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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About bjshad

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  1. Hi - I have a question about Enterolab's stool IgA anti-gliadin test. I was reading about it yesterday and came across a message during a search that if a person is constipated - probably severly constipated that it could cause a false postive. My 3yr old daughter took the stool test and it came back with an IgA level of 62. So, my question is, she was constipated, and in addition, she is not potty trained. I had to use the contents of her diapers and in order to get enough stool for the test, I had to collect it over a 3-4 day period. So there were probably a total of 4-5 total stools in the sample I sent it. So would this skew the test in some way? We're going to have persue an actual celiac panel test for her. She's back on gluten and we're going to go the medical route for an actual diagnosis, but I was just wondering if all the stools in her test could accumulate antibodies and create a false test. The Enterolab website says it's okay to collect several stools for an infant from diapers, but she's not an infant - she's an older child. So that's why I'm wondering. For adults and older children, just one stool is collected, not 4 or 5, so that's where my question arises. Anyone know? Thanks! Beth
  2. You son sounds EXACTLY like my 3-1/2 year old daughter! Refulx as an infant, then full-blown, out of control asthma at age 2-1/2, sensory processing disorder and ADHD, motor delays - my daughter also has a speech delay due to her motor delays and has low muscle tone. She also caught RSV at age 2 from daycare, which is what sealed the deal for her full-blown terrible asthma. Anyway, we had IgE allergy tests run for her prior to Enterolab testing. She has an IgE allergy to milk and eggs and then we only had the IgA anti-gliadin stool test through Enterolab done for her and it came back positive with a score of 62 after being gluten free for a month. She also has neurological symptoms to gluten. Her speech slurs, she gets "clumsy", is more "fuzzy" - I honestly believe there is a connection with the whole sensory processing/ADHD/asthma/motor delay thing and gluten. I've read it SO MANY PLACES by SO MANY EXPERTS in the sensory/developmental world. There seems to be a genetic link between the whole thing, like a syndrome of some sort that encompases these issues. They all fall under the autism spectrum diseases - but that's not saying your son or my daughter is autistic - my DD doesn't meet the criteria for autism, and it sounds like your son doesn't either, but the asthma, sensory issues, ADHD, gluten intolerance issues all fall under the same root causes as the spectrum disorders. There's a excellent book that explains all of this by Kenneth Bock called "Healing the New Childhood Epidemics: Autism, ADHD, Asthma and Allergies: The Groundbreaking Program for the 4-A Disorders" - this book explains the connection with all of these issues, including the gluten sensitivity and how it can contribute to ADHD and sensory processing issues. I LOVE LOVE this book. Anyway, I think you are on the right track with the gluten thing. Hope that helps some- Beth
  3. I have a question about IgA anti-gliadin antibodies. My 3-1/2 y.o. DD has a positive IgA anti-gliadin stool test through Enterolab. Her score was 62. We have had her gluten free for 3-4 months, and now want to follow up with trying for an actual diagnosis, so we are putting her back on gluten for awhile. Anyway, about 4 days in and her poor little rear is so red from all the stinky poos - it's actually bleeding it's so irritated! I know that's too much information, but her speech is slurring now, her tummy is distended and HARD AS A ROCK and her rash on her arms that the doc said was "eczema" is coming back. Ugh! Anyway, is an IgA an auto-immune response? I guess I don't really understand what the Enterolab test is telling us, although the website explains it clearly as gluten sensitivity. Is gluten sensitivity something that can be helped with digestive enzymes? Or if a person has gluten sensitivity and continues to eat gluten it will eventually develop into celiac or another autoimmune disease, such as Diabetes I (which runs in my immediate family, by the way, as does Lupus). If anyone could explain what exactly an IgA anti-gliadin antibody response is, I would be so appreciative! Thanks! Beth
  4. Hi - I have a question. I have a 3-1/2 year old daughter with sensory processing dysfunction, leaky gut, and a positive Enterolabls stool test for IgA anti-gliadin antibodies. We've had her gluten free for several months now, and if she gets ahold of gluten, I don't really notice that much difference, other than stinky poops, but no other real issues that you'd think would go along with Celiac. I would like to have her take some blood tests for Celiac. We are also going to have her tested for diabetes 1 and liver function tests as I understand either one can cause a positive IgA anti-gliadin test. So, my question is how long does she need to be on gluten before we can have these tests done? She's been off gluten for about 3-4 months now, so not a super long amount of time, but I want to know for sure what we are dealing with here and I know she will need to be on gluten for the tests. Also, because of her leaky gut and sensory issues, will using digestive enzymes to help her digest gluten interfere with blood tests? Does anyone know? Thanks so much for any help you can give. Beth
