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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About peanut369

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  1. Sadly, I didn't get support from the family until my night pains were so bad I was waking the kids up screaming when I tried to roll over in my sleep (they told me about it in the mornings - I was basically unaware I was vocal about the pain). I too began recently, experienced wonderful results the first two weeks, then began the roller coaster. What I've learned so far: 1) If you buy gluten free products, read labels and know what they mean. I tried gluten free five or so years ago and quit because it didn't seem to work. I got sick anyways. Now that the intolerance is worse, and I'm trying again, I found out that a gluten free brand that I HAD relied heavily on in those earlier years can NOT guarantee their products are actually gluten free. Many "Annie's" products only say, "Non Gluten Ingredients" -- that gets them off the hook for any preparation errors or cross contamination. 2) Don't take any flack. It's my health, not "the dissidents". Personal strength is the only saving grace. That and not wanting to be hurting all the time from various manifestations of the intolerance. 3) It's OK to live on a severely restricted diet. I can actually live for a week on long grain rice, green peppers and onions, and hamburger made from nice lean roasts (I grind my own at home). 4) Casein can be just as bad as gluten. It is in milk, dairy products and can be an ingredient unto itself in some things like soups. I get the same reaction from casein as I get from gluten. I don't know about others yet. 5) Now that I've toughed it out for a while, I'm actually getting to be OK (I don't think I'll ever be PLEASED) with the idea of the diet. Being a professional, and needing to be 'on' all the time, no matter what, it's a small price to pay for being in control of my own life. 6) I can finally lose weight! 7) Bob's Red Mill products are yummy, easy to make, (especially the "Mighty Tasty Hot Cereal") and tested to be gluten free. It's the only gluten-free product I actually TRUST. The rest of the store-bought gluten-free products I am skeptical of and always consider a gamble. 8) Though soy milk is gluten-free, I get this weird reaction that I think is from the carageenan. I can drink Rice Dream, original or vanilla, with no reaction of any sort. Even the coffee tastes yummy, with no big gas or well... you don't wanna know.
  2. College Visits

    I was traveling for the first time in a long, long time and had resigned myself to ordering a pasta plate without the pasta. As I usually do, I simply asked, "Can this be brought without pasta? I can't have the wheat." The waitress replied, "We have gluten free pasta. Would you like some?" I came so close to balling. All I could do was nod my head. Then she did it. She offered the choice of penne or fettucini! I told her my choice, so she would go without seeing my (way too) emotional reaction. I've never even heard of a restaurant offering gluten free choices before. My friend who travelled with me had an awesome suggestion - suck it up and ask for gluten free products wherever we are out. If enough people keep asking for it, resuaurants will HAVE to get the idea. The 'in' at this particular restaurant, I found out after, is that the chef has Celiac disease. The problem with this place? It was a 3.5 hour drive from home, and we just happened to be traveling through. That was in Vermont.
  3. What Happens When You Eat Gluten?

    If I eat gluten, a lot, within a short time (for me 30-45 minutes because I have a slow-emptying stomache) I get cramps, followed by nausea. Within an hour, I'm at the bathroom. Urgent. If it's just a little (an accidental taste of gluten pasta I'm cooking for the kids) I get the same reaction, but it's usually put off until the next day. Either way, a lot or a little, during the night I have severe pain in the neck and back, which continues through the day but to a lesser degree, headache, and light sensitivity. Over next 2-3 days can't think or talk straight. The severity of these is dependent on the amount of gluten eaten. I haven't found an amount I can tolerate yet. I also get really bad skin rashes that flare up horrible within 3-10 hours of exposure. I avoid gluten, casein, preservatives. I have KNOWN people "with" IBS, fibromyalgia, ADD, depression who imrpoved with gluten free diets, forcing the question of accuracy on diagnoses. "When you pick your specialist, you pick your disease." House
  4. Well, I gotta wonder. I eat only the Utz that is listed as gluten free and doesn't list casein or milk products, since I am very senstive to gluten and casien both. I thought Uts were great, too. But there was this ONE bag, I swear it's the ONLY option for contamination. I got sick for two days. I'm now in the third day, and it's not a flu bug. I don't dare eat any more, and the only thing I can figure is some milk/casein got in with the barbeque chips. I get the same exact response from casien as gluten. Anyone else?
  5. Casein Intolerance...

