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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Thanks for the responses. I checked out the websites that several people listed and they are good. It is also helpful to know that there is some general disagreement as to what is and is not allowed on the diet, that clears up that confusion. I'm still not sure which of the supplements I need to be taking, if any. I take my probiotic daily (currently taking the 50 billion strength) and I have a yeast and other allergen free multi vitamin and calcium. I have a question about B vitamins since I think I read somewhere that they are grown on or derived from yeast. My vitamins are pink ribbon nutrition brand and they state "no added yeast", does this mean that I am still getting yeast in the vitamins? Are there any that are yeast free completely. I am allergic to both bakers and brewers yeast so it is important to me to make sure I am not triggering an allergy response as well as in doing this diet. I bought a supplement from the health food store called "Nutrition Now Yeast Defense". It contains 41 mg calcium, 300 mg caprylic acid, 200 mg pau d' arco, 200 mg deodorized garlic (bulb), 20 mg grapefruit extract, and 10 mg chlorophyll concentrate. I found out that caprylic acid is coconut when I reacted badly (skin rash) to the first capsule and looked up each ingredient on google. Is there anything else I could take? Do I need the caprylic acid enough to risk the coconut (I don't think its enough to give me full on hives but one capsule definitely gave me my typical allergy rash reaction). Also, my Dr just called in another single dose of Diflucan for me. I know that it is best to take these pills for several weeks or more, but he only offered me the option of one more dose for now. I just took my last dose of my antibiotic tonight. Does anyone know when the best time to take the Diflucan would be? Should I wait a few days to get more of the antibiotic out of my system or should I take it ASAP to get it working? I took the other dose about a week and a half ago and it really did help a lot but things are starting to get bad again (and I did not start the diet with the last dose). Thanks for reading all of that. Any suggestions are greatly appreciated. I really just want to get this over with so I can start feeling better again.
  2. I have been reading the candida thread and trying to figure out what I need to cut out my diet to cope with my current yeast problems. I have been on 3 different antibiotics and a week of steroids over the past month and a half (trying to get rid of a sinus infection that will not go away but does get better while I am on an antibiotic). I will be taking the last pill of my current 10 days of Levaquin tomorrow and then I need to try to undo the yeast side effects of all of these meds. I have already had one dose of a drug my Dr prescribed to help with the yeast problem and he will prescribe me one more pill when I ask him to. I forget the name of it, but it is one of the ones commonly used for fighting fungal/yeast problems. I also take a probiotic daily. I do not eat (due to intolerance/allergy) any gluten, soy, dairy, corn, yeast or coconut and I generally avoid large amounts of peanuts and potatoes. I also can not eat and citrus fruit (unless you count strawberries). I do eat (and am guessing I need to give up) sugar, aspartame, chocolate, vinegar, and mushrooms. My two main questions are: 1. What other supplements can I take that would help that do not contain coconut or lemon? I keep reading about people drinking lemon water and using coconut to help but citrus triggers my migraines and coconut give me hives. 2. What other foods should I not be eating or what should I be eating? I have read the book "feast without yeast" and it says that I can still have rice, potatoes and other starches and legumes but I seem to see those things on the "no" list in the candida thread. Where can I find a good solid set of rules for the diet aspect of this? Thanks for any help you can give me in getting this sorted out. I was finally doing so well and this has totally destroyed my digestive system all over again.
  3. Grrr

    It is my understanding that almost all citric acid used in the US is derived from corn. This was my last holdout in relation to going corn free and I am about to give it up to see if it improves my current problems (which do seem to be very suspiciously like the reaction I had to corn on my elimination diet). I would suggest browsing in the Delphi Avoiding Corn forum. I don't know the link but you can Google it. Also, check out the list of corn and gluten free foods at http://corn-freefoods.blogspot.com/2007/05...s-of-51607.html I'm not sure that this is an exhaustive list of all safe foods, but corn and gluten free cuts out most of the prepared/prepackaged stuff if you truly go completely corn free (which, as someone else mentioned, not everyone needs to do). There is also a list of corn derived and corn based ingredients on corn allergen.com http://www.cornallergens.com/list/corn-allergen-list.php I hope some of that is helpful. One other thought, do you use Splenda? I just found out from my mother that it is made from corn. No wonder that new Diet Coke with Splenda was a really bad experience for me.
