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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Michelle1234

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  1. This is from a post back in 2013. The only think I do now is Enzymedica Digest Spectrum and Acid Soothe after dinner so as not to get GERD problems at night. But here are the supplements that fixed it all. Here is a link to the the original thread: After about 5 yrs eating gluten free I developed massive food allergies to everything I ate. I had been following this forum for pretty much the entire time and noticed that alot of other people developed them also. Fortunately I have a great Dr. who did some tests and put me on some suppliments (over the counter) that solved it all. For any one who is interested but perhaps doesn't have access to good Drs. or can't afford the $1000 test here is what I started taking: Allimax - contains Allicin is an organosulfur compound obtained from garlic 2x per day for 8 weeks. Candibactin-BR - From (Company Name Removed - They Spammed This Forum and are Banned) 'CandiBactin-BR provides extracts of herbs including berberine-containing plants to support healthy immune, detoxification, and elimination functions. Featuring berberine hydrochloride and extracts of Oregon grape and coptis roots, the formula encourages a healthy intestinal environment and supports detoxification function of the liver and gallbladder. A proprietary extract of Chinese herbs-including ginger, licorice, and skullcap-harmonize the action of the other herbs within the formula. Product Review as Follows: "I am using this in conjunction with other supplements to clear up a candida problem. Working well. I will keep this handy for maintenance once things are cleared up."' 2x per day for 8 weeks. Both of the above with food and Ok at the same time. These were to wipe out bad yeast in my gut. To be taken NOT with the above: Ultra Bifidus DF - A probiotic supplement featuring a specially cultured, highly viable, pure strain of the beneficial bacteria, Bifidobacterium lactis. 1/2 tsp per day Saccharomyces boulardii - From webMD "Saccharomyces boulardii is called a "probiotic," a friendly organism that helps to fight off disease-causing organisms in the gut such as bacteria and yeast." My dr. explained that it was a replacement for the bad yeast that the above were killing. From the NOW vitamin description. " Saccharomyces boulardii is a probiotic yeast that survives stomach acid and colonizes the intestinal tract. It promotes the health of the intestinal tract, helps to encourage a healthy gut flora balance.** Saccharomyces boulardii has also been shown to support proper gastrointestinal function during a disruption to the normal balance of gut flora.** Manufactured by Now Foods." 3x/day I now just take a maintenance dose of Allimax and Candibactin BR. But I haven't consulted with the Dr on this. It just seemed to me that when I dropped these completely I eventually started getting stomach aches again after eating. When I take them I'm fine will all foods except of course gluten. I ended up not continuing with the UltraBifidus DF or Saccharomyces Boulardii beyond the intial doses largely because I'm lazy and I like the Pearls probiotics and the Enzymedica Digest Spectrum because they are an easier form for me to take. I hope you get your problem cleared up. I wasn't going to accept not being able to eat any dairy, eggs, some meats, some vegetables, some fruits etc. It would have been a very unhealthy and restricted diet long term.
