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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About Tigertail

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  1. Hi Fran, This rash sounds like Dermatitis Herpetaformis, which is a rash conneceted with Celiac Disease. I get this rash any time I ingest anything with gluten or use anything with gluten in it, such as creams, shampoo, toothpaste, etc..I don't always get the GI symptoms when I just get contaminated from gluten but I do break out with this rash in about 10 minutes from being contaminated. Try watching what you put on you skin and make sure all your seasonings are for sure gluten free and maybe that will keep you from getting this such annoying rash. Good luck, and good health, Lacey
  2. Yes you can have them any where. I get them on my knee's, elbow's, feet, hands, torso, inside my ears, my eye's, my private area, around my mouth, my arms & legs, in other words all over, lol. But as long as I stay TOTALLY gluten free I am totally clear of any rash. If I so much as get a crumb of bread, or kiss my grandchildren after they have eaten, or any type of contamination, I break out within 10 minutes. So of course I stay gluten free because it is so miserable. Not to mention the gut problems. Good luck, and I wish you the best. Lacey
  3. Hi Lexi, I don't know if this will help you but it is worth a try. I have been having your exact same problems plus a long list of others, but as for your yeast you might want to go to a dermatologist. I have yeast problems really bad, so when I started taking some fungal medications for a fungal problem in my sinuses I just thought it was a worse yeast infection but it wasn't. I went to my dermatologist and found out that it was a "Fixed Drug Eruption" from the fungal medication. My body is just getting sick of all the medications and is now fighting back by causing me to break out with what resembles a horrible yeast infection but is not. It has now happened with other medications and as soon as I stop them it starts getting better. No other doctor, not even my gynecologist knew this, it was my dermatologist. Good luck and I hope you can get this taken care of because if you have this as bad as I think you do, then you are miserable. I know I was. Take care, Lacey
  4. I have been having severe headaches for about 25 years. I am 49 years old and a confirmed celiac for 3 years. I also started having severe sinus problems 3 years ago and have had 6 sinus surgeries, by a sinus specialist at Stanford Hospital in San Francisco. My doctor cannot figure out what is in my sinuses and it just keeps coming back. I have been on a strict gluten-free diet for 3 years which has made no difference with my sinuses. Since having all these surgeries I now have severe nerve damage to my face which causes constant pain in my face and behind my eyes. I take a pain medication called Levorphanol, which is like a morphine, every 8 hours or I would not be able to function. My ENT specialist is not the only specialist I am seeing about all this, as I see many doctors here in my hometown of Redding, CA, in San Francisco, CA and in Mt. Shasta, CA and none of them can find what this is. I have no idea if any of my sinus problems are related to the Celiac and no doctors can tell me either, but if any of you that have responded to this forum have any ideas please let me know. Thank you very much.
  5. Mine does. My chin will look horrible at times, but as long as I stay gluten-free it looks fine. I am 48 and live with my husband and 20 year old daughter so I have my own area of the kitchen with stays gluten-free all the time. I have my own pots and pans and cooking utinsils. It is amazing how little gluten it takes for me to break out. I no longer eat out except at Outback which has a gluten-free menu and they are careful about contamination. It has been really hard but my skin looks and feels so much better. Lacey
  6. Hi Alona, Yes, your Dr. can do a biopsy. That is how I was diagnosed. They just have to make sure they do the biopsy right. It took 3 trys and the 4th to confirm DH. I have been gluten-free for over a year now, but if I do get any gluten, even a crumb, I break out with blisters in many area's including inside my ears, my privates, my eyelids, my hands. You name it I can break out there. After that biopsy I had blood work done to confirm Celiac. Good luck to you and stick to your guns about the biopsy. Lacey
  7. Hi, I have your same problem's, but one of my dr's realized I was having anxiety attacks due to all my health issue's and he put me on anxiety medication and all my symptoms of that went away. I still have the same problems of having to always stay gluten free, I still have dermatitis herpetiformis and my many other ailments, but my heart has settled down and my itching all over with no rash has now gone good bye. Just a thought, but I hope you get to feeling better soon! I know what it feels like to feel like this day after day. It is very depressing. Good luck!
  8. Thank you! BIG HELP!
  9. Thank you for your help! Thats sort of what I thought but I wanted to make sure. Do you happen to know of anything simalar to milk of magnesia that is gluten free that I could mention to my dr?
  10. Does anyone know if Milk of Magnesia is gluten free? My Dr. wants me to take it every other day but he dosen't know and neither do I. Please help! Thanks!
  11. Oh wow, you have all been very helpful. Now I wish my Doctors could do the same. In answer to the question about what my symptoms are, here goes. I was diagnosed just this last February with DH after years of suffering. They found this out after 4 skin biopsy's and then they did blood work to confirm Celiac. I went gluten free that day and was improving. Now since the shots I have been breaking out again and having gut problems and I have not been getting gluten in anything. I also have been having major problems all over but my doctors don't seem to think any of it is related to the celiac. I have been suffering severe headaches for years and I have had 3 sinus surgeries which have not helped. I also have Hasimotos-thyroiditis and had my thyroid removed 5 years ago. I have glaucoma, partial hearing loss which is getting worse, scoliosis, osteoarthritis, enlarged liver, diverticulitis and I had my first seizure just this last October 2nd. I had a complete hysterectomy 4 years ago and they also removed my appendix. I do have allergies but not that bad but my ENT wanted me to have these shots to see if it would help me from growing polyps in my sinuses. I am a 48 year old mother of 4 wonderful adult children and grandmother of 3 beautiful grandsons. I have always been very active and have always felt like a teenager myself but now I feel like such an old lady. I have no energy and I eat very little because when I do eat I get so sick but I am gaing weight rapidly. My blood sugar has been running high and I have diabetes in my family really bad but my doctors don't think its anything to worry about. I live in Northern California and and my options of doctors are limited. I have asked to be refered to someone down south but they keep putting me off and every doctor I contact want a referal from my doctor and I just keep going in circles. Now I have to add one more problem to my plate which is DEPRESSION. Thanks for listening and thanks again for all your comments.
  12. OK, I need your help. Does anyone know if there is gluten in Immunotherapy-Sublingual Therapy?(which are Allergy shots) I have tried asking my Allergist and I get no where. I have been gluten free since Feb. this year and I have now been soy and casein free since last month and I just keep getting worse. I have a gluten free kitchen, I use all gluten free personal items, I do not eat out as I am concerned about every thing I eat or put on my body. Please if anyone has any idea's please let me know. I don't trust Doctor's any more as I found them to be idiots. Thanks for any help you can give me.
  13. Hey Spunky! Thank you for that info on Dogtorj. I just got done reading some of it and it was quite interesting and I have a lot more to read. I have learned so much since becoming a member and I just thank everyone. Tigertail (Lacey)
  14. Thanks everyone for your input.You have all been a great help!
  15. Hi, Well it sure sounds like DH, but the best way to know for sure would be to see a dermatologist and have a biopsy done. I had four done before they finely did the biopsy right and got the correct diagnosis. I have been dealing with DH for years and I break out within 10 minutes of ingesting gluten even if it is just a very small amount and the breakout can last for days. I do take Dapsone for the itch (as it is not a cure) and it does help alot. If your not wanting a biopsy then the other thing to do would be to just watch every thing you eat really close even keep a food diary and check for all the hidden glutens. Good luck!