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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About mat4mel

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  1. Anybody know a good pediatric GI dr in Pennsylvania? We are in NE PA but can drive a few hours if we need to.
  2. inmyhead, could you please tell me where you got those statistics-- my dd had both antigliadin igg and iga positive but all others were negative-- i did a lot of reading and it was over 95% chance of celiac with both of those positive. oh wow now i just read your email again and it says from your child's GI dr. that is very interesting-- i wonder what else could cause those #'s to be elevated? i have heard that the iga part is very specific.
  3. These menus sound great; I wanted to add that somebody mentioned Kraft's parmasan cheese and I almost 100% sure it has wheat flour in it (the kind you buy off the shelf in the green container). My dd can't have much dairy at all (little cheese here and there) AND no chocolate (usually has dairy anyway)... AND she is underweight, so I am having a hard time coming up with ideas to help her gain. Any ideas? breakfast-- peanut butter banana muffins (homemade), or van's gluten free waffles, or malt o meal's fruity dyno bytes with soy or rice milk lunch-- lunch meat, french fries, applesauce dinner-- peanut butter and jelly roll ups (heat corn tortillas in a skillet with margarine, spread peanut butter and jelly in the middle and roll up) snacks are usually some form of chips
  4. I am a bit confused about genetic testing. I have one child (almost 3 yrs old) that I suspect has Celiac; she has been gluten-free for 9 months-- she is better gluten-free but has other issues (she is not completely better-- she is having more testing done soon). In the meantime I had my other kids tested and they both had positive IgG but negative IgA. I put them all on the gluten-free diet for these 9 months. I expected my eldest child (7 yrs) to have a big growth spurt gluten-free-- because he is small for his age. But he has grown very little these past months. He never had symptoms and neither has my 4 yr old (who is of normal height and weight). I am feeling very guilty about keeping the older two gluten-free when I feel they probably do not have celiac. I am not one who thinks everybody in the world should be gluten-free. I keep wondering if genetic testing would help me figure out who to keep gluten-free. I will probably keep a gluten-free house while my 3 yr old is small but wouldn't be strict with my other kids when they went to friends houses or other places. I read Danna Korn's book (sorry if I am misspelling her name)about Celiac kids and it sounded to me like genetic testing might be useful.. she said if you have one of the two genes there is only a 30% chance you WON'T develop Celiac... that means if you DO have one of the two genes, you have a 70% chance of having Celiac.. right? Or is not that simple? I know Enterolab tests for other genes-- is it possible to have Celiac and have one of these other genes? Somebody please explain this to me? I am feeling somewhat desperate right now. This is all very difficult to sort out. I also have a 4 month old baby that will stay gluten free while she is a toddler (maybe longer)
  5. Renee, my dd's story is very similar. Around the age of 2 she had loose frequent stools exactly as you described. She also had positive igg and iga at her ped's office but he did not run the endomysial antibodies. We couldn't get into the ped gi dr for a few months, and decied to go ahead and put her on a gluten-free diet. her poops improved a great deal after the gluten-free diet.. also eliminated casein (milk protein) at the same time. Although her poops ar estill not formed at all and I suspect there are several food sensitivities. She still is very sensitive to milk protein. Our ped GI dr ran the endomysial antibodies after being gluten-free a few months and it was negative but he said her total IgA was slightly low so the endomysial antibodies being low was not very reliable. He recommended teh same thing-- do a gluten challenge and endoscopy. We aren't sure if we are going to do that yet. We keep going back and forth. I am pretty sure celiac is in our family because of some of the family history (nobody has been dx'd with celiac, but there are some people with symptoms) so I am hesitant to reintroduce gluten back into her diet right now. I hope I didn't confuse you any more than you probably are. Excuse my typos if there are any-- I am holding my newborn while trying to type. Mel
  6. Renee, Yes, fatty stools is a major symptom in kids with celiac. My 2 1/2 yr old dd had frequent greasy (and mucusy sometimes too) looking stools until gluten-free diet. So your child is on a gluten-free diet? Is that helping at all? Mel
  7. I totally know where you are! I have a 2 1/2 yr old, who also has low IgA and neg ttg. Did they also run the anti-gliadin antibodies? That might help, maybe not though with the low IgA. Anyway, I keep going back and forth on the endoscopy issue. Seriously-- one day I will be okay doing the gluten challenge and biopsy, and then one day I am set on just sticking to my instincts (that tell me she does have celiac). I have heard too many stories of kids having negative biopsies, only to be found to improve greatly on the gluten-free diet. Sorry, I am not too much help, but there have been several people in your same situation. It is a really tough one. Is your husband supportive? Mine is very very supportive. So is my family (parents, siblings). But his family, the ones that I suspect the gene is coming from (his mom has all the symptoms but is in denial, and my husband and his brother had symptoms as children) think I am complete nut! Mel
  8. To the OP-- I totally know how you feel.. My 2 1/2 yr old was having horrible bowel movements and not gaining weight well (she is still small at 23 lbs) and in April, the GI dr appt was scheduled for July!! I was thinking the same thing.. shouldn't this be an emergency? Argh! Your story rang a bell with me, because my husband AND his brother, as children, were sent to an endocrinologist because of their small size (my husband was measuring 2 years behind what he should have).. back then they didn't test for Celiac. I am still in the figuring-out stage with my family. My 7 year old son does not have GI symptoms but is very small for his age. Then my 2 1/2 yr old had obvious GI symptoms with an elevated IgG and IgA. Mel
  9. Craving milk like that (and drinking such a large amount) sounds to me like an allergy. Like someone else said, some people actually crave the thing they are allergic to. I would definetely cut out the cow milk for a couple of weeks and see if that makes a difference-- in fact, cut out all dairy and see. Mel
  10. Be sure to get copies of the test results. Sometimes dr's will say negative when they are only mildly positive (sounds crazy, but it happens). Mel
  11. Sorry I haven't replied sooner. My dd had diarrhea for 4 months before going gluten-free/CF. She has been gluten-free/CF for 4 months now. She does not play with play doh or glue. Sometimes she colors with crayola crayons, but I am pretty sure those are gluten-free. Mel
  12. Pasta

    I love Tinkyada.. I really don't think it's that much different from wheat pasta. The color is a little different. Be sure you are cooking it in a lot of water. Mel
  13. Hi, From what I have read (and I'm not an expert) I think that the ttg IgA is *the* most accurate for Celiac's.. so it being a strong positive, I would say he definitely has Celiac. What about his biopsy-- they said it was not celiacs, but gluten allergy? How do they tell the difference? I am just curious because I am debating whether or not to do a gluten challenge and biopsy with my 2 1/2 yr old. Mel
  14. That's a good point. I thought already that I would make sure the bread had no dairy. But I didn't think about yeast. She tolerates eggs just fine. Pasta would be easy because they like rice pasta and the brand we buy seems so close to regular wheat pasta. But they don't eat much at a sitting whereas I know they would gobble up a whole sandwich. As for your suggestion Tarnalberry, I am thinking about the biopsy because I want to be sure there is nothing else going on down there.. especially since she hasn't improved completely on the gluten-free diet. Mel
  15. Just out of curiosity-- why pasta and bulgar and not bread- because they have less gluten? I am curious how I should do the gluten challenge if I do-- build up slowly or just start giving them one sandwich a day?