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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About DarkIvy

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    Shopping, clothes, high end fashion, laughing really hard, being a couch potato, partying with my friends, sewing, cooking, art, playing with my kitties, Daniel Craig (yum), travel, writing, pretending to be married to aforementioned James Bond star, hanging out with the actual boyfriend, kicking butt and taking name, my job, other stuff.
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  1. Young Adults Section

    Oooh! I feel your pain on this one. I think it would be an awesome idea, I hope they seriously consider it!
  2. Legal Rights

    ^So then, in other words, celiacs, stay out of trouble!! It's funny that you mention it though, I was wondering about this the other day.
  3. No Power, No Food.

    Oh!! I just thought of something... in situations like this, sometimes they prioritize for people with the most need. Have you let the power company know of you dietary restrictions and that you need to be able to cook and store food? I don't know how it works, but maybe if they know that you can't just run to pizza hut and grab food like everyone else they might make you higher on the priority list.
  4. No Power, No Food.

    Oh my goodness... Have you tried getting some canned goods? Tuna, sardines, and simple rice crackers? Other than that I'm totally at a loss. That's really, really awful and I hope they get out there sooner than you expect. Good luck with everything, you'll be in my thoughts and prayers!
  5. Welp, it got worse this afternoon and the cramps and dizziness came back full force. I ended up in urgent care where they ran all kinds of tests and hooked me up to a hydration IV while everything was being checked. Long story short, I don't appear to be anemic, have blood sugar issues, or have an infection of any sort. They didn't seem to think it was a virus, either. Everything they checked came back normal. Finally, the doctor threw up her hands and said it probably was just gluten, and that sometimes pain can cause people to throw up and/or faint. I'm not feeling much better at all, but at least I know it wasn't something crazy... they even checked me to make sure I didn't have an ovarian cyst the exploded (has similar symptoms, evidently). Ugh. No more restaurants for me.
  6. Thanks for the response. Today I'm actually feeling much, much better. I still have my regular gluten symptoms though, of tiredness, D, brain fog, etc. I definitely don't feel flu like at all. I guess this rules out food poisoning or virus... It was just so weird. I'm still getting dizzy if I stand up too quickly, but it hasn't been nearly as bad. I'm not feverish or chilled. The stomach cramps have still been coming and going, but not anywhere as painful as their were last night.
  7. This isn't a recipe, but Gluten Freeda's makes a preformed gluten-free cookie dough that tastes just like the real thing. My favorites are the chocolate chip and the sugar cookies.
  8. A Question For The Ladies

    When I went gluten-free, I grew a couple of sizes. Even then I wasn't completely gluten-free (in college, in a sorority house, couldn't cook for myself) and now that I'm totally gluten-free things have gotten a bit bigger again. The first time around, I noticed a lot of soreness/tenderness. I never mentioned it to my doc, but I have a friend who says that breasts are like one big stress absorber and can start to hurt when you are stressed. I was pretty stressed at the time, but I'm not entirely sure I believe it.
  9. Earlier this afternoon I went to lunch with a friend at a local restaurant. They have some gluten-free options and advertise gluten-free bread on their menu, but it's still a burger/pizza place where CC is absolutely possible. I ordered a burger, no bun, cooked in a pan instead of on the grill with a side salad. Later on I went to work, and at around 7pm I went on break. I ate some food I brought from home, which I know was safe. Around an hour later, I was standing around (I work retail) with some of my coworkers at the counter chit chatting, when I started to get the worst stomach cramps I think I've ever had. I got a few waves of them over the course of about 10 minutes but figured it would pass. I don't remember exactly what happened, but it didn't pass and everything started to go black. I couldn't see much of anything and my two coworkers were asking me "oh my god, are you okay?" I managed to make it over to one of the chairs to sit down, and everyone was really worried. They even called the store manager and loss prevention because they had no idea what was going on. I got pretty nauseous, and had someone bring me a trash can. I never actually threw up, but I came very close a few times. I started sweating bullets, which is really odd considering that it's freezing cold where I work... but I mean, it was *dripping* off of my forehead. Five minutes later it switched and I got really cold, started shivering uncontrollably. Fast forward about an hour: I drove myself home, got straight into my PJs and have been having diarrhea every 20 minutes or so. I still feel really queasy and dizzy, and I have to stand up slowly. My limbs feel really faint, too. Typically when I get gluten, I feel tired, groggy, nauseous, get headaches, and have stomach cramps and diarrhea. However, I rarely throw up, and haven't thrown up from gluten in probably about a year. My diarrhea isn't usually this bad, either. The sweating and chills makes me wonder if I just came down with something, but I'm not sure. I'm only mildly achey, and that also can be a symptom of gluten for me. But also, I do remember that before lunch, I was sitting at my desk and I suddenly felt quite dizzy. I chalked it up to having just rinsed my somewhat clogged (but not abnormally so) sinuses and my equilibrium being off. Could it also have been food poisoning? Maybe I picked up a crumb on the cafe table when I was eating my safe food from home... does anyone else react like this? I just don't know if I should try and get in to the doctor or not. Mainly I'm just surprised at how severe and how completely sudden it was.
  10. Toe Walking?

