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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  1. Celiac Disease: Diagnosis, Recovery, Related Disorders & Research

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    3. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

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    4. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

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    5. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

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    6. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

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  2. Celiac Disease Support & Help

    1. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    2. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

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    3. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

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    4. Celiac Disease - Doctors

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    5. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

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    6. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

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    7. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

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    8. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

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    9. Celiac Disease - Sleep

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    10. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

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  3. Gluten-Free Lifestyle

    1. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

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    2. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

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    3. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

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    4. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

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    5. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

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    6. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

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    7. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

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    8. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

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    9. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

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  4. When A Gluten-Free Diet Just Isn't Enough

    1. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

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    2. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    3. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  5. Forum Technical Assistance

    1. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

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  • Topics

  • Posts

    • I understand the link.   I’ve gotten sick from Frito products that are labeled gluten free.  I called and spoke with them on their processes, they “clean” the lines.  I won’t buy products that are ran on shared lines/“cleaned”.  It’s not worth it.  
    • This could be related to nutrient deficiencies such as multip B-vitamins, magnesium, primarily with some others to consider like vitamin D E and iron. But my concern with be diabetes also, it is a fact that diabetes and celiac go hand in hand often. AND if you eat gluten free processed food often you are eating a ton more starch, carbs, and sugars then you need to which could make this worse. I would really suggest seeing a doctor about this as it seems to be a really serious issue. Discoloration is a blood flow issue normally.....this could lead to complications and loss/amputation of you your extremities. Again my main concern would be diabetes, if you want to help keep track of this get a glucose monitor from walmart and check you blood glucose before and a at the 30, 60, 90, 120min mark after a meal for a week monitor the results and see about taking them to a doctor. If your seeing large spikes and drops between and after meals this could be a sign of something. (again observational data not a doctor here  but info to help). You can try supplementing B-vitamin complexes and magnesium also help but PLEASE talk to a doctor on this issue. Change to a whole foods only diet for awhile and see about cutting out processed foods, sugars, and going easy on the carbs.
    • Celiac disease is a bit like a chameleon in symptoms with over 500 known combinations (someone else said this number). It being a autoimmune disease it would not be unheard of it effecting the lymph nodes and in fact early on my first signs of a CC was tightening and swelling of the ones in my neck. I have not noticed this with my past few encounters in the past 2 years. But as I said it is a chameleon in symptoms. You will need to be eating gluten daily for about 12 weeks for the celiac blood panel which is the standard for testing with this disease. And keep eating it for 2 weeks prior to a follow endoscope and biopsy to check for intestinal damage. You can read up more in the link http://www.cureceliacdisease.org/screening/
    • Hi there, I was recently diagnosed with Celiac after having dramatic weight loss, extreme fatigue, digestive issues, and a variety of other things. The blood test and biopsy both came back positive so I have been following a strict gluten free diet.  I have been experiencing muscle spasms, frequent face redness all over, and as of lately my toes and fingers have been turning different colours. The most concerning would be my toes as they will go purple. Each toe looks like it has a bruise on it. Is this symptomatic of celiac? I followed up with my family doctor but his only suggestion was to see a dietician, and out I went.  My antibody came back positive, and the titre was high and speckled. Is this related to the celiac? Not much has been explained to me, and I am just trying to understand further! If anyone has any advice, or comments I would be glad to read them!    Thank you  
    • You should get the lymph nodes checked. You need to be eating a regular gluten containing diet to get the best & most accurate results for celiac disease.
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