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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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ravenwoodglass last won the day on January 10

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About ravenwoodglass

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  1. Can you give her some magnesium rich foods instead of the supplement? Foods are always the best way to get nutrients. Here is a link to a list http://www.healthbeckon.com/magnesium-rich-foods/
  2. In addition to the great advice you have already gotten you may want to give a short itinerary of the cities and countries you plan to visit one the International thread. We have members from all over the world so you may be able to get some advice about places you can eat out that would be safe.
  3. The one make by Sandoz is gluten free. Be aware that some doctors will prescribe a higher dose than needed. If you find that the prescribed dose makes you very sleepy ask the doctor if you can cut the dose in half. It is a highly addictive drug so hopefully your doctor is only having you take it when needed.
  4. Welcome to the board. Never heard of this test. If you suspect you have celiac keep eating gluten and make an appointment with your doctor.
  5. Chances are your doctor ran blood tests for your liver function. That is usually done pretty routinely. It is not uncommon for someone to be negative and then later to have a positive test. Celiac can develop at any time in a persons life. A fa;se negative is much, much more common than a false positive when it comes to celiac testing. If you are going to have an endoscopy be sure to remain on gluten until that is done.
  6. Many will be. Try going to the website of your favorite brand and look in the FAQs or Health and Wellness section.
  7. My guess, and it is just a guess, is that your body may be 'diverting' it's energy to the digestive process. If you are wondering about Celiac it wouldn't hurt to get tested. I had 'the most extensive diverticuli' my GI had ever seen prediagnosis. Interestingly enough when I had a scope done 5 years after diagnosis I had none.
  8. From their website: "All of Sabra’s products meet broad standards of gluten free content of < 20 ppm." I usually get the Wegman's brand but have also had the Sabra and not had an issue. It is really easy to make at home. If you eat a lot of it making it turns out to be less expensive.
  9. Can you get a copy of your biopsy report? The remark that it is 'inconclusive' makes me wonder if your doctor is one who doesn't diagnose unless villi are totally destroyed. Perhaps a second opinion from another doctor might be a good idea. Ask also about the possibility of a formal diagnosis if the gluten free diet brings those numbers down and gives symptom relief.
  10. If you have positive antibodies you very likely have celiac. This is especially the case since you also have low B12. Have they checked your other vitamin and mineral levels? It might be something to ask for them to do if they haven't already. It is good the doctor did the colonoscopy and has ruled out stuff like chrons. Did they set you up with an appointment for a endoscopy? In some cases if antibody levels are very high they might diagnose without one but that is the exception not the rule. Do make sure to keep eating gluten until you know that all celiac related testing is done. Celiac can develop at any age. Many of us are told we have IBS, sometimes for years, before we finally get a diagnosis. It can also take some time for antibodies to reach detectable levels. In addition some doctors don't run a full panel and folks can be missed if they only show up positive on a test that wasn't done. The diet can be a bit to get used to at first but there are lots of folks here that can help you out. Be sure to read the Newbie 101 thread at the top of the coping section. It has a lot of ggod information.
  11. Celiac is an autoimmune disease not just a gut disorder. If one doubts that they have only to look at folks with DH or Ataxia that don't (yet) have GI presentations. The antibodies start to be formed when gluten comes into contact with mucous membranes. There was research being done trying to find a way to diagnose us without having to do a gluten challenge. They used a swab either in the cheek or rectum (buccal and rectal challenge) and then biopsied the area a few hours later and were able to detect the antibodies. I don't have time to look for those research studies but they are there and were peer reviewed. If I can find a copy of the paper I wrote in college about this I will post the references I used. I know one was the NIH but not sure of the others. Maybe some of you folks that enjoy and have time for the research might be able to find info on the studies. I might have even posted about this and provided links years ago. At he time I thought it was great they were looking for ways that were less barbaric to diagnose folks that had already gone gluten free.
  12. Perhaps the doctor that told you to continue on the diet might give you the official diagnosis so he can get the accomodations he will need to have in school?
  13. You mention being able to just tolerate a small bowl of cereal. What cereals are you eating? Do they contain oats? Even gluten free certified ones? There are some celiac folks who don't tolerate oats even if they are certified as gluten free. On the off chance you may be eating them you may want to drop them for a bit and see if that helps. I hope you get some relief soon.
  14. If you were already gluten free when the blood work was done then the results would be a false negative. It does take time to heal so hard as it is you have to be patient. Do try dropping the dairy for a while and read the Newbie 101 thread at the top of the Coping section. It will have a lot of good info for you. I hope you are feeling better soon.
  15. Sorry to hear you are still suffering so much. I wish I had some info that might give you some relief. Please keep in mind that you can have too much of a good thing. It is always a good idea to look up side effects to any med you take. That includes supplements. If your levels for niacin are in a good range please don't take mega doses. As with many supplements too much can be as bad or worse than not enough. https://www.drugs.com/mcf/niacin-overdose-what-are-the-symptoms "Niacin overdose is unlikely if you take niacin only in the amount prescribed by your doctor. While it's not possible to overdose on niacin simply by eating too many niacin-rich foods, taking too much over-the-counter or prescription niacin can be dangerous. Niacin overdose signs and symptoms include: Severe skin flushing combined with dizziness Rapid heartbeat Itching Nausea and vomiting Abdominal pain Diarrhea Gout If you think you may have overdosed, seek medical attention immediately. Because niacin has also been linked to liver damage and stroke, most doctors now recommend it only for people who can't take statins to treat high triglyceride levels. If you're concerned about taking niacin, talk to your doctor."