• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Jojes

  • Rank
    New Community Member
  1. Sucessful Pregnancy With Cd

    Connie Congratulations on your new arrival. I just wondered if you received progesterone injections or other support during your pregnancy? Jojes
  2. Debmidge Thank you for your suggestion about doctors here but I am Irish and plan to see a Coeliac specialist in Ireland in June. I was diagnosed based on a biopsy as the relevent blood tests are not available here. According to the biopsy there was damage to my villi but not apprently extensive - perhaps the sampling area wasn't representative of the extent of my disease. I am 33 years old and have IBS (supposedly) for at least 7 years. celiac disease only started to really interfere with my life last October and it has dominated it since unfortunately. Perhaps 2 babies in 19 months was more than my system could handle. Your husband is very fortunate that you are taking such an interest in his condition. I really hope that time does offer some respite. Take Care Jojes
  3. I must admit that I feel very disheartened at the thought of such a restricted diet for the rest of my life. Gluten-free I can handle (I think!) but the rest of the intolerances don't leave anything tasty to eat; living on rice cakes, chicken, bananas, nothing to get excited about, but still not better. Does anyone know of a scientific reason why withdrawing from gluten just isn't enough for some people - is it damage to the gut that doesn't repair? Having responded very well to a gluten-free diet initially I can't believe that I'm not doing well since my gluten accident almost 6 weeks ago. Why would I respond so well intially but then end up paying longterm for one teeny weeny mistake?! As I live in Manila I have no access to medical professionals with Coeliac knowledge and the only other Coeliac I know had his diarrhea disappear over night after going gluten-free (he's 10 years older than me too!). To top it all off, I think I'm putting on weight but still have diarrhea several times a day. Anyone have any answers out there? Jojes
  4. Well thank you all very much for your input. I'm on the blandest of blandest of diets now - no lettuce, no soy, no OJ, no tomatoes, no coffee, no choc. Just rice, chicken, rice, fish, rice, rice - Dr Atkins must be rolling in his grave! Before Christmas i'd hardly had as much as a full bowl of the stuff in years! Today I noticed that my tummy started to rumble after a few brown rice chips and a couple of brown rice cakes, so I'm really coming to the conclusion that fibre is a problem which ties in with what most of you are saying. Sorry to hear you're not doing well warpspeed, but haven't got any good advice for you. Will let y'all know if there's any improvement over the next few days; feeling more positive than in weeks so something must be working, even if it's not my gut! Jojes
  5. Thanks Judy & Mariann for your input. I've been keeping a food diary and I end up just staring at it on a bad day and can't see any pattern. Will try eliminate tomatoes from today as well as OJ - what do you guys take your iron supplements with if not OJ? As I mentioned in an earlier post, I live in the Philippines which means access to gluten-free foods or information on regular foods which are gluten-free in the states but made in the Philippines is poor. Also no luck with digestive enzymes yet. Must run and nibble on a rice cake before kids arrive for playgroup and spread yummy muffin crumbs all over my carpet! Thanks again Jojes
  6. I was diagnosed at Christmas after biopsy and improved slowly on a gluten-free diet throughout January, although energy levels did not improve. Main symptom was chronic diarrhea. Had gluten accident (!) early February, diarrhea for a 6 days, then genuine gluten accident at the end of February. Despite being gluten-free since, I still have daily diarrhea of varying severity. Not as bad as straight after accident (and on a 3 seperate but not consecutive days had a formed stool much to my delight - talk about simple pleasures!) but still very bad by 'normal' peoples' standards. In the last week have felt energy levels increase and managed 3 days without an afternoon nap. This makes me think that gluten-free part of diet is working in repairing villi but it's not improving bowel symptoms. Over the past 4 weeks have also tried to eliminate dairy, coffee, chocolate, alcohol, eggs with no obvious impact. Although when had wine and dairy-free chocolate at the weekend, defintely had awful diarrhea the next day so it's teetotal for me for a while. The thing is I was able to tolerate all these other foods in January and now it seems there is very little I can tolerate. Anyone know why this might be? Is gut just gone hyper-sensitive to any food? Here's a list of what I eat: can't detect a culprit when I eliminate any for a few days: gluten-free Muesli, gluten-free Soya Milk or Rice Porridge, Florida Original OJ Bananas, Mangos Thai Kitchen Noodle Soup (gluten-free, Egg Free) Heinz Baked Beans Baked Potatoes, other cooked veggies Green Salad with Newman's Own Dressing GNC iron, Calc/Mag and Multivi supplements gatorade Chicken, fish, Steak Canned Tomatoes used for ratatouille or other ved dish Rice cakes, Peanut Butter or Soy Peanut Butter Nuts and seeds, raisins Peppermint Tea, Marks & Spencers Green Tea with Lemon Homemade Cottage Pie (all gluten-free ingredients as far as I know) As I said, could eat anything as long as gluten-free in January but now can't tolerate anything; anyone know a physiological reason for this? getting very fed up with limited diet and no apparent pay-off. Help! Jojes
