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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  1. Celiac Disease: Diagnosis, Recovery, Related Disorders & Research

    1. Gluten-Free and Celiac Disease Calendar of Events

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    2. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    4. Celiac Disease - Related Disorders & Research

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    5. Dermatitis Herpetiformis

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    6. Gluten Intolerance and Behavior

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  2. Celiac Disease Support & Help

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    3. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

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    4. Celiac Disease - Doctors

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    5. Celiac Disease - Teenagers & Young Adults Only

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    6. Celiac Disease - Pregnancy

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    8. Celiac Meeting Room

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  3. Gluten-Free Lifestyle

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    5. Celiac Disease - Publications & Publicity

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    7. Gluten-Free Diet & Weight Issues

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  4. When A Gluten-Free Diet Just Isn't Enough

    1. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

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    2. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    3. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  5. Forum Technical Assistance

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    • Yeah I thought that rant might make me look like a queer after reading it a bit later.....I am straight btw I just have very long and fine hair...that yeah it blows everywhere and gets in my mouth sometimes, and always pushing it with my hands or having to tie it up.  I blew up because it sometimes feels like I am talking to a bunch jocks with buzz cuts when it comes to hair....like people that do not understand no matter what you do....it is going to end up in your mouth and you have to keep messing it and working with it when the stuff runs like 4-6" past your shoulders.
      >.< thing is some times with the way your hair is.....you do not rinse it all out...some conditioners I have used in the past used to b ones you would not rinse all the way out....it sort of does become a issue that is very easily avoided. There are many more options for gluten free shampoos now days and many companies have taken the allergy/gluten concern to heart and removed them/used alternatives to boost sales to a larger demographic. Point is while yes I did blow up about it...and honestly in many cases the "hydrolyzed wheat protein" thing is a hit and miss on if it really contained gluten, but better safe then sorry is my bet and with tons of options....why chance it?


       
    • B-vitamins...most gluten and processed foods are enriched...your basically eating a multivitamin every time you have a slice of bread etc. Look for a full spectrum B-vitamin supplement, others can be magnesium, iron, vitamin d, folate, etc. You mention plenty of greens and fruit so ruling out vitamin A,C,K, and a few others. Hmm did you drop off your carbs too much? If your carb dependent you need more complex carbs from like sweet potatoes, rice etc. And what about fat and protein? I am a keto dieter, my body burns fat instead of carbs for energy so I can say it is quite important to have plenty of fats and protein in your diet. Try snacking on nuts/seeds between meals or making up a protein shake with almond butter in it between meals (again going but what you said you eat vs what you might be missing)

      I use Liquid Health for my spectrum B vitamins and vitamin D. Might look into them, being in liquid form you can just add it to a beverage. Might see about magnesium also, huge issue with many with this disease.

      On other after thought, your probably already very aware of...but you mention your not "diagnosed yet" you will have to do a gluten challenge of eating gluten for a extended amount of time daily prior to getting tested. http://www.cureceliacdisease.org/screening/
    • Thanks guys! I have an endoscopy/colonoscopy  feb 5th, so we will see. I have had digestive issues for the past like 10 years. GERD, migraines, lactose intolerant, dizziness on and off starting last year. My test just always show chronic inflammation, I thought they tested for celiac last time but it was only H. pylori samples. As much as I don’t want to have celiac I’m hoping this could be the root of my problem! My doctor said I should probably go gluten free after the test regardless of the results. You guys have been so helpful!! 
    • Well was trying it in smoothies, and puddings...but yeah  I can see it especially with the jelling effects causing some issues...will try again later. I changed over to pumpkin seeds higher in zinc today for my rotation.

      PS I am allergic to corn..and any kind of sugar messes with me. SO most meds are off limits. I went with Immunity Tea from Republic of tea, Ester-C Capsules, Thayers slippery elm lazenges sugar free, and a zinc Supplement for my remedy. Oh and sugar free meds normally contain that asu what ever stuff......makes me go off the deep end mentally.
    • I am not diagnosed yet. Have been gluten free for almost 4 months. Felt incredibly good for the first couple of weeks. Eczema disappeared. Fatigue disappeared. Gastrointestinal discomfort disappeared. Then I had a couple of inadvertent gluten exposures with terrible symptoms ensuing - the common celiac symptoms. As the symptoms subsided, I started to feel better again. Not as good as the first couple of weeks but much better compared to the pre-gluten-free time. For the past 2 weeks, however, I have had an unprecedented sense of fatigue, brain fog, and headache. I have no other symptoms generally associated with celiac. Only fatigue and headache. I am guessing it might be nutritional deficiency due to the change in my diet [I understand this happens to many who go gluten free].    I will be seeing a doctor soon. In the meanwhile, the fatigue is so bad that it's interfering with my daily activities. I have never felt this weak in my life. Few days ago I tried exercising - I thought maybe it would generate some energy. But it made matters worse.   If this is indeed due to malnutrition, what nutrients could I be lacking? I have a rather diverse diet with a lot of greens and fruits, so I have no idea what the problem might be. I am getting tired even writing this now.   Any advice will be appreciated.
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