  5. I do. I don't have an official Celiac diagnosis, but I have an IgE allergy to wheat and rye and I have neurological symptoms when I eat gluten. My DD is confirmed gluten sensitive. She has neurological symptoms as well. Due to my neurological symptoms to gluten, I am going to take this as a confirmation of gluten sensitivity, in addition to an IgE allergy - so no gluten for me, even without an "official" diagnosis. I have asthma, so when I eat gluten I have trouble breathing, so that alone is enough to keep me off gluten - but when you add in the neurological symtoms, it's definitely a confirmation for me. Mine are similar to rheumetoid (sp?) arthritis, brain fog, confusion, tingling in my legs, muscle and joint pains. My DD's are (she's only 3) - diminished response to pain, a worsening of her speech delay, acting "drunk", loss of coordination and balance. We also both have GI symptoms as well, but we both definitely have neurological symptoms. She actually has diagnosed neurological developmental delays - don't know if they are specifically caused by gluten sensitivity or if they are "enhanced" by gluten, but they are greatly diminished when she's off the "evil grain". Beth
  6. Hi - I'm needing some 2nd opinions from someone outside the medical community who is knowledgable about celiac/gluten sensitivity. My 3 year old DD has taken the Enterolab stool test and tested positive for gluten sensitivity. She has had a great reaction to the gluten free diet, inlcuding a rash that she's had for over 2 years on her arms and legs finally going away after going gluten free. So the other day I get an IgE allergy blood test. The test comes back positive for allergy to wheat and rye. So in light of DD's positive Enterolab test, should I order one too? Here's my dilema - do I really need one? I have a confirmed allergy to wheat and rye, a DD with gluten sensitivity, and my reaction to eating gluten-containing foods is diarrhea, severe arthritis like symptoms, achy and stiff muscles, brain fog, cramps, and one time after being gluten free for several weeks I ate quite a bit of gluten-containing foods and by the next day I was so sick that I couldn't even hold down water and everything from the other end was completely liquid, if you catch my drift. I called a GI at the doctor's practice I go to - they won't even see you without a referral. My insurance doesn't require a referral to see a specialist - I get so sick of telling doctor's offices this - I'm just sick of dealing with doctors right now. I'd rather just go with Enterolabs, if it's even necessary at this point. So, given this, does anyone think I should order the Enterolabs test? My symptoms are pretty consistent with gluten sensitivity at the very least - would you take the test or just go with what you know, given I have an IgE allergy to wheat and rye and need to avoid it anyway? Thanks- Beth
  7. Test Results

    Soy is my though too. I looked at your signature and I'm allergic to dairy and egg and also soy. I've read that the dairy and soy allergy tend to go hand-in-hand. It's terrible to be allergic to so many things - I'm not sure if I'm celiac or not, but I am allergic to wheat, rye, egg, dairy, soy and garlic. Really cuts down on food choices. Hope that helps a little and that you get it figured out soon. Beth P.S. I just had lunch...gluten-free pasta, albacore tuna, Grapeseed Veganaise, & Mrs.Dash....My belly swelled up like I am pregnant and I'm all foggy headed and shaky.....What the heck is wrong! I called my Dr. because I know what's coming next...I go in tomorrow at 8:30...SOY?!? Maybe? Any Ideas?
  8. Hi - I just wanted some comments - I have a 3 year old daughter who had a positive Enterolab test result for IgA anti-gliadin antibodies, a rash that she had on her arms, legs and cheeks that went away after going gluten free, a very positive result on the gluten free diet. She has sensory processing issues that have greatly improved since going gluten free. Her speech has improved incredibly since going gluten free. She has the gut issues - the smelly bulky stools when she gets glutened, multiple food allergies, short stature, etc. etc. - all very strong signs of celiac, but we never had the biopsy done. She's gluten sensitive at the very least, most likely celiac. Anyway, since gluten sensitivity is genentic, I've always thought it ran in my side of the family vs. my DH's because of various symptoms of various family members. I have some signs of gluten sensitivity myself, but haven't had any tests. Until now. Although I didn't have an actual test for gluten sensitivity or celiac, I had an IgE food allergy blood test run last week and just got the test results back. I'm allergic to wheat and rye! So, would you go for an actual celiac test then? Or maybe Enterolab? I haven't been totally gluten free lately. Haven't had much, but enough probably. Obviously, since I'm allergic to 2 foods containing gluten, I need to avoid them anyway - I have asthma that has been pretty bad lately, that coincides with my eating gluten. So I know it flares up my asthma. I've had to go on steriod inhalers for it and am having trouble breathing. So, does it really matter if I have celiac or just an allergy? Either way, I need to cut it out because I can't breathe! What would you do? Also, on a side note - I'm just as allergic to GARLIC! UGH!!! Why - why - why??? I LOVE garlic! Oh well. Beth
