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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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GFinDC last won the day on January 5

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  1. Yes, you can eat bananas but only on Sunday. Kidding. Peter has it right. Most fruits, veggies and meats are naturally gluten-free. The problem for celiacs are grains including wheat, rye, barley, and oats (only some celiacs react to oats). Any food though can be contaminated with those grains. An example could be a bakery that sells fruit. The flour in the air could land/settle on the fruit. So a simple solution is to rinse foods before eating them.
  2. Hi lex, I haven't tested anything with NIMA myself, since I don't have one. I did find some honey sites that claim they have gluten-free honey. This is just a couple I found in a quick search. It seems to me honey is made from nectar of flowers. The nectar is a precursor to the seed. So the seed isn't formed until the flower is fertilized. Then gluten is formed as the seed matures. So normally I think there is little chance of honey having gluten in it because the nectar and gluten are not present at the same time in the plants. I don't think it's impossible for honey to somehow get some gluten in it. Honey from china has been adulterated with other things already. Generally high fructose corn syrup. But who know what else they put in it? I think's its safer to buy local honey where you know the farmer than imported brands IMHO. If there were a large flour mill in the area where the honey was being harvested I'd be a little wary of it myself. At least for honey produced during the harvest season. http://www.barkmanhoney.com/faqs/does-honey-contain-gluten/ http://www.capilanohoney.com/au-en/faq/is-your-honey-gluten-free Is your honey gluten free? Honey is naturally free of gluten. It does not contain wheat or its by-products. Our honey is 100% pure and natural, nothing has been added to it, therefore it is 100% gluten free. In addition to this, no gluten containing products are handled or stored in our packing facilities.
  3. Hi Katie, Welcome to the forum! :) You've got some good advice already. You are catching your celiac disease at a young age, so that helps. You can avoid a lot of problems some others developed from years of eating gluten before finding out we have celiac disease. I think the first 6 months of eating gluten-free are very important. It's a chance for the immune cells to go down and the body to start healing after possibly years for damage. In celiac the immune attack damages the intestinal lining (villi) that absorb nutrients. That villi lining is very important to our health as we can't properly absorb vitamins and minerals if it is damaged. We need those nutrients to heal and grow. Eating a very simple diet is a good way to go for 3 to 6 months. Avoiding processed foods means you don't have to spend all day reading ingredient labels in the grocery store. Things like veggies, plain meats, fruit, eggs etc that are whole single ingredient foods are a great way to go. This means cooking a lot of your own food but that's a good thing to learn anyway. There's much less chance of getting glutened with whole, unprocessed foods. Avoiding dairy for several months can help also, and oats should not be eaten until 6 months to a year. There are some of us that react to oats also.
  4. Hair loss

    I know someone who lost a lot of hair when they were low on iron for quite a while. Maybe a low amount of red meat in your diet is causing an iron deficiency? Just guessing.
  5. Geez Matt, you didn't have to post such a depressing study did you? That really is an eye opening review of dairy in chocolate and inaccurate package labels. Per the industry rep, some of the problem seems to be cross contamination due to shared equipment that is used for making milk chocolate. They didn't study gluten contamination. But it seems like the same x-contamination could happen there. And not be labeled at all like the dairy isn't in the label either. It seems the only responsible thing is for all celiacs to stop eating any chocolate right away. By the way, this isn't how rumors/myths get started! Or is it? Over here we have a brand called Enjoy Life that makes products that are free from most major allergens. I think they are a pretty reliable company. Not sure if you get Enjoy Life products over there though. Their choc chips are in a mostly yellow bag.
  6. Lots of water and charcoal tablets. Some Me + My Gluten Assist from CVS might help a bit. Pepto Bismol perhaps. Peppermint tea can help get gas out.
  7. celiac?

