• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About KyCyn

  • Rank
    New Community Member
  1. My father is 77, but has been in perfect health all his life; gets yearly physicals, walks two miles a day, low blood pressure, low cholesterol... you get the picture. Well, in April he became sick and was diagnosed with walking pneumonia. He took antibiotics and seemingly got over the pneumonia, but then developed very sore, achy legs, chronic diarrhea, swollen feet and ankles, and difficulty breathing. After months of tests, he was finally diagnosed with polynueropothy in his legs, and the primary doc said one cause of polyneuropothy was celiac disease. Us kids starting researching celiac, and the more we read, the more we became convinced he may be suffering from this. In addition, my older brother has always had gastro problems and his legs had been hurting so badly he was wearing a brace. He decided to test it on his own, and went gluten-free; it's been three weeks now, and he says he feels like a new person; no brace, no gastro problems, and many other things that are going right that he didn't necessarily want to discuss with his sister - ha! Anyway, since then, we have been literally begging the primary doc to do a celiac test on my dad. He refused, and said he didn't know enough about it, but sent dad to a gastrologist. The gastrologist actually told my father that IF he had celiac, the antibiotics he took for the pneumonia would have cured it! Since then, they have sent my father to an infectious disease doc, a thyroid specialist, a blood specialist (who told us last night he thinks it's amyloidotis, which seems related somehow), and a cardiologist. Meanwhile, my dad has become so week that he was admitted to the hospital last week (which is EXACTLY what we told the docs was going to happen). We've been told they will do the celiac test next week, but now we are concerned that too much damage has been done. Can anyone give me ideas, encouragement, or ammunition for the docs? Us three kids (two bros and me) are meeting with the primary doc in the morning at 8am and we want to be armed - any help would be much appreciated. Thank you, Cyn