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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Hi Arduaine, Welcome to the forum! Glutenings can cause different symptoms in people. When you are new to the gluten-free diet and early in the recovery, they may cause more intense symptoms than later. Most likely because your immune system is already in a heightened state of alert for gluten. So symptoms can last for a variable amount of time, but 6 weeks to 3 months or more is a possibility. It varies so much because our bodies are not all the same. After a few years a minor glutening may cause different symptoms or shorter symptoms. There is just no guarantee for how our bodies will react though, it is very individual. Reactions at the beginning of the gluten-free diet can be stronger than we might expect. Anxiety can be a symptom of vitamin deficiency which is also a problem with celiac disease. B- vitamins are one possible culprit.
  2. Hi Louie, Welcome to the forum! It's true, you probably are doing the gluten-free diet wrong. The gluten-free diet is a huge change for many people, and it can take sometime to learn it and how to avoid all the places gluten can hide in foods. Really I consider the first 6 months a beginners learning phase. Doing a major diet change that can affect your health so drastically is not a simple thing. It's not as simple as adding a pill or taking a shot to cure a disease. There is no cure for celiac disease and the best treatment is the gluten-free diet. Celiac disease is an immune reaction in our bodies and our immune systems are pretty intense fellows. They don't take breaks or days off and mount a sustained defense against invading bad guys, like bacteria, antigens and gluten. That immune response can last 3 months or more as the immune cells live and continually react to bad things. Like our poor guts! Anyhow, recovery from celiac disease takes time, and 18 months is not unusual. Also recovery can be an up and down process not a straight line up. The quickest recovery is probably made by eating a simple diet of whole foods and avoiding wheat, barley, rye and oats. Plus avoiding most processed foods and dairy. Try to cook most foods you eat yourself, and look for foods at the grocery with 3 ingredients or less. Remember, you may be low on certain nutrients and be unable to absorb them correctly for awhile. So recovery can be slowed by that. Over time as your gut heals your body can also heal and recovery can happen. We need to treat our guts gently at first so they are not irritated any more than they already are. So spicey foods are best avoided for a few months. The gluten-free diet gets easier in time and you begin to learn to listen to what your body is telling you. In our case if we eat right our bodies can be healthy and strong. If we skimp or cheat on the gluten-free diet we set out healing process back. It's not a weight loss diet it is a medical diet. Some people find digestive enzymes helpful also. You may find peppermint tea helpful for gas.
  3. Hi Roxpet, Sorry for the additional health issue popping up. More diet changes needed is what it sounds like. I had elevated blood glucose for a while years ago. I changed my diet and it went back to normal. So I think they consider that pre-diabetes. Which is common in many people in theory. But a diet change is what made a difference for me, and it might help you also. You don't have to eat a lot of sugar to be gluten-free. I use stevia in my tea instead of sugar. I also use it in baking in place of sugar or to replace some of the sugar. I don't bake a lot though. I don't eat dairy myself as it causes me problems. But you are right, most yogurt is sweetened. There is a thing called the glycemic index of foods, which assigns a rating to foods for how fast they cause blood glucose to rise after eating them. Rice is worse than sugar. But with the glycemic index, its the whole meal index that matters most. Meats/proteins are slow to raise blood sugar. So if you always eat some protein with a meal it can lower the glycemic index of the meal. That's a good thing. Carbs are bad of course, like flour, sugar, rice etc. But you can eliminate a lot of those from your diet, or reduce them a lot. Eating mostly whole foods is a good way to go. I don't eat bread often, but do eat Mission corn tortillas sometimes. It's all a matter of getting used to eating differently I believe. There is a diabetes forum online where some of the people say they got off their meds (insulin) by just changing their diets, reducing carbs to almost zero. So it is possible to get past it in some cases.
  4. Have you been tested for a stomach ulcer? That's what the pain sounds like to me. You can also get pain in your stomach from too much gas. Another possibility is GERD.
  5. Hi LexieA, It's perfectly ok to grieve or feel down because of a diagnosis of celiac disease. Feelings are not obligated to perform on command. But, over time you can adjust to the new diet reality and even like it. Getting used to eating mostly whole foods and more natural foods is a good thing. There are lots of new food ideas to explore and learn. There's a thread on 5 minute microwave buns on the forum somewhere. Plus threads on bread recipes. Breakfast ideas thread, snack ideas threads etc. I don't do much baking myself but sometimes I make gluten-free peanut butter cookies, 3 ingredients and they taste great. So there's a lot of neat stuff to learn and it does get easier in time. There is a gab/chat section of the forum which can be helpful at times. There used to be an online message chat feature on the forum but I don't know if that is still active.
  6. Hertzya, Congrats to you for sticking with your service in spite of celiac disease. That seems like it would be hard to do, And thanks for your service to our country!
  7. Pain

