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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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  1. 3 points
    hi all - just wanted to share in case it's helpful for any one else newly diagnosed. It's been nearly a year since diagnosis and I have to confess it's been miserable. Very very slight improvement in gut symptoms but nothing as close as I expected/hoped for. Most days I was in discomfort and had diarrhoea. Although I knew lactose was an issue with newly diagnosed I assumed that my using lactofree milk was enough (and thought that yogurt, butter and hard cheeses were safe). In desperation a couple of weeks ago I went completely dairy free and the transformation has been astonishing. I am nearly (only nearly!) normal. I had assumed I was getting gluten cross-contamination all the time, but now it looks like the problem was lactose. So thought it's a pain having to avoid gluten and dairy, I can at least hope that the lactose issue will be relatively short term. So the moral of this story is if you're not improving as fast as you'd hoped it may well be worth looking more closely at the lactose. Hope this is of help to someone Sue
  2. 3 points
    i have similar symptoms now, thanks to sudden new dairy intolerance after increased dairy consumption in April and a McDonald's milkshake in early May. i think sometimes we start increasing certain foods or a variety of foods, and then it catches up. I thought at first I'd been glutened, but by the time the test kits arrived I was suspecting dairy and a variety of dietary indiscretions more. I am now treating with Pepcid (famotidine) 20 mg., twice a day, supplemented by Tums and simethicone (gas-x). I just saw a new PCP and he OK'd this, said Pepcid is far less effective than PPIs, but to give it a 2 week trial. For the last two months, I was using only Tums, simethecone, Kaopectate (no dye like Pepto), and experimented with fennel and peppermint tea. The fennel tea helped a lot, but I read negative things about it, so stopped. Other things that are helping: I sleep propped up on my left, wear loose pants, bra half-hooked, eat tiny meals, walk after dinner, limit beverages with meals to decrease overall volume at once in my stomach, and don't eat within a few hours of bedtime. Acid production typically increases overnight, so I get up and have Tums if my symptoms wake me up. I find driving makes it worse, even if I slightly recline the seat back; my innards just get too cramped in car seating. Standing and walking make it better. Walking helps digestion, so walking with an uncomfortable tummy actually feels better when you're done, even if it initially seems to make it worse. I was on Prilosec for a few years pre-Celiac diagnosis. I planned to wean off after diagnosis and a few months of gluten-free eaing, but quit cold turkey when it started raising my blood pressure. So I chose to avoid that now. My GI had recommended Tums for a previous bout of indigestion, so I used that as a first recourse for the current problem. Other things i tried for this current bout that were / weren't effective: - Probiotics; GI recommended Align (eyeroll ... it has dairy!) or Culturelle (it has inulin, which my body often doesn't like). i chose the Culturelle, and stayed with it for the 2 weeks prescribed. Had awful lower GI symptoms for the whole two weeks, so I switched to Florijan3 ... not much better. Tried a couple others briefly, then gave it up. When I quit probiotics, the lower GI got better, and I was back where I started, with upper GI symptoms. - Low acid, low FODMAP, low lectin foods: eating low lectin foods that were also low acid made the biggest impact for me, but then my dietary indiscretions (besides the McDonald's shake and increased dairy) had been mostly high lectin/ high acid foods. I spent a few weeks eating mainly rice, Earth balance margarine, a little soy milk or rice milk, airy (non heavy) nondairy gluten-free bakery bread, salmon, tuna, sweet potatoes, chicken. I stopped oatmeal, salads, and many veggies. I avoided nut products, except macadamia milk, unsweetened. I've lost most of my summer due to this illness, but 2.5 months later i am finally feeling good enough to start doing more, thanks to the above. Getting back to your original question, I have never tried slippery elm ... but what I've written above has helped tremendously. Hope something in here might help you.
  3. 3 points
    Getting pretty heated everyone. Deep breath . Don't forget we are here to help and support one another. You all make valid points that are from each person's experience and perspective. Wise people can decipher the difference and apply all your posts as needed. Hopefully my comment helps to mediate not further inflame the fire. Some are able to take digestive enzymes and that is great more food options for them. However those with several intolerance s or co morbid allergies with the celiac may not be able to take digestive enzymes. Manufacturing can add quite a bit of ingredients that may include ones who are not able to take them those binders, fillers, flow agents, anti caking etc are prevalent in supplement and processed food Industry. That's why gluten-free in DC reminded us all whole foods are best at the start. As for me I'm out on lots of things still. Gluten, corn, cow milk products are highly inflammatory to my body. The joint pain is just not worth it. I started on store bought almond and By golly they fortify that with corn. Ah and corn/corn derivatives are not required to labeled. One of the culprits holding me back in my healing process. So now I make my own almond milk. I use coconut for many of the desserts or my kids homemade waffles. It appears I developed a casein issue after my challenge. Everyone is working from their own experience /perspective and does not want another to experience additional pain or issues. Most of all let's not chase away the people who need us who may not be use to our heated debates to blow off steam. Now go have your favorite morning drink with or without cow milk.
