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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Karen B.

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About Karen B.

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  1. EmMothRa, just FYI - Sam's Club carries a generic form of Imodium, I think the bottle of 200 was around $5. Why spend more than you have to? Also, it's one of the things someone with Celiac should always have handy, just in case.
  2. I don't know if this will help you but I had been on Prevacid due to reflux for 5 years before being diagnosed with Celiac. At the time of diagnosis, I was nearly asymptomatic. I didn't have reflux after I went gluten-free so I stopped taking Prevacid. Also, I had to buy a complete new wardrobe of slacks because I hadn't realized how bloated I was from the gluten. Now, the tiniest amount of gluten will cause a major reaction. Imodium will stop the D (thank you for that simple expression, ravenwoodglass). Psyllium hulls and water (Metamucil) will help keep the Imodium from causing constipation. Phazyme will help with the gas. Please realize that you won't be absorbing complete nutrition from your food while this challenge is in progress. If there are any nutrients you can take in sublingual form, do so. Also, to put it tactfully, don't ever assume it's only gas while this is going on.
  3. Mermaid's Mom, something about going gluten free really sharpened my nose and taste buds. My co-workers teased me about being able to walk into the office break room and comment that someone had a tuna sandwich on white bread when it had been a couple of hours. OTOH, people's colognes almost gag me sometimes and I can taste them in the air. If she experiences something like that, I've found a good strong peppermint gum is a good masking agent so you don't notice it so much (I use xylitol gum).
  4. I've been eating gluten free since 2003 and it does get better. I do remember when Hubby and I realized that I was getting sick every time I ate something cooked in a cast iron skillet and we had to burn it out and re-season it. It's incredible how sensitive it can be. After all this time, I still get hit with the strong wish for the convenience of being able to pick up a bucket of chicken for supper when we're tired although I stand by what I told my doc about the GFD... "I can't say it's not better for me to have to think about everything that I eat. I can't imagine living in a house with gluten. My hubby made the decision to have a gluten-free house when I was diagnosed when he realized that him kissing me when he had been eating gluten could make me sick. I didn't believe it until he proved it to me. If you have to share a kitchen with gluten, you need people that respect territorial boundaries. If you don't have that, you're going to keep getting sick.
  5. Non-dairy, non-soy calorie dense foods I have to limit (since I have the opposite problem) are avocado, nut butters, shellfish, oily fish, breaded foods fried in healthy fats, black olive tapenade (like pesto with black olives), gluten-free baked goods like cupcakes, muffins, homemade waffles, gluten-free breads with nuts added.
  6. I see 2 issues: #1 -- How good of a hostess can you be if you're sick? And how will your guests feel if they are the cause of you being ill? #2 -- There are so many foods that are naturally gluten-free and good substitutions like Tinkyada, GFP French Bread, Chebe, etc. I can't see how you're shorting your guests at all. If you bake fresh, homemade bread, you'll actually be providing a treat most people don't get now. Home made gluten-free waffles are very easy and again, that's something most people don't get fresh and pipping hot. Serve with vanilla yogurt and fresh fruit for the healthy types and whipped cream for the ones that aren't worried about it. You can serve dishes with gluten-free pasta, rice, potatos, tacos, tostadas, salads and eating out. Have you tried making what I nicknamed stir-fry pasta? Basically cooking fresh vegatables and chicken, shrimp or what-have-you in EV olive oil and tossed with pasta. It's a great alternative to the standard red pasta sauce and you can vary the flavors by changing around the ingredients. Chicken, red peppers, onions, black beans, corn and pasta will have a completely different taste than shrimp, broccoli, carrots and green peas with pasta. Who misses bread when served a chili cheese baked potato? A Tex-Mex cassarole of cheese enchiladas topped with canned chili and cheese calls for rice and refried beans -- no bread needed. I'd make sure I had all the meals planned out and shopped for before your guests show up along with some familiar snacks like chips/dips, fresh fruit, etc. and some new snacks like Chebe parmesan bread sticks, gluten-free pretzels, maybe Namaste spice cake done as carrot cake muffins. Ask your guests for some of their favorite foods to get an idea ahead of time of dishes you might convert. And don't forget to ask if they have any allergies or extremely disliked foods. You never know, your guests might find their reflux disappears when they aren't eating Wonder Bread all the time.
  7. What kind of lettuce? I've been told iceberg lettuce is one of the most difficult foods to digest. Pre-diagnosis, iceberg lettuce is the only food that would routinely give me D. Gluten didn't bother me but iceberg lettuce would do me in. Other lettuces give me no problem.
  8. Your friend is totally correct -- the doc won't see the cheeks to which you apply blush. :-) They are under such a tight schedules and see so many patients in one day, you could meet the doc and nurse in the grocery store the following night and they wouldn't even know you.