  2. Op, I'm going to go against the grain in this thread and suggest you stop eating gluten now, today. You are in horrible shape. I mean like really wrecking your body. Your digestive system is so messed up it doesn't know what to do with it self. That is why you don't react to individual foods or meals, you are reacting to everything. Likely the intestinal wall is completely destroyed so whatever you eat is going right through it whether it is gluten or not. It will take you years to straighten this out. If it is gluten, stop poisoning yourself. Lead pain chips are sweet. But we all know ingesting lead is not good for us. We don't go around sucking on the chips because we like the taste of sweet. Antifreeze is sweet, syrupy and similar to soda, juice and other sugary beverages. But do we suck down a cup at every meal just because it tastes good? Nope. And this is the way you will come to regard gluten once your body starts to straighten out. Your mind starts to think of it as poison. At least if you have a mentally healthy mind that is what it does. If there are other issues going on then you can go the way of people who intentionally hurt themselves to self sooth, get attention etc. But it sounds like you have strong motivators to be healthy for your kids. Once you get in the proper mindset gluten=poison then the diet is super easy. When you look at an item practice seeing a little skull and cross bones symbol stamped right over the top of it. The hard part will be tracking down all the sneaky sources of gluten, like your old mixer that you love that you got from mom that has gluten embedded in the nooks and crannies and it can't be gotten out and needs to be replaced. So on to symptoms. I had all loose teeth, and a sharp pain in my chest beneath my breast bone. I went to the emergency room for the sharp pain. I had all the heart attack tests done. Went to a holistic Dr. when they wanted to put me on acid blockers but I didn't see any test results that indicated I needed that and was diagnosed. So I never got to your horrible state of health. The difference between you and I is that you have gone years eating something that is poisoning you. But how did I get it? I had a stressful event at work and had just bought 3 boxes of Ritz wheat crackers at Costco. I mindlessly ate a ton of them, close to two whole boxes at one sitting. I have since read that stress can cause it to develop and certainly that binge of crackers could have sent it over the edge. When I first started eating gluten free it made no sense to me because I did not have digestive upset, bloating, cramping, diarrhea, gas or any reaction to anything I ate. As I cleaned the gluten out of my diet I started to get reactions. I went to the Dr. to complain about this and he said it was typical. When you eat gluten all the time your body is constantly inflamed and at battle with the gluten. When you stop eating it the reaction calms down. Then when you eat some again the body reacts back because it was happily healthy and now the immune system is being attacked again and it has the energy to fight back. Since then I went through what I now know is pretty typical of a gluten free diet, developing allergies to everything I ate. I was eating too much processed gluten free stuff with all the chemicals and fake this and that. So I went back to the holistic Dr. who gave me a bunch of supplements, bad yeast fighters, good yeast replacement, digestive enzyme this and some other stuff which got rid of my new dairy intolerance, meat allergies, veggie allergies etc. So now I'm back to being able to eat all but gluten, msg, xanthan gum and all fake sweeteners. Even though xanthan gum is in almost all processed gluten free products, even that is easy to eliminate by getting products from a few companies, Simple Mills for baking mixes, crackers, & cookies and Against the Grain for pizza, breads, bagels. I also like Kinnikinnick white bread. I remember going to my regular Dr. a few months after diagnosis and after I told him about the gluten free diet, he got a look on his face and said, isn't it really hard? I said nope, super easy. There are replacement products for everything. And that was back in 2007 and now there really are alot more replacement products that taste alot better. It sounds like your biggest challenge is changing your mindset. Start telling yourself that a gluten free diet is very easy. You can get anything you want. Don't forget to mentally stamp a skull and crossbones over everything with gluten in it. You have a choice here. You can live a hard resentful life, longing for something that will kill you (sort of like heroin or meth) or you can take good care of yourself and take the easy road by eating what is healthy for you and be at ease with it. Good luck!
  3. Basically I do not know how to cook. I need to lose weight for my health. I have to eat gluten free due to celiac. I have tried 6 week body makeover years ago which was very successful but ultimately too difficult to stay on long term. I looked into weight watchers but know with my personality I won't count the points. I have an UP MOVE fitness tracker. In perusing around on the UP Move app I came across PlateJoy. It is a recipe/shopping list service. You take a quiz that allows you to enter diet restrictions like no gluten and preferences like no shell fish off a standard list but then they also allow you to enter anything else you hate. Like for me it was olives, club soda and a few other items. They also ask you what cooking equipment you have. I initially entered I had a blender but my recipes popped out with smoothies (which I do not like) so I took that off and that got rid of the smoothies. You could also enter in the amount of time your willing to cook. I entered the shortest amount of time for everything and indicated I would do left overs for lunch. So out popped my recipes. I eliminated some I didn't like. Added a few ingredients to my dislike list. Regenerated the recipes and they looked really good. They give you a shopping list and you can enter via a button click whether you have it or not. You can see this list on your phone but have to get to it through the web browser. Haven't seen if they have an android app yet. I made the first breakfast this morning. The recipe said 10 min. It took 15 but I doubled the batch so I just have to reheat it for tomorrow. It was delicious. The best part was it was easy to follow and was basic simple cooking but had a gourmet taste because they told me what to add. The methodology seems to be whole foods. They give you the nutrition info on the recipes but I will likely not pay too much attention. Part of the quiz they ask you about your weight, goal weight, age, height etc. and then tell you how many calories they are planning for you per day. You can manually increase or reduce it. I just went with their suggestion. The cost was $59 for 6 mths but if you look on the web there are $20 off click links. I thought for $39 it was worth it. The service you receive for the cost is weekly recipes and shopping list. I think the founder is gluten free which may be why everything I've gotten looks so good. You can see the recipes in your queue and tweak them to eliminate your hated ingredients all before paying. After you pay they send you the ones they auto select for the week so as to minimize shopping waste along with your shopping list. So it is easy to check out if you will like their recipes before paying. I think you can override the auto select so as to pick the ones you want for a given week as I saw an option for that but haven't done it myself. They also have options like Paleo and vegetarian. There is no support forum that I could find. I would love to have some buddies for this. Anyone interested? I can say that the gluten free recipes I received looked easy to make and tasty. I plan to use the shopping list to make sure I have everything on-hand for the week.
