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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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Gemini last won the day on May 12

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  1. But Barrett's is caused by acid reflux and acid reflux can be a direct result of...............undiagnosed Celiac Disease. Once again, they fail to trace back to the most probable root cause.
  2. That is not completely true, Ennis, and it all depends on what kind of cooking they are doing. I would never eat from a shared bakery because baking is different than cooking and they use flour in just about everything in the shop. Flour could literally be everywhere. However, in a restaurant where they cook main meals, the use of flour is limited and usually is used in gravies or some small part of the meal.....not quite the same as a bakery. Flour would not be everywhere, unless they had a flour fight in the kitchen. There are many, many restaurants that do gluten free correctly and it doesn't have to be treated like a biohazard.......that is a bit of a stretch. It would be more important to know how clean the kitchen is overall and that will tell you if they have good practices in place to prevent cc. It has been said that if the restroom is clean, then the kitchen most likely would be also. That coming from someone who did inspections for a living so knew what they were talking about. Most good restaurants do not want to gluten their paying guests because that is very bad for business. In talking to many, many restaurant owners over the years, I have found that the OP's complaint happens very often. Many people who claim to have Celiac make a big deal about the meal and then ask for the bread. And...they eat the gluten bread like it's not a problem. I can't tell you how many times I have heard this from waitstaff. So, thank you to the OP for taking the time to ask questions here.....it is much appreciated!
  3. Try this for pasta.........http://www.quattrobimbi.com. I use them to buy my Le Veneziane pasta. They are limited for products but have the best gluten-free pasta around!
  4. If you have continuous coverage with an employer, you would be charged the group rate and were not penalized for preexisting conditions. If you lose your job and were forced to apply through the government site, you WERE PENALIZED. You could be charged up to 3 times the amount of a young, healthy person and the bill that keeps dying in the Senate right now (thankfully) was going to penalize you by age (50-64), up to 5 times the amount of a young, healthy person. With insurance companies involved, that's what you are going to get. Both plans were not good for Americans. Cyclinglady's comments are correct. It is stupid because everyone has a preexisting condition these days. How about insurance that people can actually use? I am just sitting back and waiting for it to all implode. The they will be forced to figure it out or docs won't get paid. That won't last long......
  5. Yes, I would definitely say you have "in your face" Sjogren's symptoms! My eyes are the worst but not everyday. When exposed to outside molds during allergy season, they become very red and somewhat irritated. I use OTC moisture drops and Rx Restasis.....which you may want to give a try because it has helped me quite a bit. The problem will always be there but you can mitigate symptoms by hydrating the eyes often with drops and trying Restasis. It doesn't help everyone but I always say to give it a whirl because you never know. When you have Sjogren's and have very dry eyes, you cannot wash away allergens that end up in your eyes on bad allergy days. You have to do it manually, with drops. Allergens are the worst triggers for it. I went on vacation to England in May and had the pleasure of the "change of environment" improvement. Their vegetation and mold are different strains than in North America so I was not reacting to them. My eyes felt great and they were not red in any way. I had forgotten what that was like. It was also humid and that helped to moisturize my eyes without the reaction to mold. At home, entirely different story. We have had a fair amount of rain here this year, which makes everything look beautiful and lush. But my eyes are not liking the mold. Sometimes I feel I cannot win, ever. But I stay inside air conditioned home and work on the bad days. People wonder why I love winter so much........
  6. Way to go! Working with the kiddies........that could be very fun. I hope it all works out and is a perfect fit!
  7. Yup....that's another whole issue that I hope will not explode on us. It's a problem until you reach the age of 65, when you can go on Medicare. They seem to not penalize people so much with that because you are older anyway and will have some age related stuff going on. As much as I don't want single payer, insurance companies hold everyone with preexisting conditions hostage. Even Obama Care charged people more for preexisting conditions because insurance won't have it any other way. I am not sure we can continue with the insurance based system. You can certainly obtain insurance but you might have to sell one of your children to pay the premiums......
  8. Thank you, and I am glad there are others who feel the same way I do. It could be that we both have been doing this for so long, it is normal for us. It definitely becomes so much easier the longer you are gluten-free. I also was so grateful to be validated, after having docs telling me for years that it was all in my head. I was grateful that I didn't have to suffer through horrible treatments or have surgery. My perspective was different, I guess. I think liking to cook made a huge difference also and my brain was geared to thinking how I could make my favorite recipes gluten free and good tasting. I love to be challenged. The only downside is that travel requires more prep and planning but I still have traveled internationally 5 times since diagnosis and was glutened only twice, which did not ruin the trip. It may have slowed me down for 3 days but it didn't stop me. That was in the beginning and it has not happened in the last 3 trips. I am not trying to disparage the hard time some people have when they are first diagnosed but once the initial shock is over, life will go on and you can be very happy with the diet and new way of doing things. The product range has exploded since I was diagnosed so there is no need to feel deprived anymore.
