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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Blue-Skye

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  1. Soy - Can Heal?

    OK my wheels are turning - he will be 13 on June 23rd. That would be about 3 months. I'm thinking maybe we could do a complete avoidance until then and then he could go to his favorite Chinese restaurant to see how he does. He begs for this restaurant. How much soy would we have to put back in - for how many "x" number of days? I'd hate to put soy back in thinking there was no problem but it took several months to see the problem again - then we'd have to start over trying to get things healed and back to a great position. We have cut soy and gluten (as well as sugar and processed foods) out of the home 100% - it is not in the home in any form - but he has been allowed teriyaki beef a few times at his favorite Chinese restaurant in the last 9 weeks. My biggest problem is that I know what healthy eating entails and my thoughts were always that a bit of unhealthy here and there would not kill you - and hubby has anaphylactic reactions to peanuts and fish so I know what that does to a person but this subtle under the surface sensitivity being serious (as in needing to be 100% with zero tollerance for infractions) has been hard to drill into my hard head. Not eating out has been our biggest struggle - learning curve. When one is tired or out and about it was just easier to eat out - but it seems there is gluten and/or soy in everything - at least at the grocery store all the premade stuff has it. I went to buy beef sausage this week and it had soy, I had to put it back and choose a brand not on sale. Then I realized the spices probably had gluten in it. This can be hard sometimes. Just easier to stick with all fresh foods to be 100% sure? Blue-Skye
  2. Dyslexia?

    Our son is 12.5 and is severely dyslexic and dysgraphic (profoundly gifted too - extremely high IQ) We ended up pulling him from school mid 3rd grade to homeschool. Our son was fine until around age 5 then something completely changed him. He used to be a very calm child - for ex he cousl sit through a chruch service quietly looking at books before age 2 then around age 5 he began to crawl under pews and talk non-stop. He used to eat anything and then he got so picky he would only eat a few items fixed a specific way. Not that this is healthy but for example he would only eat a hamburger from Sonic - no where else. We have been grain free / soy free / sugar free / since January 1, 2007 and we are seeing a few improvements - the one that sands out the most is his writing has improved a lot. Blue-Skye
  3. We started the SCD after the Enterolab test - he was totally on gluten at the time. Here is what Enterolab had to say by email: Thank you for your correspondence. Though we do not often get results wherein the antitissue is positive and the antigliadin is not, it can happen. This simply means that the secondary reaction to gluten is dominant over a primary reaction, but the only way to treat it is to take gluten out of the diet since the tissue transglutaminase enzyme would not be produced if gluten was not in the system in the first place. It is possible that the longer Zachariah ingests gluten the better chance that the antigliadin reaction would kick in as well anyway. He has inherited two genes which predispose him to gluten sensitivity, though neither of them are considered the main Celiac genes. This does not mean that he could not eventually progress to Celiac Disease if it was decided to keep gluten in his diet, but he has a lesser chance of that happening. With these genes, however, he could still manifest in the same types of symptoms seen in Celiacs or with more systemic symptoms. You should consider him gluten sensitive now. The soy sensitivity, due to the larger number, has probably been manifesting longer than the gluten sensitivity. A larger number does not always indicate a more severe problem. The soy sensitivity is caused by an immunologic response to the soy protein. Leaky gut would not cause the sensitivity itself, but it could certainly weaken the immune state enough to allow a prediposed food sensitivity to be triggered. I hope this information is helpful. Please let me know if I can be of further assistance. By Phone that same day: I asked if we healed his gut if we could then introduce soy and gluten back in and the said no - because we would just start the cycle over because once the sensitivity is triggered you are sensitive for life. This was disappointing as I had thought we could heal his gut and then reintroduce soy and gluten in small quantities. Hope springs eternal ! Not that I would ever go back to eating an awful over processed American diet again but to not have to worry about every bite when eating out would be nice. He does not have any outward signs of sensitivity - so a challenge is hard for us - and I will not risk any gains we make with him neurologically - so I guess it's gluten and soy free. We've already seen signs of improvement in his hand writing after only 9 weeks on the SCD diet - with a few infractions like rice and terriaki beef. (I know, soy and gluten - but he begs for terriaki beef) Thanks everyone, Blue-Skye
  4. I've read a lot of posts about EnteroLab results so I'd like some feed back too please Antigliadin IgA 9 (normal <10) OK Antitissue Transglutaminase IgA 17 (normal <10) not OK Fat <300 (normal <300) OK HLA-DQB1 Allele 1 0301 HLA-DQB1 Allele 2 06xx Serologic equivalent: HLA-DQ 3,1 (subtype 7,6) Anti-Casein OK Egg OK Yeast OK Soy 23 (normal <10) not OK I understand the soy "allergy" but the gluten is confusing to me. They have explained their interpretation but I'd like your opinion too. They told me that this is an unusual test result but it does happen. They said the Soy sensitivity has probably been there longer than the gluten. They said we should consider him gluten reactive now and avoid both Soy and Gluten. My concern is the "allergy" or sensitivity to gluten. That is the part I'm trying to figure out - is he reacting now or not? Or is he just susceptible to a possibility to it in the future? We are currently doing the Specific Carbohydrate Diet (no grains, soy, sugar, almost milk free (he still gets butter and cheese) but need to know how strict we need to be about Gluten and Soy - 100% no matter what or just avoid it the best we can and realize that it is OK for a small bit here or there? In other words we would not ever purchase gluten containing items for the home but if he ate something away from home we will have lessened the consequences because of the avoidance 99.9 percent of the time? Since his fat score was Ok does that mean we have room to fudge now and then - OR does the Antitissue result mean he is already extremely sensitive with a need to be 100% compliant with no infractions? I know some people are super sensitive but he / we have no outward signs of sensitivity - but I don't want to get to that point if we already know to avoid it. The reasons we had him tested: * Family history of illness and allergies on Paternal side. Dad has IBS, Fibro, Kidney damage, recurrent kidney stones, depression, Hypogammaglobulinanemia (low IgG) with infusions, anaphylactic to peanuts and fish, multiple environmental allergies. * Our son is severely Dyslexic / Dysgraphic, with ADHD type symptoms, and an extremely picky eater when he did not used to be. He also had a bad reaction to his 5 year immunizations. We chose Enterolab because we have a huge deductible on his insurance so we would have had to pay anyway. And Enterolab gave us the ability to get it done because we wanted to without having to convince some nameless snotty doctor to agree to it. Blue-Skye
  5. Good day I have a general question about Soy - Our son tested as high allergy to Soy but we see no visible signs of it ourselves. In fact he insists he is not allergic to gluten or soy because he does not have full blown anaphylactic reactions like his father does to peanuts and fish. I tried to ask about leaky gut as the cause but they said no - maybe they do not believe in it? That he will never heal and will always be reactive to soy. Since we do not see any outward signs of allergy do we need to avoid it 100% and be paranoid about it or just an awareness of it and do our best to avoid it. It is in basically everything and we have cleaned out the fridge and cupboards due to the soy and gluten. Or could it be doing inner damage such as cognitive / or internal organ damage, setting the stage for cancer, etc? The testing was done through enterolabs - should we take him to a traditional allergists - which we've done in the past - about 8 years ago - just to verify the soy allergy? We have no insurance to speak of so all this is being paid for by ourselves. Does anyone have any links to reaseach about soy damage if one ingests it while "allergic"? We have cut out all grains, sugar, soy, - we are doing the Specific Carbohydrate Diet to heal but would like to know there is an end in sight if possible - or if we need to face reality and know this is for life. Thanks for all your help, I have another post with questions in the pre test forum. Blue-Skye