  4. I love the Moon Melt Lotion bar. Great for dry skin. Says gluten free on the packaging. Very simple natural ingredients. Look around on the internet for the best price. http://www.amazon.com/Moon-Valley-Organics-Melt-Lotion/dp/B008ZH4KCE
  5. Near Livermore here are two recommendations: Blossom Bee in Dublin. It is near the intersection of 580 and 680. Fabulous gluten free crepes! Loved the chicken pesto and one with beef. Great honey mustard dressing on the salad that comes with it. They prepare the gluten free crepes in a separate pan so no cross contamination issues. Love them! http://www.tripadvisor.com/ShowUserReviews-g32313-d4711168-r177466419-Blossom_Bee-Dublin_California.html Eddie Papa's in Pleasanton. http://eddiepapas.com/menu/ Their gluten free reviews were great and the food I had there was fabulous. Oddly enough I had to push a bit for the lady who seemed like a maitre'd to ask for something other than sandwiches to make a gluten free dish. Their chef, however, knew what he was doing and I had a fabulous Fog City Tetrazzini Pasta. On another visit I had the Castro Artichoke Soup. Also fabulous. The first lady I delt with, I didn't understand why she was so odd, maybe confused or unknowledgable but tried to tell me they couldn't make cream sause without flour. I just gave her a look and she went to ask which of course the chef said no problem. The reviews all indicated there should be no such problem with this restaurant which is why I pushed. Usually I would just leave with that amount of pushback but was very glad I stayed. They give you a big cup of cotton candy with your check for free. Very unusual and kind of fun.
  6. Which direction are you coming from? There are some great places but they are all on the outskirts. Downtown there is a P.F. Changs, Cheesecake Factory and Old Spagetti Factory. Probably the last 2 are best for a 3 yr old. Not having kids I haven't been to the 2 factory restaurants. If your driving in I can recommend some great places but honestly downtown I've never had any luck.
  7. The thought is very disgusting. But it is good they are doing research. I wonder how they are handling the bad parts of having a hookworm infection. The article doesn't mention that. I wonder if they got rid of the hookworms afterwards but still saw an improvement in handling gluten. Maybe they can figure out why it works and come up with a safer approach.
