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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. This Information Might Be Helpful

    Trader Joes has a vanilla extract that they say is gluten free. I use it all the time with not problems but that doesn't really count since I don't get bad reactions maybe mild stomach aches.
  2. Need Good Gi In North Jersey

    If you are still looking try dr. green in manhattan - at columbia pres. hospital
  3. I also have gerd and that is the way that i got diagnosed with celiac. Once I went totally gluten free I was able to stop taking prevacid. There are times that I have reflux but most of the time it is because I have acidentally eaten something I shouldn't have. Try to really watch what you eat and make sure that all of your medicines are gluten free. Andrea
  4. Mild Celiac Disease?

    I never had the typical celiac disease symptoms and I was diagnosed via a endoscopy - done becauase of reflux. I was shocked to find that I was positive -since I really never had any overt stomach problems. I have been gluten free for 1 1/2 years and if I happen to get some gluten by mistake I now get a very bad stomach ache and get sick. This lasts around 4 hours and then goes away. I definitly feel that I am more sensitive to gluten at this point and I have become very strict about my diet. I eat almost everything(not gluten) as long as I cook it - I eat very plain going out (chicken - no seasoning etc.). It is not worth the pain.
  5. Sorry it took so long to get back and answer your questions about evista, fosamax and malabsorption. The women who gave you your dexa scan was probably referring to people who do not have any malabsorption problems. Since celiac disease is a malabsorption disease as well as a auto immune disease there is the greatest of possibilities that you still have a malabsorption problem. fosamax works in such a way that it breaks the bone down faster so that the bone will rebuild at a faster rate- ithink -if you go on the web an search osteoporosis you will find out how bone is built up. If you are not absorbing the vits and minerals the body cannot build bone the same way as a person who is absorbing. Evista does not work the same way as fosamax and therefore does not have the same problems for us. If you have not been given a 24 hour urine test there is no way to know what is really going on. It measures the amount of calcium in the urine - If most of the calcium is not being used you might have a deficiency. Also - if there is a lot of calcium in the urine it could be caused by secondary hyperparathyrodism ( not absorbing vit d ). You should find yourself a good doctor one who is aware of celiac and the problems we have. Were do you live - it might be worth the trip to see Dr. Green at columbia pres hospital in new york - he is a leading authority on celiac disease and has a staff that will advise you on all of the ins and outs of staying healthy. Most importantly - we are too young to have osteoporosis and if given the wrong course of treatment the effects could be horrible. Please find a doctor that can help you. Andrea
  6. After being diagnosed with celiac disease I had a bone scan and I had osteoporosis - I went on Evista and then went to an endocrinologist. He did a 24 hour urine test and a lot of other test - I am now a mega doses of vitamin d(from the doctor)and evista I get get tested every 6 months and on my last dexa scan i no longer have osteoporosis but have osteopenia. Be careful with fosamax(?) if there is uncontrolled malabsorbtion this drug should not be taken(check with your doctor) -I found this out in a celiac meeting that hosted Dr Green from Columbia Pres hospital.
  7. I have black circles too. They were much worse prior to going gluten-free. I still have them though. I decided to see if they were due to someother allergy and I was tested - everything came back negative. I am still waiting and hoping that they will get lighter. But at least I don't look like I got punched.
  8. Having A Gluten Reaction

    help - I have been gluten-free for over 1 year and I haven't had any problems. last week I bought the calcium vit I always buy and I started to have stomach distress. Now I have dh rash all over and it is way itchy. I went to the doctor and he took 2 biopsies. He just wanted to confirm it was dh. I know that it is - it looks just like the pictures on the web. I will be even more careful now. Before I always thought that if I accidentally got some gluten it wouldn't be a problem. But I guess since I have been careful in the past I am now getting bad reactions.
  9. Just another day when my husband offered me bread and when I told him that I couldn't eat it because it made me sick he said that he never saw me sick. Even when I don't bring it up and just pass on eating things I shouldn't I have to hear that what I have isn't really a problem I am not asking for anyone to feel sorry for me - not even complaining about the food. It seems to bother my husband more than me
  10. I have been gluten-free for over a year - well almost. I don't really tell anyone anything except that I can't eat wheat it is too much to explain. I am sure that I still injest some glutin. Before i went gluten-free I never had any symtoms - now when I have an accident _I get sick -
  11. Problems In Pregnancy With Cd

    I am not sure if this has anything to do with celiac disease - But it probably has something to do with malabsorption - I had a miscarriage and a pregnancy where there was a problem. I do however have two great kids. With each of them I gained a tremendous amount of weight and they were big babies - very healthy. So I guess it all depends upon your nutritional status at the time of the pregnancy. I would take vitamins and make sure that the foods I ate where gluten-free.
  12. Is It Just Me?

    when you walk down the gluten free aisle in the supermarket there are always people who are shopping for wheat free food. Most of them have not been tested and many do not know what celiac disease is. They have been put on a wheat free diet by a nutritionist. When I mention celiac disease i tell them to come to this web site and find out about it. I know 1 other person who has diagnosed celiac disease. Her 3 children also have it.
  13. My husband thinks that since I have been living with this problem for 50 years that another 50 years won't hurt. I tried to get him to read some information but he isn't interested. I want to get my daughter tested but he doesn't want her to go through a blood test. He doesn't understand that there could be damage - long term damage - He constantly offers me pasta and bread - dosen't ever remember that I can't have it. I basically don't mention to anyone that I have this problem I just decline from eating anythng that I shouldn't. i don't say why - it is even a little boring to me. I find that there are a log tof things that I can eat and I cook almost every night. If my family wants pasta I just don't eat. I find something else.