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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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GFinDC last won the day on January 29

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  1. Hello hopeful, Welcome to the forum! I don't know about URI's and celiac disease myself. But I do know celiac disease can affect any part of the body, if not directly then by nutrient deficiencies. Did you get tested for celiac disease before going gluten-free? If not you should consider doing that right away to find out for sure. Celiac disease is a lifelong condition and it's good to know for sure if you have it. If you are going to be tested you need to keep eating gluten until all testing is done. The testing is a blood check for antibodies to gliaden, a protein in wheat, and then an endoscopy to check for villi damage in the gut. It's much easier to be tested before going gluten-free than it is after being gluten-free for a few months. You would have to do a gluten challenge of 12 weeks before testing later. That can be very unpleasant if you do have celiac disease.
  2. Hi Gillian, Welcome to the forum! Four months is pretty early in the recovery process IMHO. That doesn't mean you can't do better and have improved digestion though. In celiac disease, what we eat is our medicine. Or our poison in some cases. So it is very important to choose foods that are good for our body and also easy to digest. Generally, whole foods like meats, veggies, nuts, and eggs are good choices. Having gut damage can cause our guts bacterial flora (microbiome) to get all out of whack and nasty. That can cause lots of symptoms by itself. Improving our gut biome requires healing first, and that means staying away from foods that cause upset. Sugar and carbs are bad for us when healing, as they feed bad bacteria that aren't good for us. So it's helpful to avoid sugar and carbs for a few months. That usually means avoiding processed foods which are loaded with starches and carbs. Dairy is often a problem at the beginning too, and some celiacs also react to oats. So it's a good idea to avoid both of those for a few months too. Digestive enzymes may help, Plain, simple foods are good.
  3. Dairy is known to cause C for some people. So it makes sense to cut it out for a while to see if that helps. A lot of these issues are things we can only learn about by trying it ourselves. We all have our own individual guts, and have our own individual reactions. So we have to test for those reactions ourselves. There is little help from the medical community that can identify food intolerances for us. For new people with celiac, it is generally better to err on the side of caution than not. The goal (IMHO) is to help people heal the fastest they can. While dairy is not a problem for all people, it is a significant problem that affects many of us. You don't know how it will affect you if you never cut it out. It may not help anything, then again it might help a lot.
  4. The edit icon functions are correctly showing now Scott. Thanks for the quick fix!
  5. Welcome to the fun house PO'd ! Or the forum I should say. Maybe we should call you "squirrel" from now on? It may seem impossible to live gluten-free at the moment, but there are a lot of us here who are doing it, and have for years. Quite a few of us have additional food intolerances beyond gluten. We may have to be a little creative in the kitchen to make things work. But there really are a lot of food options available. It might take a while to figure them out and get used to the change though. I hope this doesn't raise your dander, but I think I read some where that people who have gastric bypass surgery are at a higher risk of developing celiac disease. One of those side benefits they gloss over perhaps. Your celiac is probably contributing to your symptoms. Celiac can cause a multitude of symptoms, and they can be spread all over the body, not just in the gut. So going gluten-free may alleviate symptoms you don't expect. You'll find it does get easier in time. I am not saying it gets easier in a few days, but over months or years you can adjust and adapt. And feel better too. Withdrawal is something we just have to go through. There are some things that might help. Pepto Bismol can help soothe the gut and reduce pain. Plain aspirin can also help. Peppermint tea can help get gas out if you are bloated. Digestive enzymes can help process foods. I had gut spasms about 6 weeks after going gluten-free. Then they stopped. It's good to read a lot on the forum while you are starting the gluten-free diet. There is a lot to learn about celiac disease and the more you know the better you can take care of your body. Celiac can definitely affect mood IMHO. I used to have anger issues myself. That went away after going gluten-free. Simple, well cooked foods are a good idea for you. Think hamburger instead of steak. Cooked veggies instead of raw. Dairy probably is not your friend to start out. I am not suggesting cutting it out forever, but maybe a few months. There are dairy subs you can use in the meantime. Rice or almond milk, (not soy), Daiya cheese, etc, It's good to go gluten-free, as we can end up eating a much healthier diet than many people do. And the payback is not years away, but right now.