  8. I had this problem too. I posted about it but can't figure out how to link to the post. Here is my reply to a similar question containing the suppliments I took to clear it up. I'm very lucky in that I have a holistic Dr. who knows about this sort of thing and I can afford the appt. to get it looked at. It is very expensive so I posted what he prescribed here so others could take advantage of it. It is all over the counter so anyone can buy it. Mostly I got mine on amazon. -------------------------------- After about 5 yrs eating gluten free I developed massive food allergies to everything I ate. I had been following this forum for pretty much the entire time and noticed that alot of other people developed them also. Fortunately I have a great Dr. who did some tests and put me on some suppliments (over the counter) that solved it all. For any one who is interested but perhaps doesn't have access to good Drs. or can't afford the $1000 test here is what I started taking: Allimax - contains Allicin is an organosulfur compound obtained from garlic 2x per day for 8 weeks. Candibactin-BR - From (Company Name Removed - They Spammed This Forum and are Banned) 'CandiBactin-BR provides extracts of herbs including berberine-containing plants to support healthy immune, detoxification, and elimination functions. Featuring berberine hydrochloride and extracts of Oregon grape and coptis roots, the formula encourages a healthy intestinal environment and supports detoxification function of the liver and gallbladder. A proprietary extract of Chinese herbs-including ginger, licorice, and skullcap-harmonize the action of the other herbs within the formula. Product Review as Follows: "I am using this in conjunction with other supplements to clear up a candida problem. Working well. I will keep this handy for maintenance once things are cleared up."' 2x per day for 8 weeks. Both of the above with food and Ok at the same time. These were to wipe out bad yeast in my gut. To be taken NOT with the above: Ultra Bifidus DF - A probiotic supplement featuring a specially cultured, highly viable, pure strain of the beneficial bacteria, Bifidobacterium lactis. 1/2 tsp per day Saccharomyces boulardii - From webMD "Saccharomyces boulardii is called a "probiotic," a friendly organism that helps to fight off disease-causing organisms in the gut such as bacteria and yeast." My dr. explained that it was a replacement for the bad yeast that the above were killing. From the NOW vitamin description. " Saccharomyces boulardii is a probiotic yeast that survives stomach acid and colonizes the intestinal tract. It promotes the health of the intestinal tract, helps to encourage a healthy gut flora balance.** Saccharomyces boulardii has also been shown to support proper gastrointestinal function during a disruption to the normal balance of gut flora.** Manufactured by Now Foods." 3x/day I now just take a maintenance dose of Allimax and Candibactin BR. But I haven't consulted with the Dr on this. It just seemed to me that when I dropped these completely I eventually started getting stomach aches again after eating. When I take them I'm fine will all foods except of course gluten. I ended up not continuing with the UltraBifidus DF or Saccharomyces Boulardii beyond the intial doses largely because I'm lazy and I like the Pearls probiotics and the Enzymedica Digest Spectrum because they are an easier form for me to take. I hope you get your problem cleared up. I wasn't going to accept not being able to eat any dairy, eggs, some meats, some vegetables, some fruits etc. It would have been a very unhealthy and restricted diet long term.
  9. I don't know if anyone else has tried these but they just appeared at my store. http://www.glutenfreeda.com/our-products/pocket-sandwich/ They are yummy! I've only tried the bacon/egg/cheddar and the Southwest Chiken Chipotle but they are both great. Only 250 calories each but really fill you up.
  10. You take the digestive enzymes with every meal.
  11. I like Enzymedica Digest Spectrum. It is billed as "complete food intolerance support" and aids in the digestion of "Gluten, Phenol, Lactose and Casein". I also recommend you get a probiotic.
  12. I finally got around to Whole Foods and picked up a box of each flavor, Strawberry and Apple. Yum! Apple was my favorite as the strawberry was a bit tart. But still. Loved them both. They are like flakey pastries with fruit filling. I like them better than the regular pop tarts with hard crusts and sort of chemical taste. These are a 10!
  13. My allergic reaction to food came on pretty fast and furious. I got head to toe white pusticles all over my skin that if you itched them they became insanely itchy and multiplied like crazy. I was worried I was developing DH. I went to my regular Dr. who thought it looked like a food allegy so she ordered some allergy panels. They came back with allergies to pretty much everything I ate on a normal basis. Her suggestion was that I eliminate it all from my diet for about 4 mnths and then try to reintroduce. I eliminated it all from my diet but I also went to see a holistic Dr who ordered the (Company Name Removed - They Spammed This Forum and are Banned) 2100 gastrointestinal function profile and the 2155 sensitivity - fungi test. Also did a thyroid test but more indepth than the one my regular Dr. did. Based on the test he prescribed the above suppliments. I started to reintroduce foods one at a time after I had a fairly good period of time with normal, firm, non-smelly, well formed stools. I probably waited at least the 8 weeks of the above protocol. Maybe more. I can't really remember but I'm reasonably certain that I didn't reintroduce anything in the first 8 weeks because I remember going to a follow-up appt. when he said I had to wait 3 mths and I was surprised as he had originally said 8 weeks. When I tried discontinuing the suppliments I started getting the 'rock in the stomach' feeling of undigested foods, stomach ache or poor stools. When any of that happens I know I've got to get back on track with adding back in the probiotics, digestive enzymes, or the suppliments. Pretty much I've just given up and take one of the Allimax and Candibactin - BR every single day and that seems to keep everything inside happy. When I go out to eat and have problems (probably due to cc) I take the Enzymedica Digest Spectrum. I used to always take Enzymedica Gluten Ease prior to every single restaurant meal because I almost always had a reaction and the Gluten Ease was like a miracle for keeping them away or dealing with them. But now my gut is healthy enough that I am the opposite. I almost always don't have a reaction.
