Get email alerts E-Newsletter

Ads by Google:

   Get email alerts E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


Advanced Members
  • Content count

  • Joined

  • Last visited

  • Days Won


ravenwoodglass last won the day on January 10

ravenwoodglass had the most liked content!

Community Reputation

1,135 Excellent

About ravenwoodglass

  • Rank
    Advanced Community Member
  • Birthday July 31

Contact Methods

  • ICQ

Profile Information

  • Gender
  • Interests
    Gardening, photograpy, painting and drawing, textile arts, glass art, reading
  • Location
    Upstate NY

Recent Profile Visitors

61,314 profile views
  1. You might want to go to your closest celiac support group (check with local hospitals for ease in locating one or two) and ask to interview individuals there. Interviewing teachers and school kitchen staff might also be helpful. You will learn much more in a face to face interview and your participants will feel safer.
  2. I use that brand myself. I find it at my local Wegmans. It is so nice to find OTC meds that are clearly labeled. I thought it was an in store brand also but it seems to be available in different markets
  3. Welcome to the board. I agree you should be tested for celiac. Make sure you don't stop eating gluten until all celiac related testing is finished. I also seemed to be allergic to everything before I was diagnosed. I had skin prick testing for 99 substances and the only thing I didn't react to was beech trees! My very savvy allergist said after I was diagnosed that was a big indication to him that I was likely celiac. He then referred me back to my GI doctor who confirmed his suspicions. Family can be a bit hesitant to believe our diagnosis. I know my family was sceptical but as I recovered they became more suportive and even ended up getting the advised testing for first degree relatives. I hope you can get some clear answers soon and can begin recovering. One last thought you mentioned a rash. Celiac can produce a rash called dermatitis herpeformis (DH). A diagnosis of DH is a diagnosis of celiac. You may want to see a celiac savvy dermatologist. Do check out the DH section of the board for more info on that condition.
  4. Welcome to the board. What makes you think what you passed was the lining of your intestines? There are times when my intestines have been so inflamed that I was passing a lot of mucous that looked like 'sheets' that coated the stool, (Sorry for the TMI) along with some bleeding. Could that be what you saw? Are you having active bleeding? I am not refering to seeing a bit of blood on the TP or even a pinkish tinge in the toilet but blood that is flowing. If so you may want to head to the ER. Have you been diagnosed with celiac or do you have NCGI? If not make sure you keep eating gluten so you can be tested. You could try calling your doctor and asking to be put on the cancelation list if you are able to go in on short notice. That might help you get in sooner.
  5. Welcome to the board. Your ped should be able to refer your little one to a physical therapist to help with any issues with balance and coordination if needed. It is quite possible to recover from ataxia, especially as young as she is. It can take a bit longer than it does to recover from symptoms like stomach issues but chances are very good that she will. An oven can be shared with gluten foods as long as you aren't cooking on the racks directly. You do want to avoid baking with gluten flours when cooking gluten foods though as flour can become easily airborne. You may want to read the Newbie 101 thread at the top of the Coping section as it will have a lot of info for you. Do keep in mind that since she is diagnosed that all family members should be tested even if they don't seem to have symptoms.
  6. Gerald when you tried to get off the Paxil did you do it under a doctor's care? An MD would be quite helpful with that if they really know what they are doing and if not find another doctor. You would need scripts for decreasing dosage over time and then guidance when you get to the point of actually stopping. Have you told your MD or a GI doctor about your over the top use of coffee enemas? Your doctor may want you to have a colonoscopy to check how much damage may have been done and an endo would be a good idea at the same time to see why you feel you need to take an over the counter drug like Prilosec. Your doctor may need to help you taper off this drug also. If the reason you take it is stomach pain that really needs to be evaluated by an MD. I was told to take that at my celiac diagnosis. I refused and used Pepto Bismal liquid when I had pain. It would work with one dose and not mess with my stomach acid and isn't addictive. I am sorry you have had so much trouble but you have to stop treating yourself and find a GOOD team of doctors to help you. You say you need to find a naturopath so make sure you find one who is responsible and will work with your MDs to help you. While you are getting off the Paxil it might be helpful to see an acupuncturist to help you deal with the process and perhaps even be helpful with some of your symptoms without the use of drugs or things like coffee enemas etc. Do be sure when you see your MD to bring a complete list of all supplements, meds OTC and scripts and dietary restrictions you are self imposing.
