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GFinDC last won the day on January 22

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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  1. Hi cbochner, I haven't take serokill myself, but I know people who have problems getting off prescribed medications. I hope you are tapering off it rather than going cold turkey? Tapering off is perhaps a little easier and safer for your system. Maybe cut the pills in half for a while? When glutened I think it helps to get the gluten out of our systems quickly. So anything that gets things moving out is good. In the USA, we have Milk of Magnesia for that. Another thing that may help is eating a little more food than normal, to thin out the gluten some. This probably is most helpful if done right away after eating the gluten. Pepto Bismol may help symptoms some. It can kind of coat the intestine. The biggest problem though is the immune reaction kicked off by gluten exposure. The immune response just has to run it's course I'm afraid. Peppermint tea may help bloating, and plain aspirin can help pain if you have it.
  2. Hi Jammy, I am sorry to hear you are having problems on the gluten-free diet. Healing our guts is not always fast, as the immune response is not always shut down very quickly. Also, even a tiny amount of gluten can keep the immune response going, or kick it off in high gear again. Another problem is our gut bacterial flora can be out of whack due to the long term celiac disease damage. We can't always digest carbs and sugars correctly and the undigested carbs provide a massive food source for nasty bacteria. That's why it is helpful to limit carbs and sugar and dairy for that matter. Assuming your issues are related to celiac disease, there are some steps you can take. One, make sure you are 100% gluten-free. No cross contamination or risky foods like processed foods. Try an elimination diet. An elimination diet can help us determine if we are reacting to one or more foods. It is possible to have more than one food intolerance crop up. A person can develop an intolerance to any food. The most common food allergens (the top 8) in the US are ********************************************** http://www.fda.gov/Food/ResourcesForYou/Consumers/ucm079311.htm Major Food Allergens While more than 160 foods can cause allergic reactions in people with food allergies, the law identifies the eight most common allergenic foods. These foods account for 90 percent of food allergic reactions, and are the food sources from which many other ingredients are derived. The eight foods identified by the law are: Milk Eggs Fish (e.g., bass, flounder, cod) Crustacean shellfish (e.g. crab, lobster, shrimp) Tree nuts (e.g., almonds, walnuts, pecans) Peanuts Wheat Soybeans These eight foods, and any ingredient that contains protein derived from one or more of them, are designated as “major food allergens” by FALCPA. ********************************************** Note these are food allergens, while what celiacs develop are mostly food intolerances. It is possible we may be more likely to develop food intolerances of foods we eat a lot of regularly. That is why some people do a rotation diet, to avoid that possibility. Unfortunately, there are very few tests for food intolerances. So we need to test ourselves with an elimination diet. Before doing that though, make a good trial diet of only whole foods for a month or 2. Any processed food is more likely to cause digestive problems than a whole food is IMHO. You might also find Betaine HCL capsules helpful before or after eating. They generate some hydrochloric acid in the stomach which can aid digestion.
  3. Welcome to the forum Poodle3! Your doctor seems to be going by the usual celiac disease testing criteria, and looking for both a positive antibody results and positive biopsy result. Without both of those being positive, many doctor won't diagnose celiac disease. However there, are some times when other indicators can be used. It doesn't seem your antibodies fit that situation though. See below. ***************************************************** http://www.cureceliacdisease.org/faq/can-you-confirm-celiac-disease-from-only-a-blood-test/ Can you confirm celiac disease from only a blood test? Never, in fact. Other variables must be part of a diagnosis. New guidelines in 2011 allow for diagnosis without a biopsy, but only in very rare cases. In these rare cases at least one of the genes must be present, both tTG and EMA blood tests must be more than 10x normal, and there must be a positive response to a gluten-free diet. Because the above cases are so rare, the gold standard for diagnosis is still an endoscopic biopsy of the small intestine. Read our 2012 Q1 Newsletter, “Evolving Diagnostic Criteria for Celiac Disease,” to learn more. March, 2016 ***************************************************** http://www.cureceliacdisease.org/tag/diagnosis/ Can you diagnose non-celiac gluten sensitivity through a proper elimination diet? Yes, but only after celiac disease has been completely ruled out as the cause of the symptoms. We recommend an elimination diet only under the supervision of a medical professional. (Updated January, 2013.) ***************************************************** Can I be screened for non-celiac gluten sensitivity? There are no tests to diagnose non-celiac gluten sensitivity at this time. Which means, no research has been through a scientific, evidence-based, peer-reviewed study that proves what some labs claim as a way to detect non-celiac gluten sensitivity. Read more about the fallacy of stool tests to diagnose celiac disease and/or non-celiac gluten sensitivity. (Updated March, 2016.) ***************************************************** So your doctor is not doing it wrong, unless they didn't do 5 to 6 biopsy samples as recommended. But, the idea that you have NCGS because of a high DGP IgG test is wrong, because there is no testing approved for NCGS. My guess would be that you do have celiac disease, but that for some reason, it was not detected by the biopsy. You are correct that it would be good to have your relatives tested for celiac disease.