  14. After about 5 yrs eating gluten free I developed massive food allergies to everything I ate. I had been following this forum for pretty much the entire time and noticed that alot of other people developed them also. Fortunately I have a great Dr. who did some tests and put me on some suppliments (over the counter) that solved it all. For any one who is interested but perhaps doesn't have access to good Drs. or can't afford the $1000 test here is what I started taking: Allimax - contains Allicin is an organosulfur compound obtained from garlic 2x per day for 8 weeks. Candibactin-BR - From Amazon.com 'CandiBactin-BR provides extracts of herbs including berberine-containing plants to support healthy immune, detoxification, and elimination functions. Featuring berberine hydrochloride and extracts of Oregon grape and coptis roots, the formula encourages a healthy intestinal environment and supports detoxification function of the liver and gallbladder. A proprietary extract of Chinese herbs-including ginger, licorice, and skullcap-harmonize the action of the other herbs within the formula. Product Review as Follows: "I am using this in conjunction with other supplements to clear up a candida problem. Working well. I will keep this handy for maintenance once things are cleared up."' 2x per day for 8 weeks. Both of the above with food and Ok at the same time. These were to wipe out bad yeast in my gut. To be taken NOT with the above: Ultra Bifidus DF - A probiotic supplement featuring a specially cultured, highly viable, pure strain of the beneficial bacteria, Bifidobacterium lactis. 1/2 tsp per day Saccharomyces boulardii - From webMD "Saccharomyces boulardii is called a "probiotic," a friendly organism that helps to fight off disease-causing organisms in the gut such as bacteria and yeast." My dr. explained that it was a replacement for the bad yeast that the above were killing. From the NOW vitamin description. " Saccharomyces boulardii is a probiotic yeast that survives stomach acid and colonizes the intestinal tract. It promotes the health of the intestinal tract, helps to encourage a healthy gut flora balance.** Saccharomyces boulardii has also been shown to support proper gastrointestinal function during a disruption to the normal balance of gut flora.** Manufactured by Now Foods." 3x/day I now just take a maintenance dose of Allimax and Candibactin BR. But I haven't consulted with the Dr on this. It just seemed to me that when I dropped these completely I eventually started getting stomach aches again after eating. When I take them I'm fine will all foods except of course gluten. I ended up not continuing with the UltraBifidus DF or Saccharomyces Boulardii beyond the intial doses largely because I'm lazy and I like the Pearls probiotics and the Enzymedica Digest Spectrum because they are an easier form for me to take. I hope you get your problem cleared up. I wasn't going to accept not being able to eat any dairy, eggs, some meats, some vegetables, some fruits etc. It would have been a very unhealthy and restricted diet long term.
  15. So many people are going gluten free as a fad diet that when I go to a new place I closely question how they guard against cross contamination. You know the drill, a clean pan?, a common toaster?, gluten free grill?, dedicated frier? etc. About half the places say they don't have safe practices or that they really are only flour free with their gluten free items and that I shouldn't eat there. I'm happy about that as I'd rather know than get sick. If I'm at all uncertain I will say that I am super sensitive and not someone following the fad diet. Many times they say the appreciate the info because so many are just doing it as a fad diet. Also we never eat at busy places. If it is a new restaurant I go at off hours so I feel I have time to ask my questions and they have time to answer. So my answer is to show your serious by the type of questions you ask and don't go to busy places.