  7. Your doctor should be able to clarify why he wants to do the test. Just one thing to add and that is to make sure that he has let the x-ray dept know your solution needs to be gluten free. Your drink will be thin not thick and chalky. I have had this test done a couple times. The first time the doctor didn't know the barium needed to be gluten free and I didn't even make it out of the hospital before the D hit hard. Second time I had the gluten-free solution and no issues.
  8. So sorry you are going through this. I also had lots of swollen lymph nodes and they do take a very long time to go down. The night sweats are awful. I dealt with them for too long myself. Thought I would chime in on what gave me a bit of relief. I kept a fan next to the bed that had a remote. When that awful heat would awaken me I would throw off the covers and turn it on full blast setting the remote timer for 1/2 hour. It didn't stop them but it at least let me get back to sleep. I also used flannel sheets over a water proff mattress pad. That way at least if the bedding got damp it wasn't clammy. Don't know if that will be helpful for you but hope it will. Make sure you are drinking plenty of water to replace what you are losing at night. Dehydration can make us a bit dizzy although that may not be what caused you problem last night extra fluids won't hurt. Do take the advice to drop the gluten-free oats. Wait until you are well healed before you add them back in. I hope you get the results of your tests soon and your mind is set at ease about the possibility of lymphoma.
  9. That sounds like a very scarey reaction. If you don't have an epi-pen perhaps you might want to get one from your doctor. You are lucky the large blister was not far enough down your throat to obstruct your breathing. Polaner makes an all fruit jam that I use that might work for you. It does have 35 cal per serving but has no sugar or sweetener other than from fruit added. I have also seen recipes for frezzer and refrigerator jams and preserves that you may want to try.
  10. Welcome. You have found a great place for information and support. There is a 'Newbie 101' thread at the top of the Coping section. That has a great deal of good information for her and other family members. You are a wonderful Aunt to try and help her get used to the gluten free lifestyle. It can be a bit overwhelming at first for both the person diagnosed and their family. Hopefully the hospitalizations will soon be a thing of the past but it can take some time to fully heal. If she has any brothers or sisters they should be screened along with her mother and father.
  11. Has an ovarian cyst been ruled out?
  12. Anemia is not the only reason for fatigue. If you have only been gluten free for a month or so then your body is still healing. Your test resuls as far as iron goes look great. Have you had your B12 and other vitamin levels checked? That would be a good idea. Keep in mind that for many rest is a good thing when your body is healing and trying to rebuild itself so a bit of fatigue is your bodies way of getting you to rest. Do check with your doctor about a referral to a doctor that deals with hormones as those levels are low but they also may normalize on their own gluten free. I do hope you are feeling better soon.
  13. Everyone is different. I didn't drop potatoes or rice and had no problems with them. Of course they were in their natural form not out of a box with a bunch of other stuff added. Nut butters should be fine as long as no one who isn't gluten free shares the jar. It is a good idea to drop dairy at first. Butter should be okay as the amount of casien and lactose in butter are really minimal but cheeses, milk, whipped cream etc may be an issue until you heal. When you have been feeling better for a bit add backk in hard cheeses like cheddar first. All plain fresh or single ingredient fruits and veggies should be fine but you may want to cook veggies well to make them easier to digest. Personally my body still doesn't like a lot of lettuce so my salads are done with lots of cut up veggies but no lettuce. That is my body though as I am well healed by now. Eating at others homes will always be a problem. Best to bring something from home that you know is safe. There are more celiac savvy restaurants than even 5 years ago but some do it better than others. If a place has a gluten free menu your chances of a safe meal are better but there is still a risk. As far as gluten free processed food goes you may want to add one thing at a time while you are feeling okay. Perhaps add a bread, for example, If that sits okay after a week or two you could try adding something else. The reason you want to do it slowly is because many gluten free baked goods have ingredients you may not have eaten before like bean or soy flours. Early on I thought some baked goods were glutening me but it turned out I don't tolerate lupine or soy flour but keeping a food diary helped pinpoint those ingredients after a bit. If you haven't already do be sure to read the Newbie 101 thread at the top of the coping section as it has a lot of good info for you. Welcome and I hope you heal quickly but you will likely have some ups and downs for a bit so don't get discouraged.
  14. My vision gets blurry at times when glutened and I seem to have a harder time changing focus. I also used to get visual migraines even without getting the headache. That hasn't happened in years though.
  15. You may want to ask your doctor for a referral to an endocrinologist. They can help you with hormone issues.