  4. I have been wondering how badly I react to corn. I thought I was as corn free as I needed to be, but I have been considering trying to give up the last few corn related things I eat. I think that it is mostly citric acid. I have also heard that caramel coloring is a problem (I only get this in my caffeine free diet coke that I am ADDICTED to). I also have been unable to find Guar gum to bake with, so I have been using the Bob's Red Mill brand Xantam gum and I think this is grown on corn. I think that this is all the corn in my diet. I guess I will try to eliminate these things and see how I do. I don't eat a lot of prepared/prepackaged food, but there is a list in one of my earlier posts of the most common things I eat. Thanks so much for the suggestion. Any suggestions on other possible hidden corn in my diet? Also, I think that I have determined that potatoes are only okay in very small amts but thankfully, Namaste mixes are potato free and I can sub something for potato flour in the rest of my baking.
  5. I just wanted to add that my son's allergist told me that the skin testing was only about 85% accurate and that it is seldom done on children under 2 because it is even less accurate for kids that young. My son was skin prick tested at the age of about 15 months for food allergies and came up clear. He is now just over 2 1/2 and was tested again using the same test but had a reaction to soy this time. He did not react to dairy but he gets hives from dairy and all of his skin problems cleared up once we took him off of dairy. His allergist decided that the skin test for dairy was likely a false negative even before we had any positive dietary response to show for it just based on the hives that we could only explain as being a dairy reaction. So don't put all your faith in the skin testing. I also see the same allergist and only react to the skin test for dairy products but did an elimination diet to determine that I am also allergic to soy, corn, and yeast as well as intolerant (meaning I can cheat with a little bit once in a while) to egg yolk and peanuts. I have had a positive reaction to these foods on skin prick tests in the past. My allergist told me that the reason for that is the allergies can clear up and come back in certain circumstances (like a change in hormones during pregnancy) but that intolerances tend to last a lifetime. He also and that if you avoid a food you are allergic to for long enough you will not have a positive skin test response to it because the body will stop reacting to the food the same way a person who has never been exposed to a food will not react to it (but if you start eating the food again the allergy is likely to come back). You may already know a lot of this but I thought I would post anyway since I have been dealing with food allergies all my life and some of this was new info to me. I have only been seeing this allergist for a little over a year and I found that he is very willing to take the time to explain the why behind what he is testing for or asking about, which is very refreshing. As a mother whose son just now finally went 2 full weeks without scratching his dry rashy skin in his sleep until he bled, I can understand the frustration you are experiencing looking for those answers. Good luck with finding the answers for your daughter. I know you will eventually figure it all out.
  6. I'm so glad you posted this. While I have never heard of sub-clinical gluten intolerance, I had the same test results. I had normal/negative blood tests and when they did the biopsy they found chronic inflammation of the intestinal lining but did not find the blunted villi that would diagnose celiac disease. I have gone gluten-free at the recommendation of my Dr as well and it has almost completely cleared up my problems. I wanted to let you know that, as suggested in the article that someone posted from Dr. Kalish's website, I also found that I had developed multiple food intolerances and allergies. I actually fit the profile from his article pretty well (milk intolerance as a child, chronic infections, symptoms cleared up in early adulthood, and my current GI problems began right before I turned 31). In addition to going gluten-free I did an elimination diet to determine my other food intolerances. I found out that I am unable to have dairy, soy, corn, peanuts, egg yolk, or yeast in addition to cutting out gluten. I'm not saying that you need to cut out all of these foods as well, but if you find you are not feeling better after going gluten-free you may want to consider an elimination diet. It seems that many people on this board have found that dairy and soy are problems, so you might just want to start with those if you don't want to do a full blow elimination diet. Mine took about 3 months but it was so worth it since I now feel much better and was able to get rid of all of my GI problems as well as my constant migraines and mild skin rashes. Whatever you decide to do, good luck with the gluten-free diet, there is definitely a learning curve to it but it is very worth it once you get it sorted out. Sorry for such a long post, I have a habit of doing that.
  7. I know no one has responded yet. but I just got back from the Dr and he suggested that (based on my son's history and my improvement since going gluten free) that I do a trial gluten-free diet. He did not order any lab work and the test my son had almost a year ago only tested for tTG IgA and immunoglobulin A Serum and both came back in the normal/negative range. So, I have a few questions: Should I ask for more test before trying the gluten-free diet? If I do change his diet, how long should I keep him gluten-free if I don't see an difference right away? What types of changes would indicate a positive response to the diet? BTW, he's 2 1/2 and not very good at explaining what he is feeling physically, so I will not have a lot of feed back from him.