  4. Hi Oniecharles, Id you have DH, then you have celiac disease, no other testing is needed. Welcome to the forum!
  5. Hi Tamie, Celiac disease is really hard to diagnose by symptoms unless they are the classic symptoms of GI distress, short stature, or DH rash. But some people have no symptoms at all (silent celiac), while others have joint pain, nerve damage , hair loss or a host of other non-GI related symptoms. So your symptoms could line up with celiac disease, because celiac disease symptoms are so varied. There is a condition called esonophillic esophagitis that might line up with your symptoms also. Some of us win the jackpot and get more than one condition! One thing your doctor should have told you is to keep eating gluten until all celiac testing is completed. Celiac testing usually includes a blood test for gliaden antibodies, and then an endoscopy to get biopsy samples of the small intestine lining. By the way, if you click on green circle to the right of your thread title, you can follow the thread and get an email once a day of replies. Very handy!
  6. Hi Tony, You may be thinking of the total IgA reading. The total IgA test is kind of a grouping test showing the total amount of IgA antibodies of any kind. Some people don't make normal amounts of IgA antibodies at all, so the total (or serum) IgA test is done to determine that IgA deficiency condition. For someone who is found to be IgA deficient, the IgG anitbody tests are looked at. IgA deficiency is more frequent in the celiac population than the general population. Basically, if you are IgA deficient, the IgA tests are no good. The serum IgA test determines that.
  7. Hi Tammie Girl, Welcome to the forum! You may not get responses hard to tell. Some of these posters haven't been on the forum for many years. There is a Newbie 101 thread in the "Coping With" forum subsection that might help you out some. Here is a list of the antibody tests for celiac disease. Do you know what tests were done for you? If not, it is a good idea to get paper copies of the test results and keep them for your records. Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (ttg) IgA Deamidated Gliadin Peptide (DGP) IgA Deamidated Gliadin Peptide (DGP) IgG Total Serum IgA My hayfever symptoms went way down after I went gluten-free. Which is a little strange, since celiac is an IgA or IgG antibody response, while allergies are an IgE antibody response. But I am not complaining about that improvement in any case!
  8. Thanks for the updated info Sara789! I don't take Tylenol myself, but I imagine some other members do.
  9. Hi CT, I think it is good that you are going to try going gluten-free. You keep saying you want to try gluten in a few years? Maybe you want to try eating pizza and donuts again in a few years? Or drinking a beer? The thing is, You don't have to wait a few years to try those things. There are gluten-free pizzas, donuts, bread, beers, and cereals available now, and have been for several years. It seems like there are more gluten-free food options every year. So there is no need to wait a few years, go out and get some of those gluten-free goodies now and live it up!
  10. Hi Ms Ordinary, Welcome to the forum! No, you are not being a hypochondriac. You are being a sick person. I think you should be tested for celiac disease for sure. The testing is two steps, first a blood test for gliaden antibodies, then an endoscopy to take biopsy samples from the small intestine lining. You need to keep eating gluten until all testing is done.
  11. The only test I know is a self-administered elimination diet. Cut out all gluten for 3 to 6 months and then re-introduce it. Record your symptoms as you go. If they change you may have your answer. Some times NCGS is actually FODMAP intolerance per current thinking. That's another route to explore.
