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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    • You are not alone. My daughter also has elevated TTG after 3 years on very strict gluten-free diet.   My household is also gluten-free.   My daughter is a silent celiac.   So, I have the NIMA gluten tester, and also use the EZ Gluten test kits to test outside foods. I understand that you are careful with her gluten free diet, as we are careful with our gluten free diet.   This is just frustrating! We were offered to do another endoscopy to see if there are still damages to her stomach lining.   But we decided against that.   Because she is growing, and gaining height. My daughter does have Type 1 diabetes, and this can contribute to her elevated TTG.  I suppose if you really want to know if your child is healing, you can ask for another endoscopy, and see if there are still damages there.   Or just keep going with your gluten-free diet, as long as your child is healthy and growing normally.    
    • It is a cambells product and NOT on their gluten-free list at all. Now the ingredients for the turkey gravy look safe, the beef gravy states it has wheat in the ingredients. I would say just avoid it.....get pacific broth or some other gluten-free broth add seasonings and make your own gravy, I like using potato flour to make gravy for my church when cooking for them. Myself I use konjac flour as it is carb free, NOTE on konjac you use like 1/2tsp to 4-6cups of liquid.....stuff thickens like crazy. Potato start off with half the amount you would for a flour and slowly add more til desired consistency.
    • I have had severe constant bloating for many years. I have diagnosed with celiac diseases about two months ago and have been gluten free since. My skin rashes and constant nausea have improved a little, but the bloating is much worse. Is this because of celiac? If so how long will it take for bloating to settle down?  Is it because my stomach is inflamed? My stomach also gets full and bloated easily, but I am Always hungry. I constantly want to eat since I started eating gluten free. 
    • CeliacMommaX2, Your children may be reacting to corn in their diet. Here a post that talks about this possibility in addition to Oats - Corn can trigger IgA immune response in some Celiacs. Also  you might have them checked for Pellagra some Celiac's also have co-morbid Pellagra and it can contribute to a poor GI response even when someone is 100% gluten free. Celiac.com recently featured an article about why/how this might be so. See this article https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html I have also blogged about my experience with Pellagra on celiac.com just search for the posterboy on celiac.com and my blog posts will come up about how many of my GI symptom's got better after taking Niacinamide or as I like to think/say I am a Celiac who also developed Pellagra. ***this is not medical advice only my own personal experience I hope it helps you the way it seemed to help me. I recommend people be tested before beginning any Vitamin so any cases of Pellagra and Celiac disease occurring in the same person can be documented. Since I was not tested before I begin taking Niacinamide I can only advocate that others be tested to rule it out. So if it is Pellagra undiagnosed you won't be fighting a two front war as you seem to be doing now. I am Not sure what else in your kids diet  is causing GI problems as indicated by high TTG levels. But I would look first at the corn then also maybe test to see if it is possible a B-Vitamin deficiency might be triggering some of these issues. It is not as far fetched as it seems. The gluten free works site talks about what low niacin levels look like and how eerily similar are the GI problems a Celiac has looks like in people who have it. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ New research validates that low Niacinamide in pregnant mother influences Ezcema in their babies. see this link about this new ground breaking research about how inherited B-Vitamin deficiencies can affect the health of our children. http://www.medindia.net/news/higher-levels-of-vitamin-b-during-pregnancy-lowers-risk-of-eczema-in-children-163685-1.htm So it seems plausible any deficiency you might of had could of been passed on to your children. And doctor's unfortunately don't know to look for Pellagra any more today and therefore don't find it. see Dr. Heaney's blog post on why this is so. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ quoting and I couldn't agree more. "In the United States, at least .  . . it is doubtful today that most health professionals would recognize it (Pellagra) if a case happened to come to their attention." today. But is it easy enough to check for with a blood test or sometimes a 24 hours urine test is also used.  You don't have to have all the D's of Pellagra to diagnosis it.  ONLY  one of the D's (Digestive) can confirm a diagnosis. In fact the MD guidelines website notes that if you have only one of the D's of Pellagra it is better to have the dermatitis problems or doctor's have trouble identifying it as a Niacin(amide) deficiency today. http://www.mdguidelines.com/pellagra Quoting " The diagnosis of pellagra is straightforward when the classic rash (eczema my words) is present but may be elusive if there are only gastrointestinal and/or neurological manifestations." as the new research I cited above is bearing out. They forgot what they knew 75+ years when Pellagra was eradicated from the general public and no longer recognize it when it present's other than as a skin disease today.  Pellagra is Italian for rough/sour skin as first described in Italy before Niacinamide was isolated as it cause. The 3 D's of Pellagra are not all separate diseases but one Parent disease with many children like dermatitis issues and/or dementia issues and/or GI issues. I hope this is helpful and good luck on finding out what (else) might be triggering the high TTG levels. Sorry for the long post but I am trying to educate here about why and how Pellagra is often misdiagnosed as Celiac disease today  and sometimes that takes some background information to understand not only what is happening but WHY it is happening. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,    
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