marianne replied to marianne's topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseHi ladies and thanks for your responses - My son was tested for other food allergies and he doesn't have any others. Even dairy is ok. When he was an infant, the pediatrician thought he was lactose intolerant, but looking back, I think it was the celiac. Regarding his weight, he had lost some weight and then between Jan and Feb, he gained a pound and a half. The specialist said that 5 lbs. a year is normal for a toddler, so that was a big gain. Because of that, my husband and I have thought as you did: at least he is getting what he needs. But he can't exist on formula - he is almost 3! The baby food is an idea - I also thought of it. He was never too fond of the stuff even when he was younger, but the fruits were ok. When we were in the grocery store recently, I asked him to pick the fruit he wanted. ( Not IF he wanted one, but WHICH one he wanted ) He didn't want any. Maybe I'll keep trying with that. The pretzel recommendation is also appreciated. I have tried putting out a little tray with some of his favorites cut up: cucumbers, fruits, etc. Before, he would nibble. But now, nothing. The doctor called me last night (9:30) and said that if all else fails, she can try an appetite inducing medication. I hate to overmedicate, so I told her we can wait 1 or 2 more days and see if he improves. How I wish I needed an appetite inducer! I need a suppressant! Thanks again for your help and support.
marianne posted a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseIt is so great to find all of you! We have a great specialist who diagnosed our son when he was 19 months old. Now, he's 2 1/2. Our problem, and no one seems to have the answer, is that HE WON'T EAT. When they tested for celiac, they also found that he had 4 ulcers. He is on medication for that. Food that he liked one day, he won't touch the next day. He is currently existing on a toddler soy formula. Sometimes we add rice cereal (the infant kind) to that. Tried to change him to soy milk, tried half formula, half soy milk - he won't touch it. He will sometimes take a bite of something, e.g., bbq chicken, then cry and spit it out. Has anyone gone through this? My husband and I are SO FRUSTRATED. Today was a victory because he ate a little bit of jello. Even if you haven't experienced what we are going through, I am so relieved to read through your posts. It feels like I found some friends.