    Hey Guys - I wonder if any of you have looked into avoiding preservatives in addition to gluten/casein? I found that I was having a similar, but not identical, reaction to store-bought gluten free items: coke, cookies, prepared meals (like that yummy stroganoff) and even some gluten-free cereals. Eliminating preservatives has helped a ton, and next is casein because I still haven't got everything under control. I don't wanna! I love my milk! ?? ??
  6. I came on here specifically because I am on a strict elimiation trial, that has been going wonderfully! ...until I added these cookies. The only thing I can think of is, there IS a disclaimer on the package that the facility also produces products with wheat, peanuts, etc. They must not be very careful about handling after their gluten free product's ingredients are mixed and cooke. Go figure!
  7. It's funny because I logged in today to explore just this question! I've noticed that if I stop at Dunkin Dounts to get an iced coffee, no flavors, one sugar, skim milk (meaning no gluten!) I feel sick to my stomach by the time I get back out to the car. (yes, I drink iced coffee year round) I just had to leave my neighbor's house, because I went from feelig wonderful to being crampy, nauseous, and nasty within the course of about half an hour. My friend was baking regular cupcakes for a birthday party. The only thing I could figure was the thick smell of cupcakes cooking. I'm home now, and the feeling is already subsiding. Oh, the other day I went to Shaw's and bought some glutino cookies, and thought for sure they must have had gluten despite the labeling, because a few minutes after I scoffed a handful in the car in the parking lot, I got crampy and nauseus. Thinking back, the last thing I did before leaving the store was cruise the fresh bakery, where they were pulling baguettes out of the ovens. One thing about the smell: we need to know WHAT makes the smell of a baked good. Is it a gas, meaning no way can it make us sick because all the gluten stays in the product, OR IS the smell from actual particles of the bread that 'ride the heat waves' and sperad through the air? Anybody with a chemistry background out there? Umm... not to gross you out, but there's a reason things taste like they smell, it's usually becuase there are particles of the original in the air... thinking of farts this way is really freaky. Anybody have info to verify or debunk the science? Of course, this could be psychosomatic, because we smell something yummy we know we can't have. Stress is a funny mistress. I won't be offended, promise!
  8. It's hard to fight science with reality these days.
  9. Bear with me on this long post, there's a reason for telling such a story - to answer your post This is long, I know, but there's a response here about getting your friends to trial the child to gluten-free before he's older. Five years ago there was a special on 20/20 or 60 Minutes about Gluten Intolerance. This was the same time period that my middle daughter was almost 5, and doctors were considering whether she was in the Autism spectrum. She had severely delayed speech, talked and sounded like she was speaking Chinese, would have absolutely RANDOM tantrums, or spacy spells, or be extra lovey, for no reason WHATsoever. A close friend called me to tell me this special was on. The child they were describing on this Gluten Intolerance special was EXACTLY like my daughter. Call her Peanut2. After about 4 months of discussing with doctors, we finally found out the 'right' blood test of the time, and she tested positive. "It's a weak positive," I was told, and wasn't given much assurance that going gluten-free would really help her. They were sympathetic like they would be if I was dealing with a severely MR child and in denial. Well, at that point, Peanut2 was pretty sad off. Peanut2's behavior resolved within about three months of going gluten-free. Her stools straightened out, her speech TOOK OFF, and she is now a fairly well adjusted (though still extremely ...independent) young lady. I let us stop the gluten-free diet when it seemed like maybe that wasn't really what the whole problem was after all. All four of us (three girls ages 4-8, and myself) went gluten-free but later doctors convinced me to try Miralax on one, Cerave on another, and liver medication and treatment for gastric paresis on me. Without a firm diagnosis I guess the willpower wore off, and I was told to do gluten-free if I felt like it, but there was no medical reason. It's been almost two years eating normal again, and am I sick! I have fatty liver, thyroid issues, supposedly insulin resistance, chronic pain in my back and hips when I sleep. The mental confusion that crept up on me over the last few months, though, put me over the edge. I couldn't function at work. On a long-shot, I tried going gluten-free. Within a week EVERYTHING began to resolve. My weight has even started coming down (it had crept back up as my liver was starting to grow again). Part of the confusion I mention is I can't get words out right. Sometimes I pick the wrong word, sometimes I garble the sounds. I also get quite agitated, irritable, and just plain pi$$t off. Forgetful, too. What this has to do with Peanut2 is that I am now terrified that she may have a relapse, or worse. My relapse proves to me beyond any doubt that I have to stay gluten-free. Now what do I do for the girls? Peanut3 loves her pizza SO BAD (is a HUGE eater but slender. Another sign to suggest she should be gluten-free) and Peanut1 is a 12 year old strong-hearted, self-fulfilling, mother-knows-nothing girl that gets the 'plug-em-ups' but has already declared she'll never go gluten-free again. Like, hospitalizingly bad. If your friends even think the child might need a gluten-free lifestyle, it doesn't hurt - and the benefits can be life changing for a child who is mentally, physically, behaviorally, and/or speech inflicted by Gluten Intolerance. I waited too long to get firm about living gluten-free, and it may be too late for the 12 year old. Peanut2 is young enough to persuade, but just barely.