    I always walked on my toes. My dad says it began when I was learning how to walk and he was so tall that I had to tip toe in order to hold hands with him when I was learning how to walk, haha. I had to consciously break the habit, but I think I still do it sometimes.
  11. It's funny, a while ago we were talking about this at work. Scary as it is to think about, I'm not really that concerned. The economy (and other things) will always experience ups and downs. Still, I think it's a good idea to have a few things on hand "just in case". Maybe not enough for a few months or even a month, but enough in case there's say, a big blizzard and I can't get out of the house for a couple days. It happens periodically.
  12. I shop at King Soopers (which is part of the Kroger brand) all the time... they're right across the street from me. I've never bothered asking about a gluten-free list or anything, but compared to other stores in my my area (Albertson's, Safeway), they've done a MUCH better job of having gluten free STUFF. Granted, they don't put the "gluten-free" label by the price on the shelf of a lot of gluten-free items, but they've got a gluten-free freezer section and a gluten-free section in the health food aisle, too. I appreciate the fact that they've gone further than almost any other regular grocery store out there. I tend to like them a bit better than Whole Foods, too. They're not so stuffy
  13. A lot of the Giovanni line is gluten free... except for the "golden wheat" variety I used them for two years solid and loved it. They may have a lighter sulfate in them somewhere, but it's listed in the middle of the list and I never had any problems, whereas traditional body washes and shampoos really make me itch so bad. I just checked, and my Tea Tree Triple Threat Shampoo lists an ingredient called Sodium C14-16 Olelin Sulfonate towards the middle-endish of the ingredient list. I have no idea what that is but it's the only thing listed that even resembles a sulfate. I do know I'm pretty sensitive to SLS and I've been using this shampoo for two years without any issues at all.
  14. A lot of people have already posted great advice, but I just wanted to say hang in there! A lot of us here, myself included, don't have a diagnosis. Like you, celiac does run in my family and I tested negative on both the biopsy and the bloodwork. Like someone else has already pointed out, just because you tested negative in the past doesn't mean you will this time. Also, since you've only been gluten-free for a short time, and not entirely with the mistakes you've made, if you could get some bloodwork done ASAP, you have a fighting chance of getting a real diagnosis that way. An endoscopy is a good idea too, even if you stay gluten-free for the endoscopy. This will allow them to check for anything else that might be wrong. Keep in mind that both the bloodwork AND the endoscopy for celiac are NOT completely accurate. There are many cases of false negatives but almost none of false positives. Just because the test results are negative does NOT mean that you don't have it. In the beginning I worried about not finding the support I need in the medical community because I don't have an official diagnosis. However, I've been lucky enough to have a physician who understands that celiac is hereditary and the tests are inaccurate and she treats me like she would any of her regular celiac patients. Whenever I've seen other doctors or specialists, I simply explain that I am gluten free and gluten intolerant. Gluten intolerance doesn't need to be diagnosed and other doctors have taken this seriously when I bring it up. If they ask for any elaboration, all I have to do is explain that there's a family history of Celiac but I tested negative, but that gluten makes me horribly ill. End of story. I've run into a couple people who still think it's sketchy, but honestly, the overall reaction has been fine. Truth be told it's basically been a non-issue for me. The biggest thing I've had to worry about is prescriptions, and depending on your insurance, you may be stuck with generics. If that's the case you need to call around and find a pharmacy that has a generic, gluten-free version of what you need. The pharmacists don't need a statement or anything from the doctor saying your medication needs to be gluten-free. In the beginning it is difficult for many people to tolerate all kinds of different foods, especially when you have such a bad case. Also, even if you don't make mistakes at all, it will take some time to get all the old gluten out of your body, and you may still have symptoms for quite some time. Such is the nature of the beast, unfortunately. It's different for everyone and I would expect with such bad symptoms, it may take you a while to get to a point where some of them stop. With all the intestinal damage done, your body may be having a hard time digesting many common foods, but this may not last. If I were you, for the time being I'd avoid all grains, dairy, and soy. Stick to plain meats, eggs, veggies and fruits for now. Bananas are an excellent source of carbs so if you are having a hard time adjusting, it will help you get some extra non-grain starch. Once you start to feel better, you can slowly reintroduce things like soy or dairy or rice and see if you can handle them. If you are feeling uncomfortable with seeing a doctor right now, then there really isn't any point. I agree some doctors can really be jerks about this sort of stuff. You know your body best though, so having a mental war with yourself over whether to get a diagnosis so they'll trust your or just not care is probably not worth it. If at some point you DO need to see a doctor about it, there's a doctor section on this site that has suggestions for doctors in different regions.
  15. Ugh, that's so scary. I'm so glad the Chicago Tribune is bringing a bit of light to this topic, though. That's huge! I've been wondering about some of the Whole Foods stuff for a while. It's a little bit misleading, as some of the stuff is marked gluten-free, but then you read the label and it may not necessarily be gluten-free. For a while, one of the WF I go to had gluten-free muffins baked fresh every day... in their bakery full of wheat and sitting right next to the gluteny muffins on the bakery shelf. I had some employee try to convince me that they were safe but I said I'd pass. The article pointed out something I've been wondering for a while myself: how does one interpret labels that say something "may" contain x and y ingredients? Stronger labeling would be nice. I understand that companies may not always know for sure, but a "may or may not" statement is going to deter someone with celiac or severe allergies anyway, so they might as well be more honest. Even "this product is very likely to contain x and y" or "not suitable for folks with the following allergens: ___" would be nice. It's almost like the "may contain" is so non-commital that it really can be interpreted either way. They absolutely should be more clear. Also, I think it would be nice if they could list barely, oats, and rye more clearly, too. Just because something is "wheat free" doesn't mean it is gluten free, as we all know, and I'm always wondering what's what.