  9. Something I keep hearing and do not quite understand is why people think this diet is so hard and demanding. I never found it to be at all. I think it is very inconvenient, at times, especially when there is a social function because you may have to bring your own food. But that does not isolate you in any way. You bring your food and eat with everyone, as usual. If you are a person who ate a pretty healthy diet to begin with, then you won't have a problem eating gluten free. Meaning, those who eat a whole foods based diet with some junk food thrown in.....because everyone needs a cupcake now and again. But if you relied on eating out as much as people do in today's world and ate a lot of fast foods, or do not like to cook, there is going to be a huge adjustment for you. In the end, the adjustment will be good because you are going to be a lot healthier for it. As far as CC is concerned, you learn that like you do the diet and after some time, it becomes second nature. It's automatic for me, at this point. I just hate to hear the somewhat negative comments because that sets the tone for many who are new to Celiac Disease. Attitude is about 80% of the success you will have with it.
  10. For another opinion from someone who did not have the biopsy but did have a positive full Celiac panel that was off the charts.......your doctor should have done the FULL PANEL. She did one test that was very positive but the reason for doing the full panel is important. Not only for a more solid diagnosis, but you should have the DGP or AGA/IgA testing also. These tests are for reaction to gluten in your diet. If they are positive also, that bolsters a diagnosis AND is a reference point for re-testing your antibodies every year to see how compliant you are with the diet. Many doctors just re-run the tTg for compliance and that is incorrect testing. It does not tell you if you are still ingesting gluten from your diet but only tests for intestinal damage. It can also be raised from other autoimmune disease so it is extremely important for both the tTg and DGP to be run every time to get a clearer picture of what's going on. I hope I made that clear for you, if not, feel free to ask any questions you may have. Secondly, a positive tTg does not indicate cancer and she is using scare tactics on you to get you to have the biopsy. I hate that. The reason is that damage can be patchy and they can miss affected area's, even if you do have Celiac. Then they will say you do not have it when you still may and the blood test was a false positive......which is rare and usually is only positive by a few points. Yours isn't....it's elevated by enough to do the whole panel. The whole panel includes a test called the EMA, and if that is positive, along with the tTg, then the odds are 99% you have Celiac. OK, it might be 98% but you get the picture. I have a firm diagnosis because I failed all the tests by large numbers. I am also a classic Celiac and was suffering from advanced malnutrition when diagnosed so that made it easier for me. Sometimes it is not so easy to diagnose. If you do decide to have the biopsy, you would need to go back on gluten and eat at least a couple of slices of bread per day for another couple of weeks, at least, to even hope for an accurate diagnosis. You have not been off gluten that long so I don't think you would need to do the full 6 week challenge but you never know...it's such a crap shoot with this disease. I totally understand your not wanting to eat gluten for the biopsy because I was so violently ill when it was my time with this that I wouldn't even consider it. But you must think of all this and decide for yourself. What I would do is tell her you WANT the full panel done for the reasons I told you and if she balks at that idea, then you do not have a good doctor who is willing to help diagnose you the correct way. Good luck and let us know what you decide!
  11. Is it possible to pay for the blood screen out of pocket? If not, then if the gluten-free diet helps, you must assume you have Celiac and follow the diet strictly because that's the only way it will work. I am pretty sure that if your symptoms improve dramatically, you would not want to cheat on the diet or would doubt you have a problem. I did not have the endo because my blood work was off the charts. I have never doubted my diagnosis because of that and the unbelievable improvement in symptoms. My problems with Reynaud's improved on the gluten-free diet also. They did not go away but they did show significant improvement. I hope you have the same results!
  12. Holy Crap, Darla!!!!!! Your symptom list almost screams of Celiac Disease and you should get tested ASAP! I have Reynaud's also and I am so sorry you have gone through all of this with no help. As long as you are not on any systemic, immuno-suppressant drugs for your RA, then you should demand a full Celiac panel and possibly an endoscopy. I have anxiety, short term , when I am glutened so know how you feel. NOT FUN!