  7. Judy How long does the diarrhea last after having dairy? A doctor I spoke to today (my husband in desperation got in touch with a different GI doc) was of the opinion that any gut reaction to dairy should be gone by 4 days. Is this because he doesn't understand celiac disease, do you think? During my last gluten accident recovery period, I did eat cheese for the first 3 days before I copped on , and diarrhea disappeared after another 3 days. Maybe I wasn't totally recovered (only a week later)when I had the gluten/ice cream incident; perhaps that explains current dire strait. Will stick it out at home with the gatorade and see how I feel tomorrow. Thank you for your input. It really is great to get support and not feel like I'm going out of my mind! Jo
  8. Mariann I am so grateful for your reply to my message; it sounds like I just have try keep hydrated while my system rebalances itself. Unfortunately my diet is very Western, although I haven't been a big bread or pasta eater for years, pre-diagnosis I loved oatmeal and had a daily bagel. I'm looking into ordering gluten-free foods from Australia; breakfast cereal and snacks are the things I miss most. I am planning on having my daughters (3 & 17 months) tested when we go to Ireland this summer. So far I haven't noticed any symptoms other than constipation in the older one - hopefully that's down to her reluctance to eat anything resembling a fruit or veg! I understand your concern over your children- hopefully their Filipino genes will dominate on this issue. Gosh - I can't wait to lose this foggy brain and get some energy back! Thank you so much again. I'm very grateful for your support. Jo
  9. I am Irish and living in Manila, Philippines. After years of IBS, I developed chronic diarrhea on a trip to Ireland in October. After a few months I eventually conceded that this wasn't normal and visted a GI specialist here in Manila. I mentioned my apparent intolerance to wheat and dairy and that my symptoms seemed to have been triggered by eating lots of bread, spelt and other yummy gluten-laden foods in Ireland. She agreed that I might have Coeliac Disease but that it was necessary to eliminate other intestinal disease which she did with a colonsocopy, small intestine series (with barium) and a CT scan. THe blood tests for celiac disease are not available here so I pushed for an endoscopy which indicated celiac disease, although it was not conclusive. The doctor was happy that the diarrhea (which had worsened to the stage of making me housebound, not to mention thin and weak) was a symptom of celiac disease and told me to go on a gluten-free diet and left it at that. I took antibiotics for giardia for 7 days which made feel even more wretched, just in case, but that didn't seem to help. After a few gluten-free weeks the diarrhea subsided to be replced by constipation and bloating and then what I would consider very rare for me - normal stool Yippee! I was still exhausted, probably due to nutritional deficiencies, but happy that things were improving. Started gluten-free Dec 23. On Feb 7, went to a black-tie ball and thought, 'what the hell I'll eat everything'. gluten-free is unheard of here so there was no point in even attempting to explain what I could eat. Within 2 hours if ingesting cheesey potatoes au gratin I was in the toilet - very sobering. It took 6 days for diarrhea to subside but it did, much to my relief and I felt almost 'normal'again although still exhausted. Finally went to Singapore, so had to eat out, on Feb 18 - avoided gluten as far as I know but ate ice cream. The next morning after gluten-free breakfast, diarrhea literally exploded into action and hasn't really improved since. Have been gluten-free again 12 days. Was inadvertently taking dairy from gluten-free bread mix but have not had dairy in 3 days. I'm really wondering if there is something else wrong with me or is to be expected that it would take this long for symptoms to subside. My GI doctor just tells me how dry my skin and hair are, and how thin I am without offering any real, constructive support. Am considering being admitted to hospital for rehydration and withdrawing all foods, to re-introduce them after a few days but don't really want to be seperated from my kids (older daughter is 3 tomorrow). Does it sound like celiac disease to have a recurrence to this extent after accidental ingestion of gluten or dairy, and if so how long can I expect diarrhea to last? All insights welcome as I'm very isolated (and now housebound again) over here! Jo