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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  1. Celiac Disease: Diagnosis, Recovery, Related Disorders & Research

    1. Gluten-Free and Celiac Disease Calendar of Events

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    2. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

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    5. Dermatitis Herpetiformis

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    6. Gluten Intolerance and Behavior

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  2. Celiac Disease Support & Help

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    3. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

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    4. Celiac Disease - Doctors

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    5. Celiac Disease - Teenagers & Young Adults Only

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    6. Celiac Disease - Pregnancy

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    4. Gluten-Free Ingredients & Food Labeling Issues

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    5. Celiac Disease - Publications & Publicity

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  4. When A Gluten-Free Diet Just Isn't Enough

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    2. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    3. Alternative Diets

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    • Can you get a copy of your bloodwork and the results and ranges so we can tell what has already been run? We have some folks really knowledgable about lab work that might be able to give some insight or let you know what other tests to have your doctor run.  I agree with Ennis that this should be followed up on.  When your fingers and toes get purpleish have they been exposed to the cold? It could be Raynauds which isn't serious, as far as I know. Do try some supplements, making sure they are gluten free and bring them with you to any doctors appointments. To get accurate levels you may need to stop some for a bit before the doctor checks.
    • Hi there,  I eat a very clean unprocessed diet, and was this way before I was diagnosed with celiac. The most processed my foods get is just having two pieces of toast in the morning. Before I was diagnosed with celiac they had me monitoring my blood sugars, but did not seem to think it was diabetic. I will definitely talk to my doctor about vitamin deficiencies and hope he will take it more seriously!  Thank you for the prompt feedback!
    • I understand the link.   I’ve gotten sick from Frito products that are labeled gluten free.  I called and spoke with them on their processes, they “clean” the lines.  I won’t buy products that are ran on shared lines/“cleaned”.  It’s not worth it.  
    • This could be related to nutrient deficiencies such as multip B-vitamins, magnesium, primarily with some others to consider like vitamin D E and iron. But my concern with be diabetes also, it is a fact that diabetes and celiac go hand in hand often. AND if you eat gluten free processed food often you are eating a ton more starch, carbs, and sugars then you need to which could make this worse. I would really suggest seeing a doctor about this as it seems to be a really serious issue. Discoloration is a blood flow issue normally.....this could lead to complications and loss/amputation of you your extremities. Again my main concern would be diabetes, if you want to help keep track of this get a glucose monitor from walmart and check you blood glucose before and a at the 30, 60, 90, 120min mark after a meal for a week monitor the results and see about taking them to a doctor. If your seeing large spikes and drops between and after meals this could be a sign of something. (again observational data not a doctor here  but info to help). You can try supplementing B-vitamin complexes and magnesium also help but PLEASE talk to a doctor on this issue. Change to a whole foods only diet for awhile and see about cutting out processed foods, sugars, and going easy on the carbs.
    • Celiac disease is a bit like a chameleon in symptoms with over 500 known combinations (someone else said this number). It being a autoimmune disease it would not be unheard of it effecting the lymph nodes and in fact early on my first signs of a CC was tightening and swelling of the ones in my neck. I have not noticed this with my past few encounters in the past 2 years. But as I said it is a chameleon in symptoms. You will need to be eating gluten daily for about 12 weeks for the celiac blood panel which is the standard for testing with this disease. And keep eating it for 2 weeks prior to a follow endoscope and biopsy to check for intestinal damage. You can read up more in the link http://www.cureceliacdisease.org/screening/
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