  4. 3 points
    I thought it would be a interesting topic to bring up supplements and foods we take to deal with our issues. I am going to omit exact dosages on these as I had to adjust them according to my needs, less on some, more on others and on pretty much all of them break the dosage up and take it in 2-3 parts throughout the day to avoid the slumps. Also my diet is a low carb diet high in fats and proteins, I have multiple odd allergies and do not digest carbs well. NOTE this is just off the top of my head there will be constant edits as I recall others and perhaps notations on them. Neocell Beauty Infusion - Collagen, Biotin, Vitamin C, ALA, Hyaluronic Acid Braggs/Kal Nutritional Yeast - B vitamins niacin Liquid Health Stress & Energy - Various vitamins, mineral,s B- vitamins Liquid Health Neurological Support - Various vitamins, minerals, b -vitamins Doctors Best Magnesium Powder - Magnesium Jarrow Digestive Enzymes - Enzymes Jarrow IBS Support - a light Probiotic Jarrow BCAA - Help prevent muscle break down, take when needed and during the night Jarrow Joint Support Spicely Organics Cinnamon - circulation (and addicted to it) Aloe Vera Juice NOTE protein powders are used on a rotation and blended always to 1-2 servings Nutra Key V-Pro Protein Powder MRM Veggie Elite Omega Nutrition Pumpkin Protein Jarrow Hemp Protein Jarrow Rice Jarrow Optimal Blend MRM Meal Replacement (on the go in a shaker with a side of veggies and seeds/nuts) Growing Naturals Pea Protein - Use in cooking often as a thickening agent Almond Milk/cashew mil on rotation - Fats, Vitamin D, vitamin E, calcium Almonds/Almond Butter - fats Vitamin E Avocados Nutivia Coconut flour in at least 2 meals a day for fats/fiber Hershey Special Dark cocoa (only gluten-free one) Big Tree Farms Tru-Raw Cocoa Leafy Greens on Rotation for various vitamins kale/cabbage/collard greens/romaine Other Veggies on Rotation Broccoli/cauliflower/pumpkin puree/bell peppers/green beans/okra/brussel sprouts/onions Always eating tomatoes So Delicious Unsweetened Coconut Yogurt - fats and probiotics Egg Beaters/Egg whites every breakfast and in stirfrys made into noodles by cooking in thin sheets then cutting into strips Pacific Bone Broths Pacific vegetable Broths Kelp Noodles Nori GERBS Allergen Friendly Foods (seeds eaten on rotation) Flax Seeds Ground Flax Seeds Whole Pumpkin Seeds Whole Hemp Seeds Dried Figs Dried Dates Always drinking Republic of tea teas
  5. 2 points
    Have you tried making chicken or beef bone broth? Very good healing food for the stomach. Lot's of blogs online with instructions and even the process itself can be quite fun. Try treating these first 6 months on the diet as a special phase to kick start your body into healing. Keep a food diary and note symptoms and reactions. Once you've done some healing you may want to try reintroducing some foods to see if you can now tolerate them. There are lots of accounts on here from people who were in your position who have been able to add more foods once they've had sufficient time without gluten. Ennis can probably help with some substitute ingredients. You can search online as well ie: https://www.bbcgoodfood.com/search/recipes?query=#path=diet/dairy-free/diet/142/diet/143 some of those may work?
  6. 2 points
  7. 2 points
    So glad to hear that you know where you stand! I can not help you with the protein stuff for working out. I have never used the stuff even prior to my diagnosis. I am sure others will chime in. Yes. You can get "glutened" by kissing someon who ate gluten. Supportive significant others will wash their hands and brush their teeth before kissing you. I make my kid wash her hands when she returns from school or was at a friend's baking or whatever. It can take months to years, yes, years to recover. Remember, celiac disease is an autoimmune disorder that flares-up (antibodies increase) when exposed to gluten. Each person is different as to how long those flare-up lasts. It is not about how long gluten is in the body. Tingling? Neurological symptoms can take the longest, but they can resolve! Get check for vitamin deficiencies as many of us were deficient at the time we were diagnosed. Eating out has a greater risk of cross contamination. Best to avoid it until you feel better. Stick to Whole Foods and indulge in processed foods sparingly. You might heal faster. Wish I heeded that advice!
