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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Kayleen007

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  1. Over the last few weeks or so, I've had a few bouts with incontinence (with diarrhea). I didn't even feel like I had to go or anything like that...I basically just crapped on myself with no warning or anything. Awfully romantic, isn't it. Has anyone else had this problem??
  2. Okay..maybe I'm just too spazzed into trying to find out what is really wrong with me. I'm just so damn tired of being sick. But I was diagnosed with IBS about 10 yrs ago (also saw on my medical records that I could have Inflammatory Bowel Disease...anyone know the difference in that and IBS?) Anyway..what exactly are the differences, symptom-wise between IBS and Celiac? As I mentioned in a previous post, I can't afford to see a doctor to be tested for Celiac..can't afford that other one, the one that tests your stool by mail, the name escapes me. So..is there anything I should look for that would make me think it might be one or the other? I am on the gluten-free diet. Just started that about a week and a half ago. But it's not helping yet (and I know that can take a long time), and EVERYTHING I eat right now is making my intestines go crazy...so I can't narrow it down by foods. Any other suggestions??
  3. Probiotics

    So....just to make sure I have this right..Acidopholous is a probiotic, right? I used to take that a loooooong time ago when I was first diagnosed with IBS and the doctor told me I didn't have any good bacteria in my system at all. But the Acidopholous didn't make me feel any better, so I stopped taking it.
  4. I ended up having to go to the hospital for the apple incident. They loaded me up on Morphine, though that didn't really help much. For those who have asked..I had a gi doctor when I lived in Texas..but haven't been able to afford to find one here. I don't have any insurance. I used to be on levbid, flexeril, and bentyl. They never did much good for me. Donnotal doesn't work much either. A combination of flexeril and vicodin generally make me feel closest to normal. The doctor said it's because the codein in vicodin generally makes people constipated, but for people like me it slows the system down for you. I think the hardest thing about this is I don't even know if I have Celiac's disease...and I can't afford to find out! So sometimes I feel like I'm fighting a useless battle because I'm trying to do all this diet stuff and I still feel like crap and then I think you're wasting your time if it ends up you don't even have this disease. BUT..here I go anyway. So..I guess I'll try rice (I've noticed a lot of flavored rices have gluten in them, so I assume just white rice). Cooked veggies and maybe a banana. I had just gotten excited to find I could still drink Cokes in another thread..but maybe I ought to get rid of them. Which brings me to another question. I drink Mt. Dew and it doesn't give me the shakes or make me pass out..so why would the sugars in an apple do it? Also...VAGuy..where in VA are you because I live in Va, too. Maybe you could help me find someone if we're in close areas. Hmmm...okay, I think I touched on most of the topics..sorry this was so long.
  5. I don't know what to do anymore. I just started the gluten-free diet maybe a week ago. My symptoms have gotten so much worse over the last month. Attacks where I couldn't get up off the floor for a few hours because I would pass out if I did. Now I can't eat anymore. This has happened before. No matter what I eat, I get horrendous cramps, hot flashes, diarrhea, anxiety as well. I just tried to eat an apple and I couldn't make it even half-way through the apple. Someone please help me!! Does this happen to any of you, too? And what do you do about it?? I feel like I'm just plain going to die!
  6. I'm not sure if this is the right forum to post this in..but I'm sure it'll get there. I have heard probiotics being mentioned a few times in various posts. Can someone explain to me exactly what they are. And is this something I need to be taking on a regular basis?
  7. First off..I don't even know for certain if I have celiac disease. I have been diagnosed with a few other things like Irritable Bowel..but when I had a horrible attack at my father's house (and it was not long after I ate a bunch of French Toast) he said it looked and sounded like celiac disease (a friend of his has it) and gave me this website to go to. And it sounds exactly like what I have. The thing is, I don't have the money (and no insurance) to be tested. So..I've just gone completely gluten-free. It's only been about a week, and for the first few days (even now) I was still getting the hang of it. Exactly how long should it be before I start feeling even a little better?? I've had a few severely bad attacks in the last week. I know that depending on the damage to your intestines, it could take a while before you feel better. But exactly how long should I give it before I start to think that maybe it's not celiac disease? Any suggestions??
  8. Oh wow that's great!! Thanks you guys!
  9. Ok..I've been dragging my list with me everywhere and checking everything in my house. The two things that look safe, I'm just not certain are peanut butter and mayonaisse. I believe the peanut butter I use is Jif..and I use real mayonaisse not Miracle Whip. Also..I'm soooo confused on some of these items like the caramel coloring thing in drinks as to where if it's made in the US it's safe and if it's not it probably has gluten in it. I'm so confused as to what I can drink. Can I drink Coke and Mountain Dew?? Ughhh..I'm so tired of apple juice because I have no clue what out there in the form of cokes I can drink. Somebody help!!
  10. So, if it says these things on the ingredients label..I should stay away from that food, too right? Except the starch I can call the company and ask what type of starch. So..with the wheat thing in the shampoos and stuff..if in the ingredients the word wheat is used at all..even if it's not saying wheat gluten..does that mean I should stay away from that item as well?
  11. Thank you guys for answering. This really helps. I have one more question about reading labels (which is basically what I've been doing anyway to be safe). The obvious ones say wheat gluten or gluten. Is there anything else that I need to be looking for. Or if it doesn't say one of these two things does that mean I'm safe? I had found something yesterday (I can't remember what it was now) that I thought would have gluten in it, yet it didn't have either of those things in the list of ingredients..it also didn't say gluten-free. So...anything else I need to check in the ingredients before I chow down? And I know I've heard some people say things about processed foods..and that some cheeses are dusted with flour and can't be eaten...will these foods say gluten in the ingredients..and will the shampoos/soaps and such have gluten listed in the ingredients? Sheesh it's a lot to look for, lol. Cynthia
  12. Ok..from reading these posts I've found there are a lot of things to stay away from. Shampoos?? I'm new to all of this, so can someone point me to these lists you keep talking about that will ease the confusion as to what I can and can not eat or use or whatever. Something preferably that is as simply as don't eat bread, eggs, waffles, blah blah blah. And is it entirely necessary to also get rid of dairy? I'm just overwhelmed at what I'm finding I CAN'T eat..I don't have a single thing in my house that is gluten-free...and ugh..can't go to Taco Bell or Sonic. Okay..deep breaths. Anybody that can help with a list of do's and don'ts I would appreciate it.
  13. I have almost all of the symptoms listed for Celiac disease. But I also have a few things that I'm not sure if it would fall under this. Stress, smoking, and medication (mainly antibiotics) just tear me up. It doesn't make sense that these would fall under Celiac..does anybody else have these problems?? Most of my problems are generally right after I eat..but sometimes they come out of nowhere. And I don't generally have any really bad problems when I'm sleeping. 99% of the time it's when I'm awake. Any thoughts on this??
  14. Well..to make what could be a horribly long story very short, I want to get tested to see if I have Celiac disease. I have already been diagnosed with IBD (the we have no idea what disease you have disease) but nothing helps. I have all but one of the symptoms listed on here for Celiac disease. But because of all of my diagnoses I've had...I'd like to know for sure or not. So...where can I get the blood work done? Do I have to see a gastroenterologist? Can I go to a lab? Can I go to a doc-in-the-box since all they have to do is draw blood? What about the health center. I just really do not have the money for this, so I'm looking for the least expensive, but also realiable way to get the testing done. (And I really don't want to do the biopsies. I've had to do that for the IBS, diverticulitis, and hmm..maybe you have Crohn's diagnoses, and that's always hurt horribly for me). Any suggestions would be highly appreciated!!!