  8. I have a 2 1/2 year old son who recently tested allergic to soy. He also came down with hives from dairy products in November and his allergist has ordered that we eliminate dairy despite the skin prick test not showing an allergy. So he is currently soy and dairy free and him mood improved greatly. He also had horrible dry, itchy skin (excema) that has cleared up considerably since taking away the dairy (he no longer scratches until he bleeds but still has very dry skin). Recently, however, he has been complaining that his stomach hurts, has had horrible gas (not really smelly but VERY loud and painful sounding). He also has had BMs that are mushy, like he used to have when he ate soy. I am wondering if there could be a gluten problem since he has been sick lately and refused to eat much of anything other than crackers and baby oatmeal (his comfort food). He has also had a very large behavioral change and has started throwing temper tantrums when he has NEVER thrown one before (I know he is 2 but he is close to 3 and those are usually a younger 2 kind of thing). I am gluten free but never tested positive for celiac disease (negative bloodwork and inconclusive biopsy -- three months gluten-free and then 3 weeks eating gluten for the biopsy with results showing chronic inflammation but no blunted villi). I know his school is very careful about keeping him soy and dairy free and we don't eat either one at home, so I can't just chalk this up to an accidental soy or dairy ingestion. The one other explanation is possibly that this is just a side effect of a horrible cold he has had for about three weeks with a very stuffy nose and tons mucous running down his throat. Does anyone have any ideas? Should I ask the Dr about testing? Would testing even be remotely accurate at his age? Thanks for reading my long post.
  9. Thanks, I was taking the Renew Life because it was the only one at my local health food store that seemed remotely safe. The 15 billion strenght adult formula (yellow box) specifically lists that it is dairy free. However, I just went to look and the 50 billion strenght that I bought to take with my antibiotic does not say it is dairy free! It never occurred to me to look since I had been fine with the adult formula. Wow, I guess I was really sick when I bought that because I definitely know better than to make blanket assumptions that one product will be safe just because it is similar to one that I know is safe. Each of them says to take one capsule a day. Do you think it would be safe to just take 2 or 3 of the 15 billion strength capsules (the ones that say they are dairy free) in order to get a stronger dose? I don't know if you have a problem with corn or if corn is ever in a probiotic, but do you happen to know if Flora More is corn free as well? I will have to look for that brand.
  10. I know I should try a Neti pot but I'm a wimp and I hate the feeling of getting water up my nose, which is what I assume that it would feel like. Also, I know dairy aggravates sinus problems (and I am dairy free) but I haven't really heard of sugar being directly related to sinus problems. I have a huge sweet tooth. Are there any websites with info on this? I would love to read more about it. At this point I am so sick of my sinus problems (which have been going on since around 1991) that I would be willing to try cutting out sugar if it helped. Heck, I've already cut out almost everything else in hopes of improving my health
  11. Wow, thanks for all the responses. This is such a huge help. I'm just going to respond to try everyone in this one post. I guess I just assumed that chips that were labeled gluten free would be (silly me ) I don't think I can eat the Lay's stacks (I don't remember why but I think they either have corn, soy or dairy in them) but I will look again. I was fine with the vitamins and the probiotic before, so I think those are safe. I was only on Prednisone for about a week (or maybe it was 5 days). Not huge dose, but I don't generally do well with steroids of any kind and I still have blood in my mucous when I blow my nose more than a week after finishing the dose. I guess that could still be causing some of my trouble. I specifically use Peter Pan because it is the only type of peanut butter that I have found that does not contain soybean oil. It does have sugar in it. I may also have a problem with peanuts, but I seem to do fine with them in Pad Thai. I prefer the sugary processed peanut butter to the all natural kind but I may have to give it up and go with something sugar free. I'm glad to know that the rest of my food list looks okay. Thanks so much to everyone who looked at it for me. Any other ideas for foods I should eliminate and then challenge? If I'm gonna go through this process all over again I want to test out anything else that might be a problem and be done with it.
