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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Nadtorious

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  1. Hi gang. I'm sure everyone can relate to that wit's end moment with dealing with Celiac and I feel like I'm finally hitting mine. I was diagnosed 15 years ago and through that time have had lots of ups and downs teaching family, friends, partners, loved ones and restaurant staff how to safely make a meal for me (or anyone else with celiac for that matter). I've definitely had moments of feeling like a paranoid freak and like I have to be overly anal about issues, especially in dealing with cross contamination, but typically people have figured it out and we can all have a laugh and share a meal. This has also led me to become rather self conscious about the level to which I have to remind people about my sensitivity and feeling like a nag at times. But again, 15 years worth of boyfriends and others have figured it out without too much of a headache and I've always been grateful for the extra steps being taken to keep me healthy. Until now. I just moved in with my boyfriend of a year and his 13 year old son and it's like a gluten bomb has gone off in the house. I've had a few talks with the BF about keeping things separate but I am still getting sick after almost each meal prepared by him or his son. We've talked about having a clean grill, keeping the cutting board clean, condiments....you guys know the drill. Last night I had to quietly (and awkwardly) ask him to wash his hands after eating a soft pretzel as he was about to prep dinner. It led to a big discussion after and I'm not sure it's really resonating other than he feels terrible (and I somehow got glutened again). On top of all that I just witnessed his son prep a bagel and immediately unload the dishwasher without washing his hands. This sounds like such dumb stuff but we all know it can get us sick, and I've pretty much been getting sick weekly since moving in (whereas I used to get sick 1-2 times a year)..... I guess my questions at this point are.....is this a lost cause? Without making this whole house gluten-free (which I'm not advocating for nor is he prepared to do) how can things like this be prevented (which I already seemingly know the answer to, it's just a matter of getting it to happen)? Do any of you have suggestions on how to have these conversations with confidence and not feel like a total freak in trying to explain how sick you get from a single crumb? Or how to get this across to a 13 year old without sounding like a crazy evil overbearing stepmother? I thought, after 15 years, I really had this dialed but clearly I have been proven wrong. Any and all suggestions welcome, including dumping boyfriend, moving out, tazing anyone who walks in the house with glutenous foods, and just getting over it in general.
  2. Haha, so I'm a dietitian, and I work with other dietitians. Once had a dietitian (an old boss, who has a MASTERS DEGREE in nutrition mind you) give me a bag of chocolate covered pretzels as a gift. "I'm not sure if they're gluten free or not...." They most certainly were not. Let's just hope she's not counseling any celiacs any time soon.
  3. Oh my.....it's been a long time since I've posted on this site but I HAD to after reading this thread. 1) Once asked a waitress what salads were gluten free. She pointed them out, then told me a couple I couldn't have because they contained Romaine. Apparently Romaine contains gluten.....? I actually wanted to order one of the salads that had Romaine in it and she refused to serve it to me because she didn't want me to get sick. I finally ordered the spinach salad, and then she brings me a basket full of breadsticks 2) Was in NYC a couple of weeks ago. Hostess says they've got a ton of gluten free options and to just ask the waiter once we're seated. So I do. His response? "Look at the menu, you know what you can eat better than I do". That guy got a cruddy tip.
  4. Thank you all for your replies. I guess I should clarify: I didn't expect this host to go out of her way to cook me a gluten free meal, and I brought several gluten free goodies to the party to share. I have a hard time saying no to people who insist what they've made is gluten free without feeling like I'm being rude (not just at parties but at work, etc)
  5. So I went to a party Friday night, the hostess made me some "gluten free" soup and breadsticks....after some polite inquiries into the soup's ingredients, we realized it was not gluten free. She felt bad, and 10 minutes later walked over with a couple of the breadsticks she got especially for me. Well, I ate them, and went up to thank her when I realized she had baked them on the same cookie sheet with the regular gluteny breadsticks (crumbs everywhere). You can guess what happened from there....now I feel awful, both physically and emotionally because she feels very bad for "poisoning" me. I've been diagnosed for close to ten years and don't mind the diet, but so many times I've had to explain my diet to clueless waiters and well-meaning in-laws and friends with the same frustration and fear getting sick if they don't understand. My question is this: how do you politely inquire to people who cook for you on whether or not the food is truly gluten free (without sounding like a total psycho)? And how on earth do you say "no thanks" when you're getting the impression that said food item is probably not safe for you to eat? Is there a website I can send people to explain gluten free cooking? I tried Googling "how to cook for someone with Celiac" and couldn't come up with much. I'm a dietitian and my husband is swearing that I should create a website if one doesn't exist already. I had a former boyfriend dump me when I told him I couldn't eat the (contaminated) dinner his mom had prepared for me, I'm getting desparate!!!
