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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. I was just wondering if anyone knows whether mustard flour is gluten-free? I used to use it when I made egg salad and I noticed Kraft salad dressings have mustard flour in them. I'm going with the assumption that it is not gluten-free but was wondering if anyone knew for sure. Thanks for any help you can provide!
  2. Shakiness

    I don't know what the correlation here is but I was diagnosed because I told my Doctor about gnawing hunger-like pains that I experienced almost constantly. These pains were relieved with the consumption of sugar. If I did not eat or consume sugar I would eventually get very shaky and weak. For some reason when I told her this she decided that she needed to test for celiac and my blood work came back showing high IGG. I then went gluten-free for a month and felt fantastic. Since then I have been consuming gluten for biopsy reasons. I am meeting with the top celiac GI tomorrow and hopefully will be biopsied next week., I can't wait to be done with this I am so sick of being sick. I smashed up my new car earlier this evening because it affects my vision, particulary depth perception. I wonder if anyone else has experienced this? I would greatly appreciate any input on these areas. Thanks! Lisa
  3. I just went to a nutritionist yesterday and her advice was lots of protein. She said that our bodies are very damaged right now and the protein aids in healing. She also has me eating every three to four hours. I get a terrible gnawing feeling in my stomach and she thinks this is because I'm not absorbing my foods and It's actually hunger pain. She suggested starting out the day with a yogurt or energy bar. Three hours later I'm to have a muffin and a glass of milk-I'm actually consuming a little gluten now for testing purposes. For lunch she suggested tuna or deli meat on a gluten-free roll-she recommended Gillian's. You could also have a salad with meat or chicken on it and cheese. Afternoon snack she suggested some fruit and nuts. Finally for dinner any meat with potato and vegetable. Late night snacks consisted of another round of nuts or yogurt or even just a glass of milk. Today's my first day so we'll see how I do. So far it's worked well, the protein does seem to be helping my gnawing feeeling. Hope this was helpful for you! Good Luck! Lisa
  4. Thanks again Mariann. I've looked at those articles and they were very interesting. My books arrived yesterday, I think I'm going to start with Danna Korn's book. I also made my appointment with the celiac specialist yesterday. It wasn't as bad as they originally said, it's for August 19. Hopefully my Mom's boyfriend can get me moved up! Thanks again for all the support! Lisa
  5. Thanks again Mariann, I agree with you in that I think it's worth waiting. I figure I've lived this way for 36 years, so what's a few more months? We'll see in a week if I still feel that way! This Doctor that I would like to see works very closely with the local celiac group and is also my mother's boyfriend's Dr. He has Crohn's disease. He's got an appointment in the beginning of July so he was going to see if he could get me moved up. He's gone to him for over twenty years and is a big success story of his-hopefuuly he's got some clout. My whole family would prefer that I go to him so I've certainly got support there, if they can live with me! Where have you obtained your medical knowkedge of the disease? I read one book and have ordered two more, none of the bookstores around here carry any in stock. They have the cookbooks in stock but that is it. Thanks again for your concern and your help! Lisa
  6. Thanks for your responses. Do you know the name of the test that tests for IgA deficiency? I believe that is what my GI is doing now. Where do you find your information? I can find a lot of info on the diet but not a lot of detailed info on the disease. I am strongly considering waiting until I can see a GI who is a celiac specialist, I do not have confidence in my present GI. I inquired the other day and they said I would have to wait until September which is a long time to be sick but it may be worth it to be able to put this behind me once and for all. I'm trying to get some strings pulled to get in earlier. It would give me a longer time with the wheat so hopefully it will show up. I am not too sick yet, nauseous after I eat and extremely fatigued after two days on wheat. I can't believe how quickly I got tired again. I'm sure the worst is yet to come, how long after you eat wheat do you react? Thanks again for all your help, I really appreciate it.
  7. Four weeks ago my Dr. diagnosed me as having celiac disease. She stated I needed to remove glutin from my diet and that I would need to visit a nuritionist. The nutritionist they set me up with was told I had gerd, not celiac and told me she wasn't qualified to treat celiac. At this point I was starting to realize that this would be my battle and I was going to have to get informed FAST. I asked them to fax me my blood results. They are as follows: Antigliadin Abs, IgA-Neg Antigliadin Abs, IgG-42 t-Transglutaminase (tTG) IgA-Neg Reticulin IgA Ab-Neg Reticulin IgG Ab-Neg As I started researching it appeared to me that this was not, or should not have been a definitive diagnosis. I then contacted my GI specialist for a second opinion. In the meantime I have been glutin-free for a month and I feel better than I ever have in my life. I had my appointment today with the GI specialist who spent the twenty minutes of my appointment telling me why I didn't have it becuase the IgA blood markers were neg. He agreed to do a biopsy to get a definitive answer. As I'm about to leave he calls me out in the hall and has a blood script for me. Apparently in the time it took me to check out he must have researched and discovereed that in 15% of celiacs they have no IgA markers, they only have IgG markers. He said that depending on the result of this blood test I believe it was SPPE or something similar to that he would be able to diagnose me with celiac but would still follow it up with the biopsy. I have never heard of this test and am wondering if anyone knows anything about it. My biopsy is scheduled for June 23, I hope this enough time for the wheat to get back in my system. I should note that I have just about every symptom of celiac and a few extra including: excessive fatigue, osteopenia at age 30, chronic fatigue diagnosis 10 yrs. ago, IBS, bloated stomach, hair loss, testosterone deficiency, mouth sores, was 95 pounds until I turned 30, constant gnawing feeling in my stomach which leaves when I ingest sugar-this is what prompted my Dr. to test for celiac. I really thought I had an ulcer. Needless to say I am totally confused and feel that neither of my Dr.'s have a good handle on this disease. I tried to get ito a celiac GI specialist but I would have had to wait until Sept. and I was afraid what the glutin would do to me at that point after being off it for so long. I think I got cross contamination at the Outback the other night and the next 24 hours were extremely unpleasant. Based on that I felt I was better off sticking with my current Dr. through the biopsy and then switching. I would greatly appreciate any advice that any of you have.