  9. Oh, how long after eating something they shouldn't do your kids end up with symptoms?
  10. Thanks for the reply - I wish I would have thought at the time that it was related to gluten, because then I could have had it biopsied! Oh well. At least it's gone. And she's gluten free now so I guess it's a mute point, but just wondered about it. Beth
  11. Hi - I have a question about DH rashes - My DD is 3 and has had a positive Enterolab test and a very positive reaction to the gluten-free diet. She also had a rash on her arms and legs since she was a baby, that was chronic and never went away until she went on the gluten-free diet and now it's totally gone for the first time that I can even remember - her doctors always said it was eczema. It didn't look like the pictures I've seen of DH, but I know for a fact that it was caused by gluten intake because the only time it went away was when she went off gluten completely. And she's always had blotchy-looking skin, and now it's nice and healthy, not blotchy, not rashy, just nice and rosy. So, does this sound like it could have been DH? I'm sure gluten could have cause eczema too probably - and she never really itched it, so I don't think it was terribly itchy. Thanks! Beth
  12. I have a 3 year old daughter and we've been gluten free (as a family) for a couple of months now. The biggest mistake I made in the beginning was thinking that we had to have substitutes for everything we ate prior to going gluten free, such as bread, crackers, muffins, pancakes and whatnot. My DD HATES gluten free bread! We've tried just about every brand and mix we can find - and I admit, some of them are pretty gross. I bought a lot of cookbooks and specialty flours, tried making bread, tried eating like we did before, only substituting. Yuck. The biggest help was changing my thinking. We now eat foods that are naturally gluten free without having to substitute. Rice pasta is good though. And now we use corn tortillas instead of the flour ones, but that's not a "specialty" item. Lunches have been the biggest challenge. I'm at home with the kids full time, so I just cook at lunch like I would at dinner and not rely on sandwiches. Fruit is good for snacks, or tortilla chips with bean dip, or celery and peanut butter (if you can have peanuts), yougurt if you can have dairy. I think the biggest thing for a 3 year old is not to think that the gluten free specialty items are going to "fool" them into thinking they are getting what they are used to. They just don't taste the same. Lays plain potato chips are gluten free - and if you can have dairy, there's always ranch dip - you might need to make your own or just make sure the one you get doesn't have anything in the spices that contains gluten. My DD is also allergic to dairy, soy and eggs. So we've gone gluten free, dairy free, soy free and egg free. Quite a challenge, but I'm always surprised at how many good things we eat are naturally free of that stuff anyway. But we have to cook it ourselves most of the time and not rely on pre-packaged or processed food. A big pot of chili is always good too. My favorite cookbook is The Gluten Free Kitchen by Roben Ryberg - it has a really good gluten free fried chicken recipe in it that is really, really good! And I use it to make chicken nuggets for the kids and they love it! I've used it for homemade fish sticks too and it's really good. Hope that helps some. Beth
  13. Thanks for the reply - I made an appointment with a pediatric neurologist on July 10th. I definitely agree it's something I should have checked. Hopefully we'll find some answers. Thanks again- Beth
  14. Hi - I have a question maybe someone can help me with. When my 3 year old daughter was an infant, she had terrible reflux. She was put on liquid Zantac at 2 months old. At the time, I was concerned about the fact that it had alcohol in it, but we thought it was necessary because she was visibly suffering and the Zantac did help. Anyway, I looked on Zantac's website, and they have now introduced an alcohol-free effervecent tablet that is SAFER for infants! Does anyone know if the alcohol in the original liquid just so happened to be grain alcohol? As in, with GLUTEN? My daughter has hypotonia, and I've read in several sources that celiac and hypotonia (along with asthma/ADHD/sensory issues) all go hand-in-hand in some cases and my daughter has all of the above. What I'm trying to figure out is if the hypotonia is a celiac thing - or if it's something else. I'm trying to figure out her earliest exposure to gluten - I fed her oatmeal infant cereal and barley cereal at 4 months, so I know for sure she was exposed to gluten beginning at 4 months old. But if the alcohol in the Zantac was actually grain alcohol that contained gluten, that would explain a lot. Her hypotonia really became apparent around 3 or 4 months old, when most babies start to move around more - she has always been floppy though, even before that - and she was breech, although I had a c-section. I remember she rolled over at 3 months old, but after that, her physical development (muscular) slowed down substantially - she never did crawl - she belly flopped or inch-wormed everywhere and when she layed on her tummy, her legs were always splayed out. She didn't walk until 22 months old and we actually had braces made for her legs to help her walk, but she started walking on her own before her braces came in. She still walks with a very wide base - she walks with her feet pointed out and her legs farther apart than most kids. She has trouble with stairs - she definitely has mobility issues. She is receiving physical therapy, so we're getting help for her. She gets occupational therapy as well. Her hypotonia also includes the muscles in her mouth, so she's getting speech therapy as well. I'm wondering if the celiac/hypotonia/ADHD/asthma thing could explain this degree of hypotonia? Or does it sound like a mild form of cerebral palsy? Anyone have any advice? I've talked to her therapists - they think I should not be so hung up on a diagnosis, because the therapy she recieves will not change - she's getting all the therapy the school system offers, so it wouldn't make a difference if she was "labelled" or not. It would just give me peace of mind. Any thoughts? Thanks- Beth