  6. I had mono in high school and my celiac symptoms developed shortly after recovery. I guess you could say I haven't been the same since
  7. I had the same thing happen after I went gluten free, but I think it was a combination of a few things. Your body is absorbing more iron, but you're also able to use all the nutrients and energy from the foods you're eating. Iron deficiancy will definetely make you tired though! The first 6 months I was gluten free I CRAVED iron-rich foods all the time-I used to eat a couple Hershey bars during my bike rides Nadia
  8. I haven't eaten out in 3 years. I've taken my own food into restaurants and enjoyed eating with friends and family, but I won't risk it. I've worked in a restaurant that had a "gluten free" menu (before I was diagnosed) and I know none of the people who prepared the food took it seriously. I'm too sensitive, and will be sick for days if I get any kind of contamination Nadia
  9. You may want to try white rice-like Lundberg, which says gluten free right on the bag-if brown rice is giving you problems. I've been diagnosed for 3 years and (knock on wood) haven't had a reaction in months, but brown rice still gives me issues Definetly try cutting out dairy and the almond milk for a while. I didn't start feeling better until everything I ate was completely unprocessed. Good luck- Nadia
  10. I've always used the excuse "I've been sick" to keep people out of my water, but sometimes I wonder if they're catching on I've never gotten sick from kissing my bf, even a couple minutes after he's had a beer. I thought I was the only one who did the "are you safe?" check before kissing him-to which he usually responds with an eye roll. Nadia
  11. I agree with avoiding energy bars and the like. I race mountain bikes comptetively and train between 25-30 hours per week. I don't eat anything processed as well. I rely on lots of fruits, veggies, eggs, fish, nuts, grass fed meat, and whole grains for my energy, and I've never felt better-no need to struggle with weight or energy levels). I second (or third) everything posted above. Peace- Nadia
  12. I went to SIU (go Salukis!) and lived in the dorms. I went to the school dietician and told her I was a celiac. They gave me a huge catalog I could order food from-Ener-g, Amy's, all the good stuff.....I ate like a queen when I was in school! I didn't eat out a whole lot-usually just at steak places (plain meat and potatoes and veggies), but when I went out, I always ordered rum and coke. I didn't have a hard time at all. Good luck- Nadia
  13. I've been dx'ed for over 3 years now. I guess I should think of the things that didn't get better after switching to a gluten free diet because so many things did! No more seasonal allergies, no more depression, hypoglycemia, breathing problems, stomach issues, skin problems, frequent illnesses, anemia, feeling faint, anxious, oh jeez, so many..........my hair never used to grow past my chin, now its down to the middle of my back, no more dark circles under my eyes.....much more confident, i don't "snap" on people anymore......... I guess every part of my life has gotten better! The only food besides gluten I can't do is soy. No stomach issues at all unless I stumble into some gluten. I do all my cooking from scratch-no premade anything. I race mountain bikes competitively and coach kids on the weekend-training about 25 hours per week, plus school and a full time job. My (very active as well) boyfriend claims I have the energy of a 13 year old boy. Oh and I got a cat! I used to be deathly allergic to cats! It does get better. I never thought it would, coz it's been a long journey, but I'm so thankful for being healthy now. Nadia
  14. A couple of years ago the company got in trouble with the governement (Canadian, I believe) because their gluten free cookies were contaminated. I got terribly ill from them a couple years back and haven't tried them since they put the warning on the back. Good luck and hope you're feeling better-if you think they're making you sick, then by all means, don't eat them! Nadia
  15. Already said, but Vitamin Cottage has an awesome selection! Better than Whole Foods and Wild Oats combined! I don't eat out, so I can't help you on that end. I used to live in the Chicagoland area and actually have an easier time out here now finding food. Good luck! Nadia