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Gemini

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gemini

  1. Gemini
    Trents.......I second Scott’s statement about Nima being far from a bust. I bought one and used it to test how reliably it would work. It does what it states.......it detects gluten and is sensitive to 20ppm’s. We all know that in current medical standards, that is the amount that is considered acceptable for Celiac’s to consume (20ppm or less), tha...
  2. Gemini
    You may want to ask your doctor to screen you for thyroid disease. Particularly Graves’ disease or hyper-thyroid. That can cause the hunger and trouble with gaining weight. Thyroid disease is very common with people who have Celiac. In fact, they should screen you for a variety of other autoimmune diseases but sometimes you have to fight to get that d...
  3. Gemini
    Well, that certainly helps! I live outside of Boston so we have pretty good health care here also. At least they are more Celiac aware than when I was diagnosed. For the dehydration, I drank Pedialyte for weeks. It helps. I can’t stand Gatorade......it tastes like sweat to me! 😝. The Pedialyte is more sweet than salty so it appeals to kids.
  4. Gemini
    Yes, Celiac symptoms and the dreaded diarrhea can come on VERY FAST. That was my experience. You will be nervous if you are not near a bathroom. Taking antibiotics like those when you have tested negative for pathogens will make it worse.......if you actually have Celiac. Also, the biopsy is not definitive. Your small intestine, if stretched...
  5. Gemini
    The fact that your blood work has normalized is a good thing. You are doing a pretty good job with the diet, if these tests were a lot higher when diagnosed. Are these the only two tests your doctor ran? They are a part of a panel of tests and having the whole panel done is more helpful. As far as tTg is concerned, getting it to the normal range is...
  6. Gemini
    If you are talking about Milky Way candy bars, the original Milky Way bars are not gluten free.......they contain barley. BUT, the Milky Way Midnight bars are gluten free........and they are delicious! 😋. They are the dark chocolate ones.
  7. Gemini
    Ahhhhhhh........that changes everything! 😉. With a high positive tTg and a positive EMA, you have a 99% of it being Celiac. It probably should be 100% but you know that doctors cannot give it the 100 without actually seeing it on biopsy. LOL! It sounds like you have classic Celiac......which is the people with gastric distress, noticeable and rapid we...
  8. Gemini
    JD........low white cell counts are common in autoimmune disease. Mine were very low for my entire life ( I am now 61) and they have gone up to almost normal range now once I had been gluten free for awhile. It did take a long time for them to bounce back, but they did. I was diagnosed at age 46. All of your symptoms scream of Celiac so if you do...
  9. Gemini
    Trent’s.......those antibody tests are specific to Celiac. While it looks like the doctor did not test the EMA, with results that high and rapid weight loss, Celiac is a strong contender. Other AI conditions can raise tTg but usually only by much smaller numbers. The Gliadin IgA is an older test but the one they used when I was diagnosed 15 years ago. ...
  10. Gemini
    Glad you clarified that, CL! From all the reading I have done so far over the years on vaccines and Celiac, it is only the hepatitis vaccine that is proving questionable. That one requires two immunizations to be effective in people so maybe that has something to do with it? It is more difficult to take hold and work? With regards to shingles, I do...
  11. Gemini
    No thanks. I already have a treatment and that is the gluten-free diet. I am genetically programmed to not be able to eat wheat, barley or rye. There are so many good foods to eat that replace them and I don’t miss the deadly three one bit. I’ll choose diet modification every time over drugs with side effects.
  12. Gemini
    Yeah, good luck with that! There are few doctors who really understand Celiac and how to diagnosis it correctly. According to their criteria, they want you to advance to severe damage because then they can find it more easily. Meanwhile, you go years and more and more damage occurs that can be difficult or impossible to reverse. I was a text book...
  13. Gemini
    Cyclinglady....... It’s funny you should mention looking to older photographs regarding the fitness levels of people back then vs. today. I have long said that also. Not only are the food habits today really bad, but people just do not do the regular activities we did years ago that added up to keep us slender and fitter. Cleaning your house, yard w...
  14. Gemini
    I don’t think that the issue of raw ingredients needing to be 100% free of cc matters. If people think that they need to consume 0% gluten, then they will be relegated to eating fruits, veggies and meat only. I don’t think that it is necessary for the vast majority of Celiac’s. Final testing is what matters because it takes into account everything from ...
  15. Gemini
    So, the questions about shared facilities and lines are good ones. I usually always go with certified, dedicated facility options and have never had problems with those. After all, if there is no gluten in the house, kind of hard to cc something. However, I have had a few items from shared facilities with, again, no issues with the product. I tend to...
  16. Gemini
    It might be my age showing here but if you are that worried about the food supply, you are going to have a tough time with this diet. I am 61 and have been gluten-free for 15 years, long enough to know that you can eat processed gluten-free items, even if you are very sensitive like me, and live to tell about it......and live very healthy and well. Most...
  17. Gemini
    Hi Raemdee, I will reply later on to your questions on how to tell what is safe to eat that you asked. Got some errands to do and it takes so much longer these days! But I will say that your boyfriend is a keeper! He sounds very supportive and that is huge!
  18. Gemini
  19. Gemini
    There is a lot of misinformation here that I wanted to address.......and this comes from someone who has been diagnosed and successfully gluten-free for 15 years. You can safely eat processed, gluten free items and heal. It might be better to go easy on them in the beginning but it all depends on what you can tolerate and whether or not you need to...
  20. Gemini
    I’ll add my 2 cents worth into this and no, I am not a doctor. Being pregnant suppresses your immune system to an extent. We have had people on here previously, I remember, who had GI problems pre-pregnancy, got pregnant and felt much better, and then when they had the baby, all hell broke loose. It has been noted on some studies that smoking can b...
  21. Gemini
    Balsamic vinegar can contain sulfites and it is high in histamine also, which can cause really bad headaches. But it is gluten free and safe for the vast majority of Celiac’s.
  22. Gemini
    Isn’t the So Delicious brand made with coconut milk? I remember trying that at one time and it is gluten free but coconut milk is very high in fat. It may be considered a good fat but fat is fat when it comes to eating it and I had to stop because it was the coconut milk and high fat content that got me. Fat is hard to digest anyway so that may be the p...
  23. Gemini
    I never mentioned mushrooms, just acid. I have no experience with either of them and have no desire to. I can handle reality just fine, without the use of either of them, and have plenty of fun without resorting to hard drugs, of which acid most certainly is. You are probably young and won’t realize the damage you may cause until you get older and the p...
  24. Gemini
    Not to beat a dead horse here BUT the use of the word shaming is getting incredibly old. Giving people examples of why they should not mess around with hard drugs is not shaming, it is common sense advice. But there are people who can’t recognize good advice when they see it, so resort to ridiculous terms like shaming and lack of personal experience. ...
  25. Gemini
    110 Grill is open for take-out here in Massachusetts. They did close but many places have re-opened for take-out and they came on board after all. I agree.......the food is delicious and I have eaten there safely a couple of times in the last year. They seem to be as good with allergens as Burton’s Grill. 110 also owns Eviva Trattoria, which is an Italian r...
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