  9. Yes, it is an excellent natural source of vitamin D but it also is high in vitamin A and according to Hubby's doc, too much vitamin A can weaken bones. He was taking liquid cod liver oil and not measuring it, just drinking it from the bottle. Add in eating large romaine lettuce salads ( http://www.nutritiondata.com/facts-C00001-01c20dv.html [check vitamin A level for one head]) and cold water fish, he managed to take too much for several years and wound up with osteopenia. Fortunately, he was able to rebuild his bones with just stopping the vitamin A and taking calcium supplements. It was a lesson to me to find out the upper limits on the nutritional supplements I take.
  10. I take Advanced Nutritional Technology SuperEPA 2000 Natural Fish Oil Concentrate, 1000 mg and I take 2/day. I haven't had any nausea problems with it from the beginning. My hubby's cardio doc recommended them to him and when I wanted to try them for general health, I started taking them. They have EPA and DHA. I don't keep them in the fridge but we get them by mail order. My hubby was taking cod liver oil and gave himself a case of osteopenia from overdoing it. The doc explained that you want a lab grade fish oil that doesn't have vitamin A and to watch out for cheap oils because they sometimes have mercury. It has helped my arthiritis and my cholesterol/triglycerides are in a good spot. But I eat heart healthy anyway (EVOO or Benecol instead of butter).
  11. I found back in my pre-diagnosis baking days that melted butter made my tollhouse cookie or cookie bars chewy but regular cold butter made them crisp. You might try using real butter (although I now use Benecol and be the same effect) and melt it before adding it to the recipe. I like crisp crunchy cookies, so soft and chewy would be a problem for me. But I do know how to get there. :-) Pamela's chocolate chunk cookies were good but they weren't crisp enough for me so you might want to try them.
  12. At the time I was diagnosed, I had no Celiac symptoms, just anemia and sciatica from B vitamin and folic acid deficiency. When my Mom was diagnosed, she had no Celiac symptoms, just leg cramps and at 73, the doc couldn't believe she had Celiac. FYI -- The GFP Favorite Sandwich Bread is the closest I've tasted to plain white bread. Amazon has a pack of 6 for under $20. I haven't tasted the Kinnikinnick bread mentioned earlier. Someone else has mentioned Authentic Foods Cinnamon bread as the only bread their kids will eat (the kids have good taste, that bread is delicious). Amy's Mac and Cheese is really good. We had a mac-n-cheese conversation going a few days ago but I can't find it now. I don't have kids, but I think it's good to have a firm diagnosis and rule out other problems. I've seen several posts about kids that hit their teen years and decide to ignore their diet. If you have a diagnosis you can point to, it comes from a position. Personally speaking, I'm glad a diagnosis was obtainable for me. Many know they have a problem with gluten but the tests still have a lot of false negatives (but no false positives).
  13. Just a footnote... One package of Pamela's makes 2 12-14 inch pizza crusts but we made one crust and an assortment of bread sticks. Hubby was saving the last one for me and I was saving it for him so it went stale on the counter and became very tough. And I found out a new use for left over bread sticks. gluten-free dog chews! It took our dog about 15 minutes to chew his way from one end to the other. Now he wants another one. I told him he'll have to wait a week.
  14. Check out this earlier conversation. I posted several Chebe recipes in a string here. http://www.glutenfreeforum.com/index.php?s...st&p=307957 You can get a wide variety of effects just by changing up the cheese. I found out using fat-free cream cheese (the fat-free has xanthan gum) makes a white bread type dough. Parmesan makes a Schlotsky's type bread. Forget the cheese (as I did one time) and it makes a biscuit/scone type of item. I enjoy playing around with it just to see what I can do with it. I use parchment paper when I bake anything. I also make it with 6 oz. of parmesan and add the baking powder mentioned on the red package, do everything else according to package directions and divide it into 4 balls and press in my tortilla press for mini-pizza crusts. Cook them as directed on the package and freeze for pizza later. Or put the dough ball in a quart ziploc sprayed inside with butter PAM, pat out to an even thickness (s/b about 3/4 inch to 1 inch), cut the bag away (on the seams) and use a pizza cutter to zip it into 20 pieces. 3 or 4 of these makes great lunch mini sandwiches. I take 4 because my co-workers always ask for a taste. It's a very versitile dough. Just remember to wrap it in a cotton tea towel and let it air for 12-24 hours before you put it in an airtight container or in the fridge. Unlike rice flour products that dry out easily, Chebe has to have a chance to dry out or it goes gummy.
  15. Ditto here. I'm glad that it's something I can control so easily. I see other people with stuff they have to take prescription drugs for and the side effects of the drugs are almost as worrisome as the health issue. But I really have to say my hubby helps me stay positive. He was so relieved it wasn't colon cancer like they thought! He does a lot of the cooking.