    Hi Rebecca, A negative ttg test 15 years ago is out of date today. If your doc won't run a full celiac panel on you, try and find one who will. The ttg-IgA is just one of several antibody tests that should be done. Please find a doctor who know more about celiac disease. What you describe are pretty classic symptoms IMHO. If you search for celiac groups in your area you might find a doctor recommendation from them. There is also a doctor section on this forum that might help. You should keep eating gluten until all testing is completed. Testing is usually a blood antibodies test first (the celiac disease panel) and then an endoscopy later. A gastroenterologist is generally the person that does the endoscopy and it cans sometimes take a few months to get an appointment. Welcome to the forum Rebecca!
  8. I've got some nerves that were stretched in my left arm after it twisted during a fall. Lost feeling in my left hand /arm for a couple years after that. After 5 years the feeling was mostly returned although not completely even now. So nerves take a long time to heal.
  9. Hi Geoff, Welcome to the forum! Your bright objects on the brain-thing are often called UBO's or unidentified bright objects. If you want to read more about them, Type UBO in the search box upper right side of the screen and click the little magnifier. There are quite a few threads about UBO's and gluten ataxia on the forum. Matt is right, the immune system kicks in to defend your body from attackers at very small amounts of exposure. And the immune reaction does not stop 4 days later. There will be elevated antibody levels for weeks to months after a gluten exposure. Symptoms do not always correlate to damage being done. Some people,with celiac have no symptoms when diagnosed and they are called silent celiacs. The testing is generally 12 weeks of eating gluten for blood tests and 2 to 4 weeks for the endoscopy. Personally I wouldn't do the gluten challenge because the damage to my body is not something I want to inflict. The result is the same for me anyway, I can't eat gluten either way as the symptoms are too debilitating. By the way, being overweight is not unheard of with celiac disease. There are some threads about weight issues on the forum. People often recommend taking B-12 for nerve issues. You could try that to see if it helps. Vitamin D can be helpful too.
  10. Not that you were thinking of getting me something anyway, but just in case, please don't get this! https://www.amazon.com/dp/B01HYTW6E2?ref_=pfb_675k6caf0i9e7iken18aimka2gbl&tag=hydfbook0e-20&ascsubtag=pfb-P11-V01-O5-fydp8e-4LJ6TN Eww! Superelead 4PCS Multicolor Wheat Straw Biodegradable 13.5Ooz Unbreakable Drink Cup Tumblers for Water, Coffee, Tea, Milk, Juice via Amazon
  11. Hi Mystic, Part of your issues may be the normal recovery process. The healing in our guts increases the villi surface area resulting in lots of new territory for bacteria to live. That can be good if you have all beneficial bacteria in your gut. But most of us don't, especially after having a digestive disease for a long time. So lots more bad bacteria can take over and cause problems. Probiotics can help that situation in theory. But IMHO you shouldn't expect normal digestion until some healing time has passed, which could be months for some of us or longer. It takes time. In the meantime try to stick to low carb foods and basic, unprocessed foods. The simpler your diet is the easier it is to isolate foods that cause symptoms to flare. Think of eating simple, easy to digest foods, not manufactured or restaurant foods. Fancy foods (complex foods with lots of ingredients) are not your friend right now. Low carb also means low sugar, and lots of veggies and meats. Most of your food should be cooked by you at home. There's plenty of time to get adventurous and eat other foods after you are healed. But to start it helps to take it easy and give your gut a break. Your original post asked if symptoms after 2 months is normal. Two months is just getting started on the gluten-free diet. I had gut spasms for 6 weeks after going gluten-free. Getting normal was a much longer process. The easier you make it on your gut the faster you will recover. I hope you feel better soon!
  12. Sick with what I think is the flu

    Hi Rain, I had the flu this year and got by with aspirin, hot tea and fermented grape juice. Some people say echinecea can help and maybe coconut oil or oregano oil. I don't know though, I didn't try them myself. Here is a site with information on gluten-free drugs. http://www.glutenfreedrugs.com/
  13. Hi Liblue, Welcome to the forum! Now that you are gluten-free, your body can start healing. It will take a while for the antibodies that cause the damage to go down. It may take weeks or months. It depends a lot on how good you are at keeping gluten out of your diet. The Newbie 101 topic in the "Coping with" forum section has getting started tips that may help. I like Mission brand corn tortillas as an alternative to bread. But there are also several gluten-free breads on the market. You may notice that your celiac reactions become stronger after going gluten-free. There is a big change going in in your gut as it starts to heal. It can be helpful to eat a simple diet of whole foods and avoid most processed foods for several months. Pepto Bismol and peppermint tea and aspirin can help with symptoms. You are on your way to better health now!
  14. Hi Joelle, It's sometimes difficult to be sure what foods are causing us reactions when we first start the gluten-free diet. Our digestive system is out of whack (not a scientific term) and needs time to heal and establish a healthy gut flora. Six months to a 18 months is a possible healing time frame but it can take longer depending on lots of variables. So you may have reactions now that won't happen later on when your body is healed more. Then there are food intolerances that may last your life too. Eating a simple diet of mostly whole foods you cook yourself is helpful for healing.
  15. Hi Anne, Welcome to the forum! You are catching your daughters illness very early, and that is a great advantage. Many people go a very long time before being diagnosed and the damage tends to build then. But you are helping her get to a beginning recovery stage very early. Plus children tend to heal faster than adults so that's plus too. The usual diagnosis process includes the blood antibodies and then an endoscopy. but some doctors may diagnose without the endoscopy given symptom improvement and antibody decline after going on the gluten-free diet. But that way of diagnosing is unusual. The endoscopy is not often a big issue.although she should have been eating gluten for 2 to 4 weeks before it. Often there is a delay of several months between the blood antibodies and the endoscopy due to scheduling. I can tell you that people seem to find it harder to stop gluten and then restart for a few weeks before the endoscopy. It's easier symptom wise to stay on gluten until all the testing is done. Celiac disease has genetic component and other members of your family or your husband's family may have the genes also. Having the genes makes it possible to develop celiac disease, but it is not definite that the person will get it. There is lots to learn about eating gluten-free and we are glad to help answer questions.