  12. I think my potato chips are safe. I have stuck to Utts who label that they are gluten free and Cape Cod. My nutritionist has celiac disease and she said Cape Cod brand was safe. Anyone have problems with these or know someone who has? As for the processed foods I eat, there aren't many since there are so many foods I can't have. I have recently tried Cherrybrook kitchen mixes and other than that I stick with Namaste. I use canola, grapeseed and olive oil for cooking. We buy Purdue chicken, both the skinless boneless breasts and ground chicken. I use Enjoy Life brand chocolate chips and snack bars. I bake with Spectrum palm oil shortening. I use DeBoles rice pasta and Classico brand sause (the sweet basil one does not have soy). We buy the farm raised salmon at our local Kroger. I tend to buy rice at Kroger or Trader Joe's and have never been concerned about which brand. I recently bought Peter Pan brand peanut butter to try eating peanuts again. I also drink diet, caffeine free pepsi or coke (nothing with Splenda because of the corn allergy). Other than that, I don't really eat anything pre-packaged. I take Ribbon Nutrition vitamins and calcium. They are labeled to be free of all of my allergens and I called to confirm that they are gluten free since they only state wheat free on the package. I also take Renue Life Ultimate Flora probiotic. Please let me know if anything in the above list is something that I should not be eating. I am still very new to this and learning, so I may be eating something that I shouldn't be. Thanks for the help.
  13. Thanks for the response, I think I will try to at least eliminate potatoes and see what happens. Fortunately, the Namaste mixes that I already use are potato free, so at least I won't have to give those up unless I find some other intolerance to something in them. The problem I have now is what to keep eating and what to give up. I know I need to test potatoes. I guess that means that I should challenge all nightshades just to be sure. I can probably just challenge potatoes and tomatoes since I generally dislike peppers and I seldom eat eggplant since I am not very good at cooking it. Generally I am still having some bloating, some headaches (but not the full on migraines anymore), and I am still constipated. I guess I should mention that I am prone to C and headaches and this has generally been a problem since I was young (I think around 7 or so) but I have had times in my life when both went away. What else do people commonly find that they react to? I have not given up citric acid (it is in most of the things I drink), sugar, or aspartame. If I should challenge these, what is the best way to do it? Thanks for any advice you have.
  14. Hi, I've posted here before but it has been a few months. I started having horrible problems around this time last year that eventually led me to do an elimination diet. I have now cut gluten, soy, dairy, corn, yeast, and coconut out of my diet. I had the bloodwork for celiac disease and it came back in normal ranges. I had been gluten free on the elimination diet for about 3 months when I tested wheat and had horrible D and rashes and headaches. I kept eating it for about 3 weeks and had a biopsy done. He only took 4 samples (despite his agreement with me that he would take 8-10) and they found that my intestines were inflamed but there was no evidence of blunted villi. He suggested that I probably had some food allergies (nevermind that I had already told him about my entire elimination diet). So, around the end of September I gave up on trying to figure out if I really had celiac disease and just went with the elimination diet results. I have stuck to my diet for nearly 4 months (no gluten, soy, dairy, corn, yeast, and coconut) with the minor exception of 2 weeks in December when I was visiting family and tried to be as careful as possible while eating out a lot bu got sick anyway. My problem now is that I came down with a horrible sinus infection in late December (right around the time that I was eating out a lot) and it has not gone away despite 2 antibiotics and a course of Prednisone (steroid). I am also having some stomach problems, mild constipation, and headaches. I have been off the last antibiotic since Wed and finished the steroid over a week ago. I have to assume that there was some amount of corn in the pills and corn does cause constipation for me. My question is, should I try another elimination diet to figure out why things are not going well for me or should I assume that it is all a reaction to the medicines? I have had some very good days since I eliminated all of the foods I reacted to, but I still feel tired all the time and seem to still be constipated a lot of the time (even before I got the sinus infection). Also, I never gave up chicken or potatoes since my nutritionist said those would be alright to use on the elimination diet from the beginning. I have been eating a lot of potato chips since it is the only crunchy and salty snack I can have and they seem to be making me sick (I think). Also, what are your thoughts on doing ELISA testing? Have I been off of too many foods for too long to do this? Is it helpful to someone who has done an elimination diet and is still having problems? Sorry this is so long, I am just really lost and would like some suggestions for feeling better. Any suggestions or advice you might have would be greatly appreciated.
  15. When I was vegan and yeast free I used to buy very good quality olive oil and add my own spices and use just enough to get the leaves a little damp. It wasn't the same as dressing, but it worked and I didn't have to give up my salads. I also found that getting really juicy tomatoes helped. I'm sure that you could do something to add more liquid with lemon juice (I never tried because citrus is a migraine trigger for me). You might also experiment with oil and pureed strawberries or other berries or maybe some mandarin oranges. I'm not sure if this would work or not.