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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Sara_UK

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  1. From what I've read, it's only recently that much research into the role of IgG antibodies against food has been carried out. This doesn't mean that they aren't important. From what I understood (which could be totally wrong!), IgA antibodies are normally made to food in the gut, to stop the rest of your immune system responding to it - like masking it. I thought that the IgG antibodies were only made to food particles that get into your bloodstream - normally the food is digested into very small particles, small peptides etc, but where digestion is poor, or the gut is leaky, bigger bits (not chunks, like a whole pea!) can get through, the T cells mount a response and make antibodies against the particular antigen. If you have a leaky gut then I'd have thought it would not be too unexpected to have antibodies to a range of foods. If you are a normal healthy person, then there should be none, or very few. Anyway, I had the York test done - I came up positive for quite a few foods, I cut out the main ones, and felt tonnes better. I didn't know how much better until I started eating them again (mainly gluten, but everything gluteny also seems to contain milk, eggs etc!) to be tested for coeliacs. Try cutting it out and see. It was horrible at first, lots of cravings etc..but now I'm allowed to eat it again, I'm finding I really don;t wnat to..just don't fancy it - rather have rice and stir fry or something! Sara
  2. I think this is basically how the Elisa test works - (for food, or any other thing, such as HIV, that you may make antibodies against) They coat the inside of a little well in a plastic plate with the thing you are testing against (e.g. cheese, HIV virus), then they put your blood (whole, or seperated out into different parts, I'm not sure) in the well for a while. If you have antibodies which are specific to the thing you coated the well with, the antibodies will bind to the food. then you wash all the rest of the blood and bits away, so you are left with a bit of food with the antibody stuck to it. Antibodies have 2 main parts - the highly specific part which recognises one of thousands of diff antigens (e.g. a cheese antibody will have a diff specific part to a beef antibody). The other part is a common part. so all the different antibodies have this same common part. This is exploited in the next step - here they put another antibody (a secondary antibody) into the well - I don't know where this antibody comes from, mainly from rabbits I think - and on the end of this antibody is an enzyme. So they put this antibody in, this antibody recognises the common bit of the first antibody - so in any wells where you have an antibody from your blood binding, this secondary antibody will also stick. Then they put a chemical into the wells - if the enzyme is present (indicating also the presecnce of the 2 other antibodies) the enzyme carries out its reaction and normally causes a colour change in the liquid in the well. So, if you have antibodies against a certain food in a certain well, then that well will go for example pink, whilst all the other wells with things in that you don't react to, will not change colour. So then, I'm guessing a machine, will scan across all the different wells in the plate (up tp 96 wells) and look for the different colours. then there will be cut offs, so if something is really really pink, they'll give that a certain score and say you react highly to it, something less pink will have a lower score etc, meaning you react less to that. does that make sense, or has it just gone in circles? Sara
  3. I will be more careful..had been so good, not even cheated at all (apart from on holiday once, but that as just to test it out...honest) my cravings for things seem to have gone to be honest..everynow and then would love a big fat sandwich, or something covered in cheese..but then i can have lots of rice and meat! is getting a bit monotonous though..i dont even crave potatos anymore..which i can still eat and used to eat tonnes of them. brown rice is the way forward! need to have a bash at making some pastry though or something so I can make a pie. Sara
  4. Hello! I've been gluten, dairy and egg free now for a couple of months (I think) - tested some chocolate blamange on holiday, and know that dairy def gives me D now! So now I believe that. Was thinking about trying some bread, just to see if anything happened to me - but last night, for yesterday lunch, and night before, I'd done a stir fry with plum and hoi sin sauce (totally forgetting for the first time to read the ingredients!). all day yesterday my stomach was making horrific noises (am known for my loud tummy rumblings!), which I realised it'd not done for quite a while. then after eating last night i was just so bloated and in a bit of pain, and in a foul foul foul irritable mood! thought it was just me being a cow, and eating too much, then read the hoi sin sauce and found it had wheat flour in it! weird that some things seem to have cleared up that i didn't really notice as being a problem (loud stomach noises), until I get them again! so now I also believe that wheat gluteny stuff is def a problem! can't believe i felt like i did last night for ages before i did the blood test and just thought it was normal! hurrah! Sara