  13. Wow...so much going on here and they are all intertwined! Welcome and howdy back....I love the Texas greeting! I'll address the testing results because I have comments.......you seem very intelligent because you have already figured some things out that many do not notice. You will need that intelligence as many doctors still run on the notion that nothing is connected in the body and all systems work independently of each other. The ANA testing is not specific to any one disease, it just tells you that there is inflammation in your body. It can be elevated from any AI disease and Celiac is one of them. Yours is not bad though, so don't get too worried about it. It could be a lot worse. A positive on candida testing is not surprising if you do have Celiac Disease because Celiac disrupts the normal bacteria colonies in your gut and that is how candida runs out of control. Too many bad and not enough good bacteria. It thrives on sugar so cutting way back on that for now is a very good idea. It is hard, I have done it but the results were great. I had constant thrush and I made it go away. Being diagnosed with Celiac improved it to an even greater degree and I never have a problem with it anymore. The AST, ALT and Alkaline Phosphatase testing are liver tests and these can all be elevated from undiagnosed Celiac Disease. Mine were, and went to normal after being on the gluten-free diet for awhile. Having undiagnosed Celiac puts a strain on the liver so it becomes stressed.....the easiest way to describe it. You were diagnosed with thyroid disease? Your TPO or thyroid antibodies are elevated but they will be with thyroid disease. They do not have your thyroid well balanced though and your T3 is way too high...which I am sure you already can feel. That can contribute to the diarrhea but so can Celiac. The CRP is another test for inflammation so the key is to find out the root cause of it and do something about it. Having a high CRP does not automatically mean your will get heart disease but it is telling you that you need to find out what is causing all the inflammation. You also have RA and that is another friend of Celiac disease. Personally, for me, any inflammatory marker test I ever had done while undiagnosed as a Celiac, came back high. They all went down after the gluten-free diet was started....some by large amounts. I will always have some level of inflammation, due to having 4 AI diseases but it isn't anywhere near as bad as it was. The key thing here is that you have thyroid disease and RA, plus elevated testing that can occur from Celiac AND you figured that connection out on your own. So, I think with what you already have and the inflammation markers that are coming back high, there is a very good chance you do have Celiac and should be aggressively screened for it. These are all clues your body is throwing out at you and you just need the right doctor to figure it all out. I also had flashes from hell for 20 years and having really bad menopausal symptoms are a result of your hormone levels being all f**ked up! I live in Massachusetts ( sometimes I hate admitting that to people) so I cannot imagine how bad it must have been in Texas! You actually sound a lot like I was years ago.....always hot and flashing, with 3 AI diseases cropping up over time and then I finally figured it out and went and got tested. The good news is that I had Celiac Disease and when I went strictly gluten-free, things got so much better, over time. Rewards do not come overnight with this but after the first 3 years, I felt like a new person. Find a good PCP or functional medicine MD who can help but make sure you get tested for Celiac. If testing comes back negative or even ambiguous , then do a dietary trial for 6 months and see what happens to your symptoms. I hope you get to the root cause of this but it does sound like you could have it. Good luck!
  14. OK...I'll bet on this one because it's a no brainer. With a positive EMA and tTg, you have Celiac Disease. I don't what they are teaching these docs today but as no other disease causes a positive EMA except Celiac, what doesn't he get? Oh, yeah...money from the endo. I am sorry you have to pay that much money for the test because you really don't need it. That just isn't right. With your history you gave, you sound like an advertisement for Celiac. Welcome to the club. We are very lucky people because once we go gluten free and heal, we don't have to listen to docs tell us they have no clue what is wrong with us anymore. You are going to be amazed at how many symptoms and problems were caused by gluten consumption. I am very sorry about your mother and know how you feel. My brother died 2 years ago. He was a Type 1 diabetic who I know had Celiac also. His doctor was an idiot and he was in denial....a very bad combination. He died at 60, very suddenly, but that can happen when you have diarrhea for 3 months straight and no one is listening. Don't go crazy trying to convince your brothers to get tested because family can be brutal with regards to this disease. Concentrate on feeling well yourself and that should convince them it is real! Good luck with the rest of testing but do not doubt you have it....not with that blood work and symptom list!
  15. Wynne...yes, as Kareng and cyclinglady have said, this is absolutely true! Not only that......... http://www.glutenfreedietitian.com/vitamin-e-from-wheat-germ-oil/http://www.glutenfreedietitian.com/vitamin-e-from-wheat-germ-oil/ This is not a new article but I have yet to see anything today that disputes this. I only count medical or research information, not celebrity blogs! Tricia Thompson is a well respected nutritionist.