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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. I emailed Bob's Red Mill about the recall. Here was the response. "On Tuesday, September 10, 2013, the Canadian Food Inspection Agency reported that a random test of Bob's Red Mill Sweet White Sorghum Flour (623 g / Lot 150772 / Sell By: 11/07/2014 / UPC: 0 33978 30642 5) was found to contain 32 parts per million of undeclared gluten. The product was tested for gluten to the company's 20 parts per million standard for all Gluten Free products in its in-house laboratory before, during and after production. At each point in the process the product was found to be well below the Canadian Food Inspection Agency's standard, which is also a maximum of 20 parts per million. When the Canadian Food Inspection Agency reported its findings, Bob's Red Mill was very surprised and immediately had samples from the same lot tested both internally and by an accredited 3rd party laboratory. Both tests showed the product to be below 20 parts per million. Despite those confirmations of the gluten free status of the lot of Sweet White Sorghum Flour in question, Bob's Red Mill has opted to voluntarily withdraw all retail packages of the product from Canadian sources to preserve peace of mind of our loyal, gluten free customers. We have requested that the CFIA retest their sample for accuracy since our tests on this specific lot confirm that it is gluten free per the 20 parts per million standard. The Gluten Free Sorghum Flour we sell to Canada is the same as the US product. Regards, Yvonne Fyan Customer Service Manager Bob's Red Mill Natural Foods Ph# 971 206 2217"
  2. I've read on glutenfreedrugs.com that the generics for Singulair do not contain gluten, but that the manufacturers do not test for its presence. Has anyone encountered any problems taking a generic form of Singulair? I'm mostly interested in Aurobindo (5mg) and Teva (10mg) as those are the brands my pharmacy uses.
  3. Thanks for the suggestions. I appreciate the help!
  4. I recently learned that the 3 oz. containers of Kraft Mac&Cheese cheese topping (yes - the powdery orange stuff) has been discontinued. It was my quick go-to product to make mac&cheese in the morning for school lunches. Does anyone know of a similar product? I've contacted Kraft asking them to reconsider, but I'm not expecting much.
  5. I found some information on glutenfreewatchdog.org that you may be interested in. The tortillas mentioned were tested and there was a product alert. http://glutenfreewatchdog.org/blog.php?id=7
  6. Just wanted to point out that there is some interesting info in the recent newsletter on glutenfreedietitian.com. Tricia posts some findings from Gluten Free Watchdog.
  7. I saw on this site (http://www.celiac.com/articles/22275/1/Contamination-of-Naturally-Gluten-Free-Grains/Page1.html) and recently attended a celiac conference where this study of contamination in naturally gluten free grains was referenced. This got me thinking about the products I use, specifically Riceland rice. According to a recent visit to Riceland's website I found the following: "Riceland provides marketing services for rice, soybeans and wheat grown by its 9,000 farmer-members in Arkansas, Louisiana, Mississippi, Missouri and Texas. Each year, its 1,900 employees receive, store, transport process and market more than 125 million bushels (2.5 million metric tons) of grain." Has anyone experienced any problems with Riceland brand rice? This is in regards to a confirmed Celiac family member who is asymptomatic, so it's difficult to tell what products are safe to use. Thanks!
  8. I called Mars a few days ago and asked if the pretzel M&Ms were made on the same equipment as all of the other M&Ms. The answer was yes. She said that the equipment is broken down, cleaned, and sanitized after runs. That being said, there is always the chance of cc. Needless to say, I am extremely disappointed in Mars at the moment.
  9. Just an fyi - when I checked shortly before Halloween, Nerds and a few other Wonka candies were no longer on the gluten free list. Based on the ingredients, I'm not sure why since they look ok. I did see some bags that had a made in same facility as wheat statement, but other bags didn't. Maybe that's why?
  10. All great ideas! Thanks everyone for your responses. I appreciate the help.
  11. I appreciate the comments, and I know I may come off as sounding like a mom in denial, but I do not believe that he's taking treats from friends and cheating on his diet. He wants his tests to come back negative as much as anyone. Although good ideas, he has no interest in Playdoh, and he was using the same toothpaste (same ingredients) as when he tested negative. So, we'll continue trying to figure this out.
  12. Thanks for all the responses and suggestions. Our house went gluten free in April 2007 when my son (who is now 10) was diagnosed. He's had repeated bloodwork every 6 months or so, and sometimes even after only 3 months. He was finally negative for the first and only time in March 2009. We have a spreadsheet with all the foods that he eats and after some analysis of what he is eating a lot of in the month before each test and comparing each time frame, we suspected the Leapin Lemurs so that's what prompted the question. Ironically, just before he tested negative, he was on a Panda Puff kick. Also, no changes to the soap at school.
  13. My son's ttg was elevated at his last check-up. His doctor suspects he is getting gluten from somewhere. I keep a diary of everything he eats, and am desperately trying to figure out where the gluten is coming from. I'm convinced it's a cross-contamination issue. After looking at what he ate a lot of in the month prior to his test, I noticed he was on a Leapin Lemur kick. Has anyone had problems with this cereal? Or, better yet, does anyone eat Leapin Lemurs on a regular basis (as well as the other gluten free Envirokidz cereals) and test negative on follow-up ttg tests?