  5. Hi I also had about 15 come up with the York Test that I should avoid, and another 10 or so I should rotate. So far I'm cutting out the highest (wheat/gluten, egg and milk) - def feel a bit less bloated, and not had a migraine since I started (was getting them everyweek til I came off the pill and stopped with these foods..very inscientific, but think it's a combination of both as to why I've not had a migraine). Went on holiday last week and was fed up with everyone stuffing their face with dessert, so tried some choc blamanche on 2 nights, and had upset stomachs the following mornings, so I'm starting to believe it now! Don't want to give up garlic and ginger yet though..still making life worth living! kinda makes sense to me - I#m not a celiac, but the woman said it sounds like I have a leaky gut, so if that's true, then I guess you'd expect lots of foods to come up - if bigger bits of food are getting through into the blood and triggering release of specific IgG antibodies, then it makes sense that you have a lot. have now got some good probiotic tablets (keep forgetting to take them though!) not missing bread etc as much as I was when I first stopped eating it..so that must be a good thing! also thinks i may have a yeast overgrwoth, but think that at the moment is too much for me to deal with! Woulnd't have thought it was a quality control issue -as far as I've read york are supposed to be one of the best, and surely they'd think something was dodgy if every test in a batch came up with almost all positives? Sara
  6. The york test (which I had, in the UK), tests for intolerances (IgG antibodies), rather than classical allergies (IgE antibodies - though I think they do do an IgE test too? But I should think if you have a 'proper' allergy you'd already know?). My results came back with loads of things I should avoid - doing wheat, gluten, dairy and eggs so far. Hell. Been away at a conference all week, and hardly ate anything - was all lovely bread, and stuff covered in sauces..and sooo many cakes and things! and I had to have none of them at least I know i have some amount of will power. I too want to stuff myself with bread or milk, just to see if it does do anything, but i don't know how long to leave it til I try doing it! Sara
  7. Hi I only just saw this thread down at the bottom of the list! I'm new (though have beenr eading and posting a bit higher up the board), so I'll just recap Have had D, migraines, bloating, gas, acne etc for ages and bought the York IgG Elisa test a year or so ago, but only just got around to taking it. Apparantly I have higher than normal amounts of things that came up - scoring 1-4 (4 being highest it can be): Dairy (4) Wheat 2 Gluten/glidin 2 Corn 1 Egg white 2 Egg yolk 1 Molluscs mix (!) 1 carrot 1 Kiwi 1 Garlic 1 Ginger 1 sesame seed 1 Coffee 1 Yeast 1 and 15 that came up in the moderate reaction so I should rotate those I spoke to a nutritionist and she said to cut out dairy and gluten definitely, and eggs - which I have done for 3 or 4 weeks now (I hope! not used to all the things they can be found in yet). Another nutritionist said I should also cut out yeast, as that might be one of the main probs, even though it only came up as a 1..which I did for a while, then forgot and had a wine sauce..so leaving that one for now. They both mentioned that I might have a leaky gut (also nearly died from spontaneous peritionitis, so was on strong antibiotics after my op - not sure if I think that the bacteria got across through my leaky gut, or that the antibiotics caused some inbalance, which lead to the leaky gut), so I've got some good probiotics too (just got them yesterday) Anyway, enough of the rambling..now I'll read this whole new set of posts I've just discovered! Sara
  8. Hi I've been meaning to start a food diary since I got my IgG results back a few weeks ago, and never got round to it. I was just wondering what symptoms you put down, how often you assess yourself through the day etc, how you know if something is just normal, or may be due to food? I still feel a total fraud for even trying this (Had the IgG antibody test, and wheat/gluten and dairy came up really high, amongst about 10 other things - someone mentioned leaky gut?) - cos I don't have anything like what you lot have (thankfully). I'm 26 - if I did not do the gluten thing, is this something tht would just get worse (I have no probs with excluding gluten at the moment - apart from bread! Seem to have got over most of my cravings)? Like someone else posted, I just thought I was someone who just had lots of gas, random D, mildish depression, horrible migraines etc, and I'm having a hard time convincing myself that I'm not just making this gluten thing up in a hypochondriac kinda way! I know what the test results said etc, so I;m going to do it (so far cutting out wheat/gluten/dairy and eggs - was also doing yeast as that came up, then forgot and had beef in red wine - was the only thing on there anyway without any of the other things in them!). Seem to have eaten out a lot lately (unusually so!) and it's been driving me mad trying to find something I can have! So yeah, after all the rambling - what type of things should i put in my diary. Migraines, obvious. Do you gauge the softness of you poo?! random tummy pains? acne? how happy you feel (felt bizarrely happy last few days, putting it down to having my own music on in the lab where I work, quite loud as noone else is here!) Sorry for the ramble sara