  8. 2 points
    You will be fine. Karen is right, it can take time, lots of time for antibodies to come down. So, do not beat yourself up, if they are still not "normal". 😊
  9. 2 points
    Tessa is correct, you have a positive biopsy and positive blood test. Welcome to the club you never wanted to join. Do check out the Newbie 101 thread at the top of the Coping section as it has a lot of important info. Ask any questions you need to and expect that you may have some ups and downs while you are getting the hang of the gluten free lifestyle. We are here to help in any way we can.
  10. 2 points
    Hi Cristiana, I was on it daily for a month. During that time I learned about acid rebound and was scared to experience it. So when my month was over, I started tapering. I didn't experience any issues coming off. I do hope you start feeling better. Maybe it would be good to stay on a very mild diet for a bit. I have lived on chicken, boiled potatoes, rice, bananas and berries for periods of time when I needed to. I'm not suggesting that you need to go that far, but maybe your body needs some foods that are gentle to your system for now. Feel better!
  11. 2 points
    Hi, Cristiana, Sorry, I don't remember exactly how long I was taking the PPI, omeprazole. I believe it was less than a month. It just made things worse. I wouldn't recommend it. I'm not a doctor and everybody is different, so you'll have to decide what is right for you. What I did do was to go on a low histamine diet. I found these sites very helpful. http://www.thepatientceliac.com/tag/mast-cell-activation-syndrome/ https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ Be aware that long term diarrhea can lead to malnutrition since nutrients don't stay in one's system long enough to be absorbed. People with Celiac Disease are often deficient in the fat soluble vitamins A, D, E, and K, and in the eight B vitamins, plus minerals like calcium, magnesium, zinc and other trace minerals. Get checked for vitamin deficiencies if possible. And drink lots of water so you don't get dehydrated. Try the low histamine diet for a few weeks, and see if that helps. After you heal, you'll be able to add some foods back. Keep a food journal to help pinpoint problematic foods. Hope this helps! K 😺
  12. 2 points
    After a ton of job interviews, I got a great job offer this morning! Will be working full time at a public elementary school! Perfect job, lovely principal, very supportive sounding. Job starts in late august so only a bit more of working pt. Not that I don't love what I'm doing now- I'm a support professional helping a woman with disabilities- but the pay is putrid. Not nearly enough to live on! Hooray!
  13. 2 points
    As Tessa says, you run the risk of a false negative. Most doctors will insist you do a full challenge to ensure an accurate result. It could be worth it however as you're struggling to stay 'honest' on the diet at the moment. A diagnosis may help you with that? This is besides the other benefits, certainty, easier to get follow up checks on nutrient deficiencies, easier to get close family members to check their own health etc. If you test negative at the end you can still go gluten free. Not everyone with a gluten problem will test positive for celiac, I didn't, but the consultant told me to go gluten free based on the symptoms he observed during my challenge. If you choose to pursue a diagnosis you will get plenty of support here.
  14. 2 points
    Hydrolyzed Soy Protein is Soy Protein not wheat protein There is a form of soy sauce called Tamari Soy sauce which is derived from just soy and not wheat commonly being gluten free. Other options for soy sauce exist, I personally can not have soy but have found the perfect replacement in Coconut Aminos has a almost identical taste and can be subbed in all recipes exactly as soy sauce is. Coconut secret makes this product and it is completely gluten free, they also make great garlic sauce and a tarayaki sauce, along with some great Ungranola (granola made without oats and gluten free) and some good chocolate bars. Feel free to check out there site and get a mixed order in. I personally have a whole sale account with them and get in co-opted bulk orders with some others a few times a year.
