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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. I had a similar situation. My daughter started slipping on the growth chart at the same time as solid introduction. There were a few other symptoms that we didn't quite connect at first. Due to her growth issues, celiac was one of the things her ped tested. Since it wasn't a common test, it took over a week for results. She had her blood drawn on Friday. I spent all day Saturday researching celiac disease and discovering the host of other symptoms we had written of as "just how she is." We made the decision to go gluten free after reading that the tests weren't reliable in infants. I figured even if it was negative, I would still wonder By day 2, she was standing-something she had never done before. By day 4, she was crawling which was a milestone she was behind. Her nap schedule went from 2 2-hour naps plus 1 1-hour nap to a short morning nap and a 2-hour afternoon nap. Her energy levels were clearly way up! She was sick later that week (older sisters in school!) so she was seen at the doc and weighed. She had gained 5 ounces in 5 days of gluten free! When the doctor called the next day to tell me her test results were negative, I told him what we had experienced. He said to keep her gluten free and see what happens. 2 1/2 months later at her 1-year checkup he was amazed at her progress and declared the gluten free diet a success. He still would like to do a challenge when she is 4 or 5, but we've had enough accidental challenges before her older sisters went gluten free to decline that with clear conscience. I would just let him know what you have seen and inform him that your family is officially adopting the gluten free lifestyle. He can take what he wants out of that.
  2. Well, that's true. She's 9, but can sometimes be irresponsible. In a situation where I won't be there to remind her if she forgets, I think I'd rather not risk her getting ill. It's been a rough few weeks with my girls and their food issues (we have recently discovered a red dye reaction and done quite a bit of travel which included dining out).
  3. My daughter brought home a list of ingredients that she will need for tomorrow's lesson. They are making something with salt & flour dough. Her ingredient was salt-right! I'll have to send everything so she can make a safe batch, but what kind of flour is best for this project? It calls for 16-oz salt, 1-lb flour and water. I'll happily send everything she needs, but I want to be sure it works the way the teacher is expecting. TIA!
  4. What concerns me is that the email mentions it will soon be "marked gluten free" and not that it is becoming gluten free. Would the FDA guidelines that are coming out allow the malt content of Rice Dream to be labeled gluten free? I was thinking some of the information I had read about the guidelines was that there would be a certain threshold to mark gluten free.
  5. From my understanding, having the celiac gene means you can (and probably will) develop celiac disease at some point in your life. Having the celiac gene and symptoms would absolutely mean celiac!
  6. Mi-del Cookies?

    My youngest is very sensitive and she eats these all the time. That's not to say that there couldn't be a risk of CC, but in 6 months and several bags of both the animal cookies and ginger snaps, she hasn't gotten sick.
  7. Trix Cereal -

    My 1-year-old is extremely sensitive and has been eating these just fine. We had to switch from her Enviorkidz cereal to a vitamin-enriched cereal because she was deficient in several things that are natural only in foods to which she is intolerant. It seems to be working-between her multi-vitamin and her fortified cereal her zinc-deficient lesions are gone, her energy levels are up and her anemia seems to be handled.
  8. They are having a sale right now-$10 off $49 or more (easy to do if you buy a couple bulk items). Use code MEAL1000 to get the discount and look for things that are sold direct from Amazon for free super saver shipping.
  9. I think it was valid in our case to go with a gluten challenge over blood tests. We allow our children to be involved in medical decisions when possible as it is her body and we try to respect that. The blood test is not reliable enough to force it on them when 1 child was already diagnosed. Good result on the diet was enough for me, and them. I didn't see a reason for additional testing when the children are so highly opposed to it.
  10. I, too, hesitate to give advice, but I will share our experience. We did the gluten challenge because my kids didn't want anyone to "take their blood out." We took them off gluten for 10 days the first time. It didn't take an entire day to see the reactions after reintroducing gluten. Two weeks later, we tried it again in case it was a coincidence as my DD so desperately hoped. We had planned to wait a month after that and try again, but their reactions were so bad that DD begged us to skip the 3rd test. Since were were only doing the experiments for "proof" so the girls wouldn't cheat, that was good enough for us. However, we had an accidental glutening about a month later and both kids had a severe reaction again. They have now been completely gluten free for 4 months and are doing incredibly well!
  11. I believe that is the nature of the bag they come in. We have had good luck transferring them to ziploc baggies. Of course, my kids will do anything for a ziploc baggies. They have a strange obsession.
  12. I can't keep my non-gluten free hubby out of the bag! I had wondered about using these for banana pudding. I think I'll have to try it out for myself.
  13. Oh, I know, but it's just not the same!
  14. I found White Nacho Doritos the other day and was thrilled to see they are gluten free. They taste almost exactly like the original gluten-filled variety. Unfortunately, it is a promotional item. They are pitting them against BBQ Cheddar Doritos and only one will go into the full line at the end of the promo. Please, please vote for the nacho Doritos! I am so excited to have an old "friend" back and will be incredibly sad to lose them again. You can vote at http://fftf.doritos.com/ once each day!
  15. I'm not sure how much more proof your husband would need. You just got a positive diagnosis from a medical doctor. Does it matter if it came from the allergist, the GI or a pediatrician? We got our diagnosis from DD's allergy/immunology specialist based on negative skin prick results and positive dietary response. It came from a doctor so that was all the "real" proof I needed to tell my family she was strictly gluten free.