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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
    • Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,
    • LilyR, jmg has given you good resources/links. I used to have constant issues with ear infections that went away when I went gluten free. And recurrent bronchitis they I never have now. NCGS can cause low grade inflammation that you don't realize at the time . .. till you stop eating gluten. That said have you been checked for a UTI infection.  It is not uncommon to have low grade fevers when you have one. My friend at work recently had a bad spell of health and the only symptom she complained about before coming down with a bird flu virus was a low grade persistent fever (not for a few months but for a few years). The last time I had bronchitis before it became pneumonia I had a low grade fever in the few months before my pneumonia diagnosis. Keep looking is my advice to you.  Low grade fevers are fighting off an infection . .  sometimes we don't know why until other symptom's present themselves. I do know that when I went gluten free most of my chronic health issues got better.  I can only assume it (gluten) was triggering inflammation in my body. I hope you find out what is the cause of your fever and that being gluten free helps it. ****** this is not medical advice just some of the ways going gluten free helped me and some possible other causes of a low grade fever that have happened to myself or others that I know of. posterboy,
    • "If the biopsy is negative, then is there another test that can be done to make sure I really don't have celiac? " Yes, we can do a genetic testing for the celiac gene, I think it is the DQ2 and DQ8 gene, and maybe one other.   If you don't have one of these genes, I was told that you can not have Celiac.   See if your insurance will pay for one of this test.   If not, I think you can pay out of pocket for about $300.
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