  15. 2 points
    Yes, the fullness of the Eucharist is found in the wine alone. However, glutenfreewatchdog did an article on the low gluten hosts today. She tested a single host from the Benedictine sisters and found it to contain 0.0017 mg of gluten. Compare that to the 0.57mg found in a piece of gluten free bread. The amount of gluten you are exposed to is negligible if you take a low gluten host
  16. 2 points
    This may seem like a lame idea but I think sometimes visuals can really bring home a point like nothing else can. To help them both understand just how little it takes to make you sick as a dog, how about a visual demonstration? How about getting a measuring cup full of sand & asking them if they think that would be roughly a million grains of sand. Then have a pair of tweezers & remove 20 grains. Then tell them that 20 grains of sand (gluten) will make you sick for weeks.
  17. 2 points
    I think that is a bit of an over reaction. Lactaid just gives you the enzyme you aren't making enough of. I don't think lactose is "poisoning" anyone. Dairy free cheeses are fine if you need them, but they are not much like real cheese. Many of them contain a lot of odd, maybe not great, ingredients.
  18. 2 points
    Vaseline Intensive Care (white bottle) is gluten free. You can use coconut or olive oil. What about just some Neosporin (antibiotic ointment)? That might help the infected areas.
  19. 2 points
    Vegan protein powders are used daily by most vegans for protein supplementation. Pea and pumpkin are high in iron, magnesium, and zinc. Blends works best like Nutra Key-V pro, MRM Veggie Elite, and Jarrow Plant protein blends. http://beyondmeat.com/products ^ Meat alternative using Pea Protein, I love the beefy crumbles as they have the texture and flavor of ground beef. Low carb and good for ketogenic diets. MUCH easier to digest then actual beef while having the same amount of protein and less fat. Also most of their products are soy free. Jackfruit as mentioned is good, 2 brands I would suggest sticking to with various textures. Try Uptons, it has a tougher texture and comes preseasoned, giving it a rough chop and cooking improves both. Naked Jack Fruit company has a unsalted plain soft version in bulk 30oz bags. I buy these for under $10 each on lucky vitamin. Chop them up, and mix in a sauce like BBQ, enchilada, barbacoa, etc. and then portion into 1qt freezer bags for later use. Then I have seasoned meat like product with the texture of slow roasted pulled pork. Loved coating some in coconut secret teriyaki sauce, stuff gets thrown into stir fry often. Even have a bunch in a red pepper marinara sauce I throw over noodles sometimes. If you chop it into BBQ sauce.....OMG identical to a pulled pork dish, I serve it to my meat loving friends and family and none notice. I am a book of food knowledge and a mad scientist in the kitchen lol. I am great at creating dishes to meet all kinds of dietary needs and helps me with side chef jobs.
  20. 2 points
    Winda, Here's an article that might help explain how glyphosates effects the body and may trigger Celiac Disease. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945755/ I was recently exposed to glyphosates (thanks to the lawn service spraying) and have had an outbreak of DH all over my body within days. Taking niacinamide helps mine go away faster. Some have found good results with niacin containing creams. You might just be having an irritation reaction to the weed killer. However, PCOS is one of the over three hundred symptoms or coexisting conditions that happens with celiac disease. Perhaps the Roundup exposure kicked your immune system into high gear. Best to get it checked out by a doctor, like ravenwoodglass suggested. Hope this helps. (Thanks, Victoria!)
  21. 2 points
    Another thing to investigate is SIBO (small intestine bacterial overgrowth). It can cause all of these symptoms. There is a breath test to check for it which any GI doctor should know about, although you have a better chance of knowledge at a teaching hospital. There's a lot of new research in this area. Here is more information: http://www.siboinfo.com/overview.html The current thought is that many IBS cases are actually SIBO. The treatment requires antibiotics (standard or herbal, both work) and dietary adjustments to reduce fermentable carbs so as not to feed the bacteria. If it is very advanced, it can take multiple courses of treatment and for some people it seems to be chronic. There is always an underlying cause. Food sensitivities and malfunctioning migrating motor complex are the two big ones. Also structural problems with the intestines that slow motility is another. There is a high prevelance of SIBO in gluten intolerance. My theory is that it is the neuro toxicity of gluten in susceptible individuals that slows gut transit and sets up a perfect condition for bacterial overgrowth. But I'm not a doctor I just have a daughter with chronic SIBO and gluten intolerance that manifests itself in neurological symptoms. You might want to look into it. The above website is a treasure trove of information.
  22. 2 points
    I get ophthalmic migraines, too. My vision will "grey out" until I can't see anything but a dot of vision in the center of my field of vision. Sort of like looking through a long narrow tube. Very odd. It happens after staring at computer screens or tablets and even the digital tv and my smart phone. My ophthalmologist said the optic nerve registers those flashes as the screens update, over exciting the nerve until it shuts down. I have to limit my time looking at electronics. Vitamin A and D are both fat soluble vitamins which Celiacs may be deficient in. Hope this helps.