  9. {sorry, don't mean to be a pain, but just so you know, the villi are little protrusions on the inside of the intestine into the lumen where the food passes through, these just increase the surface area through which absorption of digested food particles can be absorbed into the blood stream. I think with celiacs etc when these get attacked by an autoimmune response, you stop being able to absorb all the necessary things, so you get malnutrition and lose weight. Might be wrong though! Sara x
  10. Hi I had my IgG test done in the UK - I've got 14 with high reaction (and said to avoid, but can't do all of them at once straight away!), and 13 with a low reaction that I should rotate! More than average apparantly. Anyway, wheat and gluten/gliadin came up high with me, but barley and rye were in the 'no reaction' column - which was a bit odd. Wasn't til I called the test place (I had mine done at York Test) and had my free 30mins consultation, that the lady said that that is just how they print them, and that I should avoid Barely and Rye too (guess that brings me up to 16 high reactions!) - could your results just be a similar type of thing, being 'written wrongly'? Sara
  11. Hi GFP - thanks for that, and your other post in the other topic. I did read a few of his papers, including some Lancet ones last night - I'm afraid I'm not up on all the neurology terms, so wasn't sure what symptoms he was actually referring to, but it does seem to have proven link to neorological things. It's all so weird! I guess only because not many people have done research into this yet, and the other effects it can have. The test I had was for IgG antibodies, not IgE, so whatever it is, it's not a true 'classic' allergy. I spoke to the woman at the test place this morning (I had made the appointment earlier in the week), and she said it sounded like I have a leaky gut, as I have a higher than average number of foods coming up positive. She said it's unlikely to be anything like celiacs, as she said they have severe diahorrea pretty much all the time, and eating even a tiny bit of wheat can bring it on - I don't have an upset stomach all the time, just off and on for no reason (though this week I have def been a lot 'firmer' than I have before! almost bunged up!) So, she said I need to carry on cutting out the wheat, gluten, milk, eggs, and also to cut out yeast (this came up positive too), as I could have an overgrowth of yeast in my gut. Get a really good probiotic, and take L-glutamine. Think I feel better for talking to her, as she said it's not normal to feel like I do sometimes. I have to stay off my 4's (milk) for a year, and my 2's for 6 months, or until symptoms go, then introduce stuff slowly. So we'll see. I'm going to feel a fool though, when I'm out, having to say oh I can't have that blah blah blah. And I've just ordered a breadmaker, and now I can't have yeast! Found some random bread recipes that are ok, but they have weird things in, like lemonade! I'll spend the weekend experimenting. So is what I have something that could turn celiac eventually? Or is celiac a proper genetic disease, that if I had I'd really know about it? She said to only go to a GP if I have an open minded one - otherwise they may make me feel like I'm making it up and make me feel worse. I don't reallyhave a prpoer Dr, always seem to see different people each time! Anyway, should be writing a talk at the moment! my boss has been away for 2 weeks, back on monday - won't be impressed if I have nothing to show him! Have a good weekend incase I don't get back on. Sara (thanks for all your help and info1)
  12. Managed to get access to most of the ones I wanted - I'll look at his ref list. You've scared me now! I can sound vaguely intelligent when I know what I'm talking about, but otherwise I generally come across totally blonde and too chatty! Maybe I'll wait and see what the lady at the testing place says first! Sara
  13. hiya, I've not heard of that bread, but I'll look out for it next time I'm in the shop. Ordered a breadmaker with some gluten free setting or something the other day, so I'll give that a blast when I get it. Think I had some cravings the other day..really really wanted cake or bread, and was doing my head in that I couldn't have any, or any that I found I liked, and was in a totally foul mood all day! Sara
  14. Have just printed tonnes of papers out of his - thanks! Mainly on neurology (not my field at all! but I'll muddle through) - somewhere on one website it said he runs a weekly clinic..I'll read his stuff then try and think of something intelligent to say mail him about! Thanks Sara
  15. Oooh thanks for all the info! I'll get in touch with them, or just read his papers andpretend I'm interested in it from a scientific point of view! I can't put the cheese with the polenta, if I'm supposedly dairy intolerant too! never realised how much cheese I ate til I can't have it anymore..the worst thing, after bread! I did but some fake meltable cheese, but nearly made me sick! I shall get reading now before I go home! thanks Sara