This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease?
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.
It is hard having celiac disease, but after a while it does get easier.
Just so you know, I am an adult, but I am a Girl Scout Leader, have a daughter who is 16 and one of my daughter’s friends was just diagnosed with celiac disease just three weeks ago!
Social events can be hard, but you can bring some food that is actually better than just snacks. If I am going to a friends house, I can bring food and reheat it in the microwave. I also have a good thermos that I can fill with Spaghetti, chili or soup. I also bring ice cream and keep it in the freezer. One of our troop members is really allergic to nuts and milk, yet all her friends (true friends) accommodate her. For example, I make some pretty good gluten free, dairy free, and nut free brownies for her. At our troop meetings or camping, we never bring nuts. She is never left out. Now, we are working with our Newbie celiac friend. My daughter and I took her a care package, so that she can start baking gluten-free chocolate chip cookies.
Short! That is me. Not everyone with celiac disease is short. You may find that you end up growing more, but remember, genetics plays into it too. My brother grew after high school!
I think that you probably see your doctor often, because they want to insure that you are following the gluten free diet. Consider yourself lucky because some people do not have access to medical care. They must manage this all on their own.
Take care and be safe! Do not give out too much private information (did I say I was a Mom?”) be patient and some other teens should show up in the other sections, but you can always ask anyone here a question.
P.S. Check out celiac summer camps. Google it. Imagine a ton of kids just like you! I wanna go!
I have two suggestions. First try switching to mostly natural gluten free foods. It makes the diet much easier. Second, i know you said you know the consequences, but really think deeply. in some ways, gluten is poison to your intestines. it literally eats away at it! so next time you think about eating gluten, think what you are really putting your body.
I’m in middle school and here is my story of celiacs. i was short all my life and had mild stomach aches. Finally, about a year and a half ago, my doctors realized it was celiacs. The blood tests came back positive for it, so i got the endoscopy. sure enough, i had celiacs. it is so hard for me for many reasons. 1. at social events it is so awful to not be able to eat anything except snacks from home. 2. I am still very short and it’s embarrassing! 3. i have to go to the doctor every 3 months for lots of blood work. Is every celiac’s life like this or just mine? Can anyone help me cope with celiacs?
Hey I’m around the same age! I get it and feel the same way. I was diagnosed only over a year ago and my celiacs very hard to deal with at social events. But what ever you do, don’t cheat the diet! The consequences will come back. I’m here to chat if anyone needs support
I personally stay away from “may contain gluten” products. However, too many products say “processed in a facility with gluten” where if i cut them out, i am basically malnurished. Also, they clean the equipment so it shouldn’t matter.