  23. 2 points
    Megan- I am not Catholic but I owe my gluten awareness to whoever was the Pope in 2004. There was a BIG piece in the national nooze media about some Roman Catholic girl in NJ who had celiac. Her parents were told by her priest and bishop that she should take the communion wafer anyway, and the parents appealed for Papal Dispensation not to take it because of the allergy. The Pope responded, and said the wafer transmogrifies and becomes the body of Christ, so there is no wheat once she take communion. That's a foundation of the Church and no, she can't get dispensation from that. (Episcopalians apparently have a rice cracker as an alternative.) I happened to hear that news on a weekend when all I had had was Melba toast and I said to myself "DING! WHEAT! CELIAC!" and if the Pope hadn't been such an inflexible man...it wouldn't have been nooze and I wouldn't have made the connection. I understand the current Pope is much more reasonable, and would urge you to literally apply for Papal Dispensation. He's the only one who can grant it to you. Otherwise, if you are following a religion that insists you commit regular medical harm to your own body, you may have to rethink exactly which organized religion does or doesn't work with your choice of Gods. Take it to the top man. I think this one will be clever enough to find a solution for you. Lyfan
  24. 2 points
    This looks good: https://www.vegansociety.com/whats-new/blog/gluten-free-vegan-living https://www.vegansociety.com/resources/recipes/gluten-free
  25. 2 points
    HUGE thing to consider on a vegan diet is Nutritional Yeast like KAL the profile of nutrients from it GREAT and gluten-free I suggest using it for anyone, I use it for making cheese sauces, seasonings, and just generally consume 3-4tbsp of it with each meal. They have it here and you can order it on amazon but here you can zoom in on the pictures and have a look at the profile for it. https://www.luckyvitamin.com/p-1756-kal-nutritional-yeast-flakes-22-oz
  26. 2 points
    There was a thread on here some time ago from someone struggling to be gluten free on a vegan diet that got some good responses from vegan celiacs. Maybe worth a search, this forum has had so many members over the years who have been through similar.
  27. 2 points
    You are reacting to gluten. stop eating gluten, period. You could and possibly might feel even worse, besides itching and dizziness, on a glutinous diet. You are damaging your body.
  28. 2 points
    You really need to stop eating gluten. I don't think there's anything else to be said. You need to change your mindset, act as if you'd received a positive celiac test and live accordingly.
  29. 2 points
    This is a bit of a information about me/explanation to the forum about one of my non celiac issues. Also a bit of an apology, to anyone I might offend or annoy. I also have a form of Autism called Asperger Syndrome, and sometimes if not all the time I act a bit odd, respond in unique ways, or show a odd interest in things. I also tend to put odd perspectives, become a bit obsessed, and overlay misconceptions etc. Best way to describe my issue is if you have seen Big Bang Theory the American TV show. I am Sheldon, his character shows all the main characteristics of Asperger Syndrome but a bit exaggerated. Feel free to do research on it if you wish. This is just a bit of a explanation/PSA about quirks that might appear from me in ways I respond and interact with others. What brought this up is I recently was made aware that I unknowingly offended some people IRL in a group, and we had to sit down and go over this issue. You have to be BLUNT with me about my issues I do not notice them, and many times what seems completely normal from my perspective of interaction is not by most standards, I also do not pick up on ques and hints much, and take many things at face value and assume a lot. Just pull me aside and PM me if this happens here. Just thought I would come about about this part of it
  30. 2 points
    No Victoria1234 this is NOT just a celiac board. This is a 'celiac and gluten free diet support board'. I am attempting to get some support. If you are not interested in giving me any, please keep your comments to yourself. You dont know me or anything about me, and if you think I am a sinner, than obviously you have more issues than celiac disease.
  31. 2 points
    You don't mention which medications you are on but several medications come in other forms besides pills: There are sublingual strips, pills and liquids, injectables, and transdermal skin patches. All of these have their pluses and minuses but they would get around the issue of malabsorption due to a celiac flare. You might talk to your GP/psychiatrist at your next appointment about these options?
