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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Soonerman

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  1. Can't Sleep...!

    Celiacs are commonly low and/or deficient in a few vitamins/minerals, such as B12, D, K, Magnesium... Having low magnesium levels can severely disturb sleep. I have been taking Magnesium Citrate pills for my magnesium levels and the sleep is amazing. This was mentioned above and is a big problem that is never really dealt with, especially since there aren't really accurate tests for magnesium levels. It can't hurt to take magnesium supplements, as the extra is excreted through urine, and it would help many of us not only with sleep, but also with relaxation and energy. Good luck and hopefully goodnight!
  2. Is that the IgA Serum level that will demonstrate if you are IgA deficient?
  3. Ok that clears it up some and now I understand better how the body responds differently based on whether it is an allergy, intollerance, or celiacs and what makes them different. Thank you for your responses! However I am still a little confused on the testing...are there different tests to check for allergy, intolerance, or celiacs? It sounds like if you have a gluten allergy then the antibodies would not be present, so do they do a gluten allergy test (like prick test or blood test) like they would for other food allergies like wheat or peanuts? So when I did the genetic testing and antibodies testing I was just looking for Celiacs and would still need to be tested for an allergy? Also is there a separate test for intolerance? If you know a good, reliable food allergy test please let me know as I am going this friday to the allergist. Thank you.
  4. I know this isn't probably a simple issue, but it is difficult for me to get a clear understanding of whether you have to be a celiac to have a gluten allergy. I assume the genetic test demonstrates Celiac's Disease, while the antibodies test/biopsy can look at gluten allergy. So you may not have the genes (DQ2 or DQ8) but you can still test positive for antibodies/biopsy (and thus be allergic to gluten)? But if you do have the genetic makers and test positive for antibodies/biopsy then you have Celiac's? If this is right doesn't that mean that if you aren't a Celiac, but you are allergic to gluten that you could at some point possibly eat gluten again; whereas a celiac will always have a problem with gluten? I have seen people posting that they tested positive for Celiacs, but only got the biopsy and/or antibodies tests; so is that accurate to say that they are "celiacs" when they could just be allergic to gluten? Or is there even a difference between celiacs and gluten allergy/intollerance? Also what is the point of the genetic testing, if it doesn't really tell you much except that it is either more likely for you to have celiacs or it is not possible (genes don't change and if you aren't positive you never will be)? I have DQ2 marker, but antibodies test seems negative, so no diagnosis. And so people say get the biopsy, but that could also come up negative when that is not truly the case. I know many of you probably share in my frustration of not being able to be accurately diagnosed, but hopefully you will be able to help my understanding of the questions above. Thanks
  5. I am hoping to learn of a good, common, and relatively accurate test for Candida, does anyone know of one? Please let me know of the best way to go about seeing if I have this problem, and if I can get the test through my GP or an allergist. Thank you
  6. I have low B12 and am taking monthly shots. What you need to understand is that if you are not a vegetarian and you eat regularly and a normal healthy diet, you should not have low B12. If you do it is from malabsorption and taking B12 pills/supplements will not help as the initial problem is with you absorbing the vitamin. That is why b12 shots are the only way to significantly increase b12 in a person that is unable to adequately break down and absorb b12; it goes straight into your body, no work required to extract it from food. Also the reason for this malabsorption could be a variety of things, including celiacs or other food allergies, alcoholic, crohns, many other reasons. But I believe mine is caused by celiacs and I hope to get a definitive answer soon; already determined I have DQ2 marker. As for the half moons, don't put too much into that, I have them on all my fingers and been consistently low on B12 even before I started the shots. If you have the symptoms, get the blood work done. Get the shots or eat foods with b vitamins, meats, fish, milk, fortified cereals; unless you are a vegan or vegetarian you shouldn't need b12 supplements/pills unless something is wrong.
  7. Wheat Allergy

    Sounds like you know alot. Can you give me an easy to understand explanation of the difference between wheat allergy, celiacs disease, gluten intolerance, and gluten allergy? How do you tell the difference in symptoms (if you can) and how do you tell the difference with testing and which tests you would do for each? Sorry for the many questions, but it is something I have been wondering but can't get a clear answer. Also if others know please feel free to answer, thanks in advance.
  8. Wheat Allergy

    How did you find out the wheat allergy, did they do a prick test? I only ask because I want to know best way to see if that is my problem. Thanks
  9. I have a post about my test results, which the only thing I am sure of is that I have the DQ2 gene; I don't know what the antibody results show if anything. I haven't really got a good answer on what the positive DQ2 means, can you help me out?
  10. Does anyone else have any insight into these results? Also has anyone ever used or know anything about metametrix clinical laboratory for food allergies/sensitivities and also some other testing for celiac and possibly candida? I would like to know how accurate the testing is if anyone can enlighten me. Thanks
  11. Ask your doctor/nurse for a copy of your test results for celiacs, and then post on here, I would be interested to see what he is diagnosing as "negative".
  12. Thank you, that does sound like a good idea. If I am negative for wheat and dairy from the allergy testing I am going to do to rule them out, then I am definitely going gluten-free again and if I feel good again. That is all I need. I just can't believe there isn't more conclusive testing yet and that so many doctors know so little about this. I get more information here than from my doctors, and I am so glad that I can come here for information it is about all I have.
  13. I am not gluten free again, as I am still not sure where to take the testing now; such as allergies. I am probably going to an allergist to get tested for food allergies; I don't know the best one(s) though, I just know about the prick test and blood testing. I am pretty sure he will go for the prick test; I just hope it is accurate. Basically I ate gluten for a month prior to my testing, which was December 14, and have been eating without restrictions since. I feel bad and have felt bad since resuming the "regular" diet, and yes I do eat dairy now I only cut it out for the month and a half I was gluten free. The problem is that I haven't ruled out gluten and I haven't had it declared as the problem. I guess food allergy testing is the next step to rule wheat/dairy out or find out it could be the problem. I am also debating candida elimination diet to see how that goes since my gluten free diet was very similar except for the fresh fruit I was eating.
  14. I figured biopsy was the only way to know for sure, but I can't do that again, plus there is no guarantee that even if gluten is the problem that a biopsy will show it; So seems like almost impossible to get a diagnosis. Only thing the scoping told me about 8 months ago was I have a hiatel hernia and a spastic colon (IBS I guess). I had been eating gluten for around a month before the blood test, but was gluten free for a month and a half before that. I knew I had to be eating gluten before the test so I hope a month was enough after being gluten free. Because I cut out wheat and dairy I don't feel that I can say for sure it was cutting out the gluten that made me feel better. Thanks for the input, I appreciate all the information I can get.