Hi all, I'm new to the forum.
I'm still going through the process of diagnosis, just had the blood tests last week, but I've suspected this for a VERY long time, and it runs in the family, apparently. When I talked to my doctor, he said his money is on this, too. Whatever the test comes back, I've decided to stick with the gluten free diet I started last week after the blood was taken.
I've had a lot of lethargy and anxiety attacks for years, extreme difficulty sleeping, abominable abdominal pain, the... errr... other problems with the bowels... menstrual problems (not to gross the guys out, but I'm having my first cycle without severe cramping right now in YEARS, and I think it must be the gluten free diet!)
When I started researching this further after discovering my aunt has celiac disease, other symptoms became apparent- like painful walking. Apparently you can lose the fat padding on your feet with this (???). Despite being overweight elsewhere (very upsetting, since I used to be VERY athletic) I can easily feel the bones in the bottoms of my feet- walking feels like I'm being stabbed from the inside out. Even gel insoles don't help with it. Exercise was extremely difficult until we got an exercycle that our pastor gave to us- that really helped with the walking problem. ( I wasn't just being lazy! I do 14 miles a day on the bike! But I had even been convinced myself that if I would only buck up and take my mind off things, I could push through and do it.)
I've also had pain in my leftside ribcage for YEARS now, and upmteen zillion scans and tests and who knows what trying to find out what it was- no answers. Just lots of tests we couldn't afford that told us NOTHING.
I think pregnancy must have been my stressor- I had two children, and some miscarriages. It was after the first miscarriage (which was also my first pregnancy) that the extreme fatigue etc started setting in. It's been perplexing, and my husband and I didn't know what to make of it. I'm NOT a lazy person, but over the years I've been doing less and less and getting overwhelmed with things easily.
I've dealt with people calling me a hypochondriac, complaining about how I never feel good, that I make up things so I don't have to go out and do things with people. It's been very, very hurtful, and I was feeling like the more I tried to explain myself, the more it sounded like excuses, and the more accusations came. My house is quite a mess, and some visitors I've had have said things about it. It's not because I am a slob, because I'm a neat freak, honestly, but because I simply am too tired and in too much pain to do much about it.
I'm hoping this will all change soon!
Now, good things...
Since going gluten free (and I know it's only been a little over a week...) I've been forced to eat more healthful foods, and be more conscious of what I am putting in and on my body. I lost 5 lbs already!!!
I'm starting to feel a little more pep and energy.
My arthritis pain has been cut in half, and I've made some small progress on the house.
I have a feeling things are only going to get better from here, and other things will be remedied in good time, too.