  32. 2 points
    This sounds really weird, but have you tried giving him vitamin B12? The reason I ask is because you mentioned that he has a strong habit of touching his mouth. My son had a strong habit of touching his eyelids. Not all the time, only during times when he might be perceived as being in deep thought or very focused on something. This was his only lingering symptom after going gluten free. The neurologist diagnosed it as a "stereotypy". Despite not testing positive for vitamin b deficiency I decided to give him a high dose of B12. After 2-3 days the stereotypy disappeared and only comes back mildly when he is accidentally glutened. Sounds strange, but I almost wonder if your son might be experiencing something similar.
  33. 2 points
    Common sense (all I can use since I am not a doctor) tells me that it is not a false positive. Do some googling this weekend. He had two positives. I can tell you that I only had one positive, yet had intestinal damage. What led you to get him tested?
  34. 2 points
    I am just going to be blunt - you have decided that gluten-free isn't as yummy as gluten. gluten-free soy sauce in a dish is no different than regular soy sauce. In fact, finer restaurants use the gluten-free tamari over the cheap soy stuff. Bread crumbs on your tuna casserole are not any different. Yes, bread is different, but that wasn't what you chose to cite. So... making stuff that is naturally gluten-free might be the thing to do for a while - until you can give gluten-free subs a fair try. Steak, baked potato with sour cream, butter, cheese, asparagus - that's gluten-free. It was gluten-free when you ate it 2 years ago and liked it. I am making tacos for everyone - it's gluten free today .... it's always gluten-free.
  35. 2 points
    I just wanted to chime in and say I hope your daughter gets to feeling better soon. I know how overwhelming it can be as a parent to navigate the celiac world for our little ones. My daughter was diagnosed at 4 (almost 7 now) and was very sick with a lot of damage. It takes a while, but you will soon get used to bringing her food where ever you go. I keep frozen cupcakes (chocolate is the best) on hand for any time she has an occasion that others are having treats. I found nutella makes an easy, quick icing too (without needing to open an entire can of frosting). Good luck!
  36. 2 points
    Avoiding processed food is not necessary for everyone. Many people can tolerate small amounts like bread in the beginning. There is no proof that total avoidance of these products leads to faster healing. I was in my mid-40's when diagnosed and did not abstain from all processed foods. I needed to gain weight badly so ate gluten-free bread (toast) in the beginning and did just fine. It is really difficult for kids to eat whole foods only, unless they have to. It will become obvious fairly quickly if they are having trouble with them. Many will also resent the diet if they are forced to eat no mainstream carbs. I am not saying to eat chocolate cupcakes on the second day but gluten-free bread and some cereals should be just fine. Kids are kids...they will heal faster than we adults do anyway so parents should not feel guilty about giving their kids some gluten-free toast in the morning or making them a sandwich for lunch.
  37. 2 points
    Tax Deductions for Celiac Disease Certain expenses for being on a gluten-free diet can be paid for through a Health Savings Account (HSA) or Flexible Spending Account (FSA), or can be itemized on a Form 1040, Schedule A for your taxes. Some expenses include the difference between gluten-free foods and the same product that is not labeled as gluten-free (ex: quinoa, oats, nuts, etc), mileage to and from doctor's appointments, and full cost of postage for gluten-free foods. The Celiac Disease Foundation has some guidelines and a step by step guide: https://celiac.org/celiac-disease/resources/government-benefits/tax-deductions-for-celiac-disease/.
  38. 2 points
    I experienced the same thing as your teenage daughter... or something very similar. I'm still trying to figure out the depression and anxiety, but it has gotten better since I've been off gluten. It is so hard to be different as a teenager, even as an adult! It might take a while but time will heal all. It also helps to take a trip to Costco, they have so many gluten-free foods that are yummy, and you don't have to look very hard for them. Also, it's helped for me to have people around me recognize that having celiac disease kind of sucks. Instead of trying to say that gluten doesn't taste all that good anyways, it helped to have people support me. There was a time when I was very angry though. I can say that in the year that I've been diagnosed, and gluten-free I feel so much better... and it's definitely worth it.
