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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    • Thanks for your replies! This is what I have been worried about. If I did get a negative, I don't want to be left wondering if it was a false negative because I didn't wait long enough! 
    • Hello and welcome First, sorry to hear you're not feeling well. Myself and many others here can empathise and I know how desperate you will be to simply feel well. You may need to delay that just a little bit longer however: Maybe? It's impossible to answer because the test is looking for antibodies created by the immune system and different people's immune systems react differently. You may test positive as Jen says and go on to the next stage, because an endoscopy is the usual last part of the process, or you may test negative and be left wondering if you'd only stayed eating gluten longer would it be different. Doctors like to try to play it safe which is why they insist on a gluten challenge period where you are definitely having gluten each day.  It gets more confusing. You may be like me, finding all these symptoms that seem to relate to consuming gluten but then testing negative for celiac. This could mean Non Celiac Gluten Sensitivity (NCGS) for which there is no test or it could mean you needed a longer challenge. I did 6 weeks and couldnt face any longer, sometimes I wonder if I'd done 8 would I have got a different result? Although I had been strictly gluten free before then so perhaps not a good comparison.  I think you need to use this time to push for an answer and know that once testing is over, whatever the results, you can give the gluten free diet a proper try. You do have the option of speaking to your doctor and asking for an earlier test, but you may have to pay for that and if its negative you may want to stay on gluten to complete the challenge period for a more definitive answer. Best of luck!   
    • I suspect that there is no "right" answer for you.  If the lab work comes out negative, I don't think you can say with 100% certainty that it isn't a false negative. If it's positive, you can keep eating gluten and pursue endoscopy. But, if it's negative, I think there's still a chance that it's a false negative. You can continue with a gluten challenge (the equivalent of 1 piece of bread per day) and get retested in the future. Good luck!  
    • With celiac you can't ingest gluten at all, ever, not even a smidge. It can take months to get better once you go completely gluten free. And it can take months to recover from accidental gluten ingestion. So you probably haven't started recovering yet. Going gluten free is not easy for many people so you're not alone in this.
    • What type of test did you use?
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