  12. The grain industry promotes the idea that you need grains to get proper nutrition. This is false. Eat a diet of whole foods including meats, veggies, nuts. eggs. maybe a little fruit. No grains are essential nutrients. There are alternative grain like flours people do eat as substitutes. Some are amaranth, coconut flour, millet flour, bean flour, potato flour, rice flour, corn flour, etc. These substitute flours are used so people can make baked goods like what the GE's (gluten eaters) eat. We don't talk to those people. Kidding! If you listen to the grain industry advertising, you may believe you are in terrible shape without Wheaties every morning. Not true. What is true however is that many gluten-free baked goods are lower in nutrition than their gluten counterparts. This is partly because the gluten-free baked goods aren't required to add vitamins to their products (yet) like grain industry products have to. Grain industry products were regulated to add those nutrients because their refined flours were worthless carbs and fluff. They do rise nicely when baked though (due to gluten). If you depend on regular white gluten bread for your vitamins you are basically eating a vitamin pill for your needs. Real whole foods are the proper place to get vitamins and minerals that our bodies need. Multivitamins aren't a bad thing, I take one myself. But trying to replace nutrition from baked gluten goods is essentially trying to replace a vitamin pill. Read the ingredients on the packages to see.
  13. Now we are getting somewhere indeed! https://www.verywell.com/celiac-disease-cheating-is-it-okay-562741 I don't see where anyone told you that you would die instantly or automatically get a terrible disease if you cheat on the gluten-free diet. You are exploring the idea of a self-correcting plan IMHO. If you cheat in the future and have celiac disease, you will most likely experience symptoms that will make you wish you hadn't cheated. And therefore if you have a bit of common sense, you'll stop cheating. If you expect us to tell you that it is ok to cheat on the gluten-free diet and harm your body, you are barking up the wrong tree. Why should we do that? Never mind, I know the answer. There is no good reason for anyone to cheat on the gluten-free diet if they know it causes harm to their body. Temptation is not a good reason. There have been forum members who cheated on the gluten-free diet before. One cheated for 5 years and then had to have an emergency colostomy done. She came to the forum and warned everyone what a mistake it had been and that she would never eat gluten again. Somewhere there is a whole thread on cheating on the diet if you want to read it. Would you tell an alcoholic to cheat on their diet? Why not? If not why do you think you are some special exception and it is ok for you? Just because we don't tell you what you want to hear doesn't mean we are telling you wrong things. Going gluten-free for life is a big change. Nobody said it was easy. If you are celiac, the alternative of continuing to eat gluten is a slow progression of illness and eventual death. Sometimes people on the forum go back on gluten for testing, called a gluten challenge. And sometimes they report new symptoms that don't go away and make them more miserable than before. A gluten challenge is 12 weeks of eating gluten. Occasional cheating, while not recommended, may not cause big problems right away. But nobody can guarantee it won't at some point. If you want to play Russian roulette with your health, nobody can stop you. Nobody, but you.
  14. That's what I did early on the gluten-free diet. Make a big batch of some kind of food on the weekend and freeze half of it. Every weekend made a different batch of food and froze some. After a while you have a nice variety of frozen gluten-free food to nuke and eat. I do suggest going easy on spices or anything at all questionable in the big batches. You can always add spices when you nuke it. But if you make a big batch of food and put some irritating ingredient in it you've ruined the whole thing. Not good.
  15. Hi CT, I am not TexasJen, so can only guess. You posted a long list of test results with only one little line underlined. That little underlined row of text was hard for me to pick out from the rest of the results. So I am guessing TexasJen may have missed it like I did at first. Maybe they'll look again and see the one positive result out of all those years of test results. There are no guarantees in life. You choose your path and hope for the best. If you are smart you also pray about it and ask for help from someone much wiser than you (The Lord God Almighty). You've had repeated celiac disease blood testing for years. More than most people I'd say. Then when you get a positive result you reject it and look for a reason it can't be true. If you are having such a hard time accepting the results then maybe you should go through the full testing process. Or make a decision and stick with it. Whatever that decision is. We can't make your decision for you. I've expounded enough for you to understand and more. I am not going to go over the reason not to cheat on the gluten-free diet again. Except to say it is just a bad idea from the get go. If your dad was diabetic would you advise him to cheat on his diet? Maybe you should take a break from thinking about celiac for a while and let your mind sort things out? That might help. I will tell you that celiac disease can affect the brain just like it can affect any other part of the body. I was stuck with circular thinking for a while not being able to break out of the arguments I had within myself. Now after being gluten-free I am free of that problem. I find it much more satisfying to argue with people like KarenG now. Life isn't always fun. But we can adapt and carry on.