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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About bonnieo

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  1. Talk to your son's pediatrician. This is especially important if your son withholds his stool (if he has a bowel movement in a diaper on a regular basis, I'd say it's developmental). The doctor should talk to you about increasing fiber (foods or supplements), fluids, timed toilet sitting after meals, and possibly medication to soften the stool (e.g., Miralax). Also it may help your son to explain what poop is and where it comes from. Good luck!!
  2. I've been mostly lurking on this board since April. I've learned a lot about Celiac by reading here and elsewhere. My 8-year-old son is scheduled for small intestine biopsy on Thursday. His antigliadin IgG and IgA are elevated, tTG and antiendomysial are negative. The doctor has finally decided to do the biopsy to "rule out Celiac." Nothing we've done has improved his symptoms. Does anyone know if there's always inflamation (as indicated by elevated sedimentation rate) in one who has Celiac? He does not have elevated SED rate.
  3. I have heard just the opposite. Casein is not effected by heat.
  4. I'm sorry if I wasn't clear. My son is not gluten-free yet. His blood work is inconclusive. The doctor has suggested a biopsy if he doesn't improve soon. So, I don't want him to go gluten free until after the biopsy. He is clearly allergic (IgE) to eggs. So we're egg free. But everything I've tried to bake without eggs has "flopped." Thanks to all for the egg alternatives.
  5. Forgive me for being (at least slightly) "off topic" from your original post. My son (8 years old) has similar blood work and also an egg allergy (cross-reactivity?). I'm still trying to figure out what to do for him. His numbers are 126.2 IGG AGA, 22.2 IGA AGA, 17.9 IGA TTG. The gastro has *not* suggested gluten free. Though he has indicated that if my son's symptoms don't improve soon he'll do the endoscopy. I want to stay with "conventional" medicine for him. I don't want to "just try a gluten-free diet" because I suspect reintroducing gluten would be long and difficult. Also I have some skepticism about Enterolab. He's a kid and I don't want to mess with his diet without solid reasons for doing so (I need the support of my husband, family, school, etc.) My questions: - what type of doctor diagnosed gluten sensitivity based on your bloodwork? - what do you use to substitute for eggs in baked goods? JO
  6. Pure milk does not have gluten. However, many individuals who are gluten intolerant find that their symptoms don't completely clear up after eliminating gluten. Many individuals must also eliminate milk and milk products (lactose - a milk sugar and/or casein - a milk protein) to eliminate symptoms. After a period of time/healing, some individuals can reintroduce milk and milk products. The intolerance to milk may have something to do with the damaged villi (inability to produce the appropriate digestive enzymes in the appropriate quantities) or the similarity of the chemical structure between gluten and casein (the difference is subtle enough that the body attacks casein because it looks like gluten).
  7. I've read this book -- twice. It makes a lot of sense, but it's hard for me to tell whether it's supported by valid research or not.
  8. Does anyone have the symptom of bowel movement urgency when ingesting gluten? ...sorry to get so personal -- just trying to figure out what's causing this. Thanks!
  9. The following book explains how to get the bacteria in your gut back into balance. Breaking the Vicious Cycle: Intestinal Health Through Diet by Elaine Gloria Gottschall I ordered it from Amazon and read it but have not yet implemented it.
  10. Read the book: Breaking the Vicious Cycle: Intestinal Health Through Diet by Elaine Gloria Gottschall There is also a web site: http://www.breakingtheviciouscycle.info/
  11. My 8-year-old son had to have blood drawn 3 times to get a full celiac panel. He has had these results: IgG anti-gliadin antibody - strong positive IgA anti-gliadin antibody - weak positive Anti-endomysial - negative tissue transglutaminase - negative Total IgA - normal Other abnormal tests: IgE egg whites - positive IgG casein - strong positive creatinine - low white blood cell count - low We've seen the pediatrician, gastroenterologist, and allergist. All have given different advice (some conflicting). Because symptoms have not resolved, the pediatrician recommends eliminating wheat to see if symptoms resolve. If symptoms resolve, we'll put wheat back into his diet and do the small intestine biopsy. Please provide any opinions about his blood test results. Wouldn't it make more sense to do the biopsy before we just try eliminating wheat? Thanks in advance. JO
  12. Another test that is needed is Total IgA. Some individuals (as many as 1 in 500) are IgA deficient and do not produce tTG. Apparently is possible to have positive Anti-Gliadin antibodies (IgA) and still be IgA deficient.
  13. Did you eliminate all suspect foods then add things back one at a time? Or did you just keep eating normally and keep track of everything? How long did you eliminate a food before you tried it again? Are your allergy shots related to your food intolerances?
  14. How have you gone about identifying food intolerances?