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GFinDC last won the day on January 11

GFinDC had the most liked content!

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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  1. Hi CT, The genes are a possibility of getting celiac disease, but most people with the genes don't get celiac disease. It's not an automatic thing to get celiac if you have the genes. The usual diagnostic process is a blood test for antibodies first, and then and endoscopy with biopsy samples for microscopic review. So your doc is following the usual testing process. You have to decide if you want to go through with testing. It will be harder to do testing later than it is now. later you would need to go on a gluten eating challenge of 12 weeks for the blood tests and 2 weeks for the endoscopy. That ain't easy if you have celiac and have been gluten-free for a while. Since it's lifetime diagnosis some people want the full test procedure to prove it to themselves that gluten makes them sick. Some people already know that and don't care for the rigamarole of full testing. It's not like the testing is perfect, you may still get a negative results even if you have celiac disease. I didn't get the endoscopy because I had been gluten-free for 4 months before I got in too see the GI for testing. And I was working and couldn't see getting terribly sick for 12 weeks to prove what I already knew, that gluten made me sick, sick, sick. I had a stressful job and it wasn't easy to do in the best of times. Otherwise it was all fun! So, think hard about if you need the diagnosis to stay gluten-free. Some do, some don't, Very helpful huh?
  2. Ack, I think we may have a cat lover on the forum! I can definitely help you out with that though. Just pm me your address and I can shoot a box of 20 or so cats at you to enjoy! Yay! 1% of the population is still a pretty big number out of over 300 million. So there are quite of few of us around. More than 20, that's for sure. It's normal to feel a bit depressed, sick, and however else you want to feel about learning about your condition. I know I wasn't supper thrilled by the new myself, especially when I started really learning about the changes I'd have to make. No more Friday nights with Marie Calendar's turkey pot pies and a 6 pack of good beer for one thing. Ahh well, there is reasonably ok gluten-free beer available now. And it turns out there are plenty of other foods to eat besides frozen pot pies in a box. There are some social type things I quit doing because they were focused on food and cost money, so that was kind of pointless for me since I couldn't eat the food anyway. But often enough if it was something not primarily focused on food, I could bring my own food with me or find something simple to eat like fruit and nuts at shop. None of my friends seemed to mind this although they sometimes would ask about it. Which made for a great opportunity to educate them about celiac. Getting better is not always real quick, and may take a year or more for big changes. Anytime we are glutened it sets the recovery clock back some because the immune reaction is kicked off again. So it seems to me it is more important to be extremely gluten-free at the beginning of the diet (first 6 months or more), because we are still trying to get initial recovery under our belt and our guts settled down. There is a possibility of additional food intolerances developing also. That can make things confusing if you know you are definitely gluten-free but are still getting sick. The thing we use to find additional food intolerances is an elimination diet. All this stuff is new and maybe seems strange now, but after a year or 2 you will probably be an old pro and have it down pat. When you get used to eating different, then it just the normal way you eat, not a burden. Plus you can always have the fun of logging into the forum so we can all talk abut how you eat! @Rowan, Please do stick around the forum. None of us are perfect and sometimes we just don't know how to say things the perfect way. But I doubt there is a better place to get information on celiac and find real life celiac experience than here.
  3. Hmm, don't they always think that about every hubby? Fatigue is not uncommon I don't think. I sure had plenty of fatigue before going gluten-free. Some of the fatigue could be caused by vitamin deficiencies, but it can also be caused by inability to absorb fats and the constant immune attack on your body. Eventually some people might develop what's called adrenal fatigue also, Lots of things can go whacky in our bodies when they don't get proper nutrition. You may develop stronger gut symptoms after being gluten-free for a while. Once we start healing it seems like a new glutening can be more noticeable symptom wise. One processed food that works for most people is Mission brand corn tortillas. The are made on dedicated lines and only have a few ingredients. They make a cheap alternative to bread. Quaker rice cakes are another cheap option. Some of them are marked gluten-free now. Corn meal muffins are pretty easy to make also. I use 1/2 corn meal and half corn masa. 1 cup of each, 1 egg, some sweenter (Pyure), a little salt, some baking powder, and baking soda, salt and pepper and maybe garlic powder. Add enough almond milk to make a pancake like batter. I add a little acid too like lemon juice or vinegar. 22 minutes at 375 F. in a muffin pan.