  6. Any kind of meat, fish, avocados, peanuts, peas etc.
  7. Hi Hendo, Welcome to the forum! You do need to keep eating gluten (wheat, rye, barley) until the testing is complete. The first testing step is usually blood antibodies testing, and later an endoscopy (not colonoscopy). The endoscopy is to take biopsy samples of the small intestine for microscopic review. The blood tests are for IgA and IgG antibodies to gliaden, a protein in wheat. Your symptoms do sound like they could be from celiac disease. I had some bleeding also but it was mostly related to a dairy reaction. The ongoing irritation of the gut lining can result in reactions to many different foods. Sometimes those reactions are temporary but sometimes not.
  8. Hi, If you click the green circle near the thread title it will open a little dialog window. Ciick the follow option you want. Then you'll get an email when a post is made in this thread.
  9. Hi coolsam, Celiac can start at any age. Symptoms are widely varied among people. Some people have no GI symptoms at all but they still have celiac disease. It is certainly possible you have celiac disease or NCGS. Yes, it makes sense to get tested. The testing is a blood test first for antibodies. Then later an endoscopy to check for villi damage. You need to keep eating gluten (wheat, rye barley) until all testing is done for the test results to be accurate.
  10. I am using Firefox on a desktop, with Windows 10. Yes, it's still happening. Same thing happens in Chrome. The same thing happens on a different computer, notebook using Windows 10 and Firefox.
  11. Jif Natural PB is gluten-free and soy free. And it tastes better than Skippy too. Quaker gluten-free marked rice cakes are ok. You can make corn muffins pretty quick and easy. There is often a recipe on the package of corn meal. I use half masa and half corn meal. A banana added in makes them less crumbly. Mission brand corn tortillas are gluten-free, I think they were already mentioned. Flourless peanut butter cookies are not hard, there are recipes online. Sugar free peanut butter fudge is pretty easy, again recipes are online all over the place.
  12. Angry Orchard doesn't like me much. But then I don't feel well after drinking any commercial ciders. I don't think it's gluten, but some other reaction. So that's something to consider, as we can develop reactions to any food ingredient, not just gluten.
  13. Hi Cara, You got it right, staying on gluten until testing is complete is very important. Celiac disease is an autoimmune condition and the testing is looking for antibodies (blood tests) or the damage caused by antibodies (endoscopic biopsy). Since the antibodies start to decline after going gluten-free, the testing results are affected. Celiac disease can damage the lining fo the small intestine, which then makes it hard to absorb nutrients our bodies need to function. So we can get symptoms of vitamin and mineral deficiency and also plain old fatigue from not having enough food for our cells to eat. Celiac can be kind of like starving on an all you can eat buffet. Lack of nutrients can affect every organ of our bodies and their functions. So there are many different symptoms that people can get. Once you go gluten-free the the immune response should begin to taper off. But it doesn't stop on a dime, or in a few days. It can take weeks or months to stop. So your gut will start to heal and you will start to absorb nutrients better, but not instantly. Any crumb or tiny amount of gluten can kick the immune response into high gear again. We call that getting glutened. A great way to start the gluten-free diet is to eat whole foods, like meats, nuts, veggies, and eggs. Skip the dairy for a few months. Also avoid any processed foods for a while and sugar and carbs. Eating simple foods that are easy to digest is helpful. It's also nice not to have spend a lot of time reading through ingredient lists and interpreting what might be gluten, rye, or barley. Around 10% of us also react to oats so it is best to avoid them at first. The University of Chicago celiac center has a good FAQ on celiac that might help. http://www.cureceliacdisease.org/faqs/ Welcome to the forum Cara!
  14. I assume you are wanting responses from 1. people who have school age children? Or 2. people who are students themselves in some kind of school situation? There is a section of the forum for parents of children with celiac disease. You might find some threads there that would help. https://www.celiac.com/gluten-free/forum/10-celiac-disease-parents-of-kids-or-babies-with-celiac-disease/
  15. I'm a recently-diagnosed celiac patient. I also have dairy allergies, Crohn's disease and a colorful array of other autoimmune issues. My dietary requirements (as many of you have also experienced) has forced me to be extremely diligent about the food I eat, eating out, eating with friends, etc. I'm also working as a teacher and attending college for my master's degree in special education. In school, I see students with allergies isolated out of concern for student safety. On class trips, my dietary needs are downplayed as insignificant. ("Oh, she'll just get an upset stomach if she eats contaminated food") I'm willing to bet that many of you have experienced this, too. I would like to change the way our students are treated and isolated because they have special dietary requirements, so I'm writing my master's thesis about the impact of social isolation on students with food intolerance, sensitivities and allergies. Please contact me if you would like to participate in my research. I will be very grateful and will be happy to send you a copy of my thesis and the results of the study when it is completed. Thank you for your time. Re-posted the text for easier reading.