  39. 1 point
    9 years ago I was over 200lbs, health started going down hill in college and dropped to under 125 3 years ago. Gaining weight again and now it is muscle. I found I had to add in KAL nutritional yeast to my meals at least 2-6tbsp a meal for the stuff I was not getting due to food intolerance and removing processed foods. Stuff really does help quite a bit. I also take liquid health supplements like the Stress & Energy. The binge eats I STILL get years later, find myself just fixing a extra glass of protein shake and a nut flour and egg white bread when I am still hungry or mindlessly munching on almonds and seeds. Heck today was 7 egg white spinach omelette with nutritional yeast in it, 4 cups of homemade almond butter/almond milk sugar free icrecream with 3 scoops of protein powder, and then I had 3 pieces of coconut toast, a few hand fulls of pumpkin seeds, and then kept munching on a snack mix I made of hemp seeds and cocoa nibs. >.< I am gaining weight slowly again and up to 130lbs for a 5'11" male >.> I think my hunger might stem from working out alot recently. Bit of a list here from stuff I take and others https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ PS if you new to this diet check out the 101 thread will help you out alot avoiding CC https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ I would help you out with foods but the EU/UK area I am not that familar with and sourcing I am sure some of our other members can help you out.
  40. 1 point
    I was thinking of trying it like 1tbsp maple syrup and upping the egg whites by 10-20g Should make a giant 9"pancake basically with maple flavoring. Not tried it yet but it should work. I was thinking making that version for giant pancake (to thin to pour into smaller ones) that you cook low and slow and can perhaps even use for a breakfast pizza crust with a fruit topping and a creamcheese like spread or just as a pancake, or cut it into sticks for dipping. Should freeze well for toaster reheating later.
  41. 1 point
    Why not? These functions are not just about the food or the beer. You might be surprised to find they will be able to get you gluten-free food at a company party. Go to the BBQ and bring your own food or a dish to share that you can make into a meal or eat first. Microbreweries usually have wine or at least a coke. If you live in a bigger city or on one of the coasts or Colorado - there seems to be a good understanding of gluten free. I am finding that here in the midwest, more and more places and people understand gluten-free and Celiac
  42. 1 point
    Hi all I'm very grateful for your input, JMG. Thank you too Knitty Kitty. I'm willing to try anything not to get stuck on this stuff. It's not the first time I've taken it and it wasn't a picnic then. Back in 2013 I took some ibuprofen for bad earrache. Then I got what I imagine was acute gastritis - I was never told if it was that, but the doc stuck me on opremazole in response. I think a month's dose? Well, it helped take the pain away initially but then the D. started in earnest. After a month of D. and a couple of weeks of stomach pain preceding that I'd fulfilled the criteria of 6 weeks changed bowel habits and under NHS recommendations was entitled to the celiac blood test. Lo and behold I had raging antibodies. I think I must have come off the opremazole around that time thinking that the problem must be gluten, not opremazole, and thinking the D must be to do with gluten. I had an endoscopy and was diagnosed by the April. I had reached the penultimate damage grade on the Marsh Scale. I can't recall is if the diarrhea ceased following coming off the opremazole, or because I came off gluten. Or even when I stopped dairy for a while. I wish I'd kept a diary! I have diarrhea again today - I had a fairly fatty diet yesterday so the next thing I need to look into is is this normal with opremazole, to not be able to eat fat.... Anyway, I don't want to end up on this stuff (apparently half our town is taking it, according to our local nutritionalist) so I'll look at the sites you've posted too, KK. I'm so bad at this uncertainty. Underlying it all I worry that I have something really bad. Uggh.... I hate how I have become a hypochondriac through all this. Thank you my friends for your help, it means a great deal as my family have enough to put up without hearing me going on about my ailments!
  43. 1 point
    Hi. Hope you're feeling better. When I had Gerd, I found it helpful to lay on my left side after eating. Laying on the left side straightens out the esophagus and the stomach, allowing for burps to escape more easily. Eating smaller, more frequent, bland meals helps, too. Icelandgirl's crock pot chicken suggestion is a good one. Throw in a carrot and some dill for healing chicken soup. I hope you won't have to depend on the PPI very long. They just made me feel worse in the long run. Here's an article that discusses how use of some medications might cause further damage. https://www.celiac.com/articles/24743/1/What-Causes-Villus-Atrophy-in-Symptomatic-Celiac-Patients-on-a-Gluten-free-Diet/Page1.html And one more of helpful information. http://b12patch.com/blog/8-ailments-linked-with-gastritis-including-b12-deficiency/ Hope this helps.
  44. 1 point
    Hi cristiana, My ulcer was sometime after going gluten-free. It was more a constant pain in a definite area, not spread out or diffuse. I wouldn't call it mild pain myself, but it wasn't so bad I couldn't function with aspirin and wine to get to sleep. Aspirin fairly often though and that in itself is not good for your stomach. Your throat feeling sore sounds more like a GERD type reflux issue to me. I'm not an expert or something, but that seems more likely IMHO. You have to be careful of PPI's as people get dependent on them to control symptoms. They aren't really a good thing to take long term from what I've read.