  4. Beans no likea me! The only ones that don't bother me a lot are the Bushes baked beans in can. I guess it has something to do with how long they are cooked, but they seem easier to digest.
  5. Hi shollie, It's a good idea to find a doctor who is familiar with celiac diagnosis. You can try searching for a local celiac support group in your area. They might have recommendations for good doctors.
  6. You might be thinking of soy sauce? Soy sauce often has wheat in it. There are some gluten-free versions of soy sauce though. Unfortunately the evil soy has invaded our planet. Soy is one of the top 8 allergens in the USA. So there are a lot of people who have reactions to it. But for most of us it is not a gluten issue, unless they are eating soy sauce. Then watch out!
  7. Hi Roxy, Ceramic should be fine, as long as it is cleaned well. Welcome to the forum!
  8. That article had some good suggestions. Water/moisture is probably the problem. You could try a dehumidifier to remove some of the moisture in the air. Dehumidifiers can be a maintenance issue though as they have containers that fill with water and have to be emptied somehow. Another thing that might help is a black light. Black light inhibits mold growth. You would want to always turn the black light off when entering the area though, as it can be bad for your skin/eyes. A building I visited once had a giant indoor pool. They had network equipment in small rooms. They set up a timer to run a black light in the network rooms for 5 minutes every 15 minutes or so. Had a light switch with an indicator light on the outside so you knew if the black light was running. Just flip the switch off and it was safe to enter. The black light kept mold from growing in the network rooms.
  9. Hi again WW, Your kids should be tested for celiac disease also. There are a couple of genes associated with celiac and they may have inherited them. If you have brothers or sisters they also have a chance of developing celiac disease if they have the gene/s. Having the genes doesn't mean you automatically get celiac disease, but that you have the possibility of developing it. There are celiac disease support groups in many areas. You might find one by Googling your city name and celiac disease. Some hospitals have support groups or let support groups meet in their facilities.
  10. Hi Weekend, Such a big diet change can be bit daunting at first. But in time you will get used to the changes and adapt. It's best IMHO to stick with simple, whole foods for the first few months at least. You need to avoid all gluten and that is easier if you aren't eating any processed foods. You can always add those processed foods back into your diet after you have been gluten-free for 6 months or so and recovered some. A problem with many gluten-free processed food products is they have no added vitamins and contain more sugar and empty calories than regular gluten foods. Avoiding lots of carbs and sugar is good because it prevents bad bacteria from going crazy in your gut. Pro-biotics are good thing to add to your daily vitamins. So stick with whole foods, eat simple meals, avoid any restaurants and eating at friends for a while. You may be low on some vitamins so your doctor should check that if they haven't already. Recovery time varies but it could be up to a year or more for your gut to recover and heal. Celiac is an immune reaction it takes very little gluten to make the immune system fire up and attack our guts. And the immune attack can take weeks or months to subside. That's why it is important to be extra careful at first so your system can heal. Welcome to the forum Weekend!
  11. No need, I moved the thread for you.
  12. Hi Shollie, You might get more help if you post in the Dermatitis Herpetiformis section of the forum. https://www.celiac.com/gluten-free/forum/26-dermatitis-herpetiformis/ You can also report the thread and ask a mod to move it to the DH subsection if you'd like.
  13. Hi Shanti, You could try some Milk of Magnesia to help move things out. I think eating more rather than less is helpful. If you have lots of gluten free food in your gut it can kind of thin-out the gluteney stuff in theory. The last thing you want is to not eat and have all that gluten hanging out in your gut. Pepto can help coat the gut and hopefully reduce irritation. But it is something you would have to take every few hours to feel and effect. Pepto has aspirin in it so don't exceed the recommended dosage. Peppermint tea may help too.
  14. I ate dairy with no problem for decades CL. It wasn't until I developed celiac disease that I started having problems with dairy. So, yeah it is somehow related. I think it is just an additional food intolerance like any others that people can develop when they get celiac disease. Dairy causes me pain and bleeding. Not just the typical lactose intolerance symptoms.