting rid of yours!
    • Had The rash for years before I went gluten-free. My rash took about a month or two to heal and vanish. When I get glutened the rash areas start to itch a bit- besides being constipated it's my only clue! good luck and be patient 
    • Kaiser offers the full panel, but a primary care MD can not order it -- only a GI.  Again, a visual is not needed.  Damage is usually severe if it can be seen visually (e.g. Scalloping, etc.).  Villi are microscopic though.   When you got the referral, you probably should have found a GI on your own by searching through the Kaiser directory and finding one who has some mention of celiac disease in his bio.  Too late, but that is kind of how it works.  Your PCP does not know the GI docs.  The scheduler just makes appointments.  So, now,  that you have been referred to a GI, you can probably schedule another appointment on your own by passing your PCP.  Wait first for the pathologist's report.  They might not put it on the patient portal, so get a hard copy for your records.  If it is negative and they took four or biopsies, you will have your answer. Then you can consider trialing the diet.  If they did not take enough samples, ask for the DGP and EMA tests, including the control test IGA deficiency (which affects 10% of celiacs, but do not quote me on this).  You could wait a few years until you think damage is severe enough to find.  celiac disease can be hard to diagnose.  It can develop at anytime.   Don't forget you might have a gluten sensitivity too and not celiac disease.   Kaiser responds well to requests in writing.  Try the patient portal first before a registered letter.  If they are not following the standard level of care, they are at risk for a lawsuit.  Be nice.  Say something lame in your letter like,  "We had such a nice short visit, so I  forgot to ask ....blah, blah, blah." My own relatively new PCP is still learning about celiac disease.  That is okay.  At least she has an open mind.    
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