    Hi Linda, The symptoms and pain different people experience with celiac disease vary widely. Some people have no symptoms at all. Pain symptoms can be in various areas. I wouldn't say your pain is not "correct" for celiac disease because of this. The first thing to do is get some blood tests done for celiac disease. Don't stop eating gluten until all testing is completed, including a possible endoscopy. The best thing to do is get a complete celiac panel, as some people don't show up on the standard limited tests. Welcome to the forum!
  8. Hi Mykalis, Welcome to the forum! I suggest getting your vitamin and mineral levels tested in case you have a deficiency in something. Then you can supplement that item or eat more foods that contain it. Another thing that comes to mind is your symptoms sound a little like an epilepsy attack? Maybe a test for epilepsy could show something. I hope you figure it out soon!
  9. Hi, You might want to go ahead and get him tested for celiac disease right away. The testing depends on finding antibodies to gliaden (a gluten protein) in the bloodstream. When you go off gluten the antibodies start to decline, so the testing can fail and show a negative even if he has celiac disease. It's better to get tested for celiac before starting the gluten-free diet. Testing later require going on a gluten challenge (eating gluten for 12 weeks), which can be very unpleasant and painful.
  10. Reviewing the Early Signs

    Hi Ennis, My parents aren't around to answer questions anymore, but they told me that I put my oatmeal bowl upside down on my head and refused to eat it. I think that counts as rejecting a food. Other than that I was pretty skinny until I was in my mid-forties and then on a little weight. Even though I ate like a horse. I became lactose intolerant about 7 years before finding out I had celiac. During that period I became increasingly sicker. Now I am much better though and that's good!
  11. Approximately 30% of the USA population carry one of the genes for celiac disease. But only about 1% actually develop celiac disease, which can happen at any point in life., young, old or in-between. Having the genes does not mean you have celiac disease, it means your immune system may turn celiac at some point. There is also an increased risk of celiac disease with gastric bypass surgery. A couple of people have posted about developing celiac disease after having gastric bypass surgery in the past.
  12. Hi dalek100, I had low vitamin D for years. It is hard for our bodies to absorb nutrients when our guts are not working right. Plus vitamin D is not present in most foods. It is found in oily fish like sardines, mackeral, tuna and salmon. Also you can make it on your skin if you get out in the sun at the right time of day in summer and for long enough. Sun exposure is helpful but some parts of the world don't have enough sun for it to work well. And the angle of the sun has to be right also, so depending on the lattitude it can be a problem. You can find more info at the vitamin D council web site. https://www.vitamindcouncil.org/
  13. Hi David, Welcome to the forum! Here is a study link looking at neurological effects associated with gluten sensitivity and celiac disease. There are many symptoms of celiac disease, and also a higher chance of schizophrenia and other conditions like T-1 diabetes. rhuematoid arthritis etc. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ Here is a link to a thread about some mental symptoms people have suffered. There are more threads on the subject on the forum. Anger, Quick Temper, Depression http://www.celiac.com/gluten-free/topic/34917-anger-quick-temper-depression/ There is a condition called gluten ataxia that affects some people with celiac disease where the antibodies attack cells in the brain. It can cause difficulty walking and coordinating muscle movements. So there is definitely a link between gluten ingestion and possible brain affects. I am currently taking the NAMI family to family class so have a vague understanding of some condition symptoms. It sounds like you are describing bipolar disorder? It's good you are getting treatment for it. I was depressed for a time before going gluten-free myself. https://www.drugs.com/risperidone.html Common risperidone side effects may include: headache; dizziness, drowsiness, feeling tired; tremors, twitching or uncontrollable muscle movements; agitation, anxiety, restless feeling; depressed mood; dry mouth, upset stomach, diarrhea, constipation; weight gain; or cold symptoms such as stuffy nose, sneezing, sore throat. Here is an article about wheat and schizophrenia. https://www.psychologytoday.com/blog/evolutionary-psychiatry/201103/wheat-and-schizophrenia If you want to try the gluten-free diet,we can help with pointers on getting started. But the best thing to do is stay on a regular gluten eating diet until all celiac testing is completed. The testing involves taking blood samples to check for gluten antibodies, and usually an endoscopy later to check for intestinal damage. There is no testing for GS (gluten sensitivity) yet. Sometimes we call that NCGS, or non-celiac gluten sensitivity. I suggest staying on your regular medication until your doctor says anything different.
  14. Help!

    Another thread from some years ago on the subject. Things may have changed since then.
  15. Just diagnosed

    Hi Michelle, The dermatologist can diagnose you for DH by taking a biopsy skin sample from adjacent to a lesion/blister. You shouldn't have to wait for or get an endoscopy. Only people with celiac disease get DH (dermatitis herpetiformis). So if you are diagnosed with DH you are diagnosed with celiac disease.