  45. 1 point
    But yes POTS can make you feel terrible!!! It's not just when you change positions, it's that your brain isn't sending the right signals to your heart(nervous system) at the right time so you aren't getting adequate blood supply to various parts of your body. If you are nauseated and have a hard time eating your stomach may not be getting the blood it needs and that is called gastro paresis which is very common in POTS. That's part of what made me so sick. He determined I had it severely by having meat under an x-ray scanner for 4 hours. So it doesn't just affect your blood pressure and heart rate!!!! But the increased heart rate on standing is a great sign they look for when diagnosing POTS. Every part of my body has been severely impacted by POTS and I know many many people aren't getting this diagnosed. I'm so so sorry for you having to go through this but hang in there!!!!! It took 3 trips to the ER and countless Drs and no one had a clue. I felt like they were just sending me home to die 😢 I go to the HeartBeat clinic in Dallas but I know that link I posted has a list of POTS docs as well.
  46. 1 point
    Hi and welcome to the forum! I'd drop the almonds if you think they might be a problem for you. We can have temporary food intolerances that go away after some months/years healing. I'd also stop the celery as it is a considered a top 14 major allergen in Europe. I can't do celery or carrots myself. If you stay off it for a month and then try it again that usually is a good test. You could try broccoli or brussels sprouts instead. They have lots of good nutrition on them. And eat lots of meat! Your body needs good protein to heal and replace damaged tissue. Yes, it's possible to have multiple periods of poor digestion during the recovery process. And even some periods of good digestion at times. It can be a slow process to recover from celiac disease damage. 18 months or more is not unlikely. That doesn't mean you won't be trending upward during that time. I like SO Delicious brand coconut yogurt. Maybe it would help you. And also Me + My Gluten Assist from CVS. It's digestive enzyme that may help.
  47. 1 point
    mnburis, I'm concerned about your symptoms, especially the diarrhea being so frequent. I experienced pellagra after prolonged diarrhea. The symptoms are diarrhea, dermatitis, dementia and death. Pellagra is a deficiency of niacin (B 3). With your vitamin D and B 12 already diagnosed as low, you're very likely to be low in all the other vitamins and minerals as well. The eight B vitamins are water soluble and need to be replenished every day. The B vitamins all work together. All should be supplemented if one is low. Large doses of B 12 by itself can cause folate deficiency anemia if you're low in folate (B 9) already. Ask your doctor about other vitamin deficiencies. The easy ones to test for are D and B12. Tell your doctor how severe your diarrhea is. Ask about pellagra. Here's some more information. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html https://www.dermnetnz.org/topics/pellagra/ I really hope this helps.
  48. 1 point
    https://www.amazon.com/Vintage-Tradition-Almost-Unscented-Grass-Fed/dp/B00HZ48XR6/ref=sr_1_1_a_it?ie=UTF8&qid=1498673754&sr=8-1&keywords=vintage+traditions+tallow+balm I use Vintage Traditions tallow balm, comes in lots of nice scents, and unscented, too. Some smell like aftershave, others are more delicate. Can't really detect that "beefy" tang. Really works wonders on my calluses, on feet and hands, and soothes the itching of DH. Hope you'll try it. 😸Moo moo.. . . . . Side effects.. . . ..lol very good!
  49. 1 point
    This is my 11 yo daughter's reaction to eating gluten. I can't confirm she has celiac because she gets so crazy trying to feed it to her long enough to get the testing done and is physiciallt miserable. Other reactions are inconsistent (stomach upset, rash). But she always flips out. It's like she's a different person. The only thing we can think to do is continually discuss it when she's not glutened and overall strengthen her coping skills so she can pull from that when fed gluten.
  50. 1 point
    Hey InducedJoy! I completely understand what you're going through. 20yo F and my two celiac family members are the only celiacs I know in real life (but one family member lives an hour away and the other doesn't get symptoms so she doesn't take it seriously, while I am super sensitive). It's been almost a year since my celiac diagnosis and I've been gluten free/dairy free ever since, but still getting sick. Missing class because of symptoms is such a pain, not to mention having to miss social events too. Don't even get me started on dating! If you need